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spastic diplegia and cerebral palsy

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Cremasteric Hypertonity , Spasticcity
April 15th, 2010
my 18 old month boy was born with a respiratory distress syndrome and was in the neonatal intensive care unit for 5 days and on ventilator for 3 days. As he was born 23 days before the expected date, he had underdeveloped lungs for which he was injected with survanta (surfactant). He was later diagonised as being spastic diplegic and cerebral palsy. He also has issues with swallowing. we have been taking him to a physiotherapist once a week for last 1 year, have him on orthopaetic shoes (showed some improvement as he now does not fully tip toe as earlier) and also been using a standing frame. however we are concerned that even after this he is still unable to sit on his own or get up from a turned down (prone) position. His main spastic areas are his pelvic area, trunks and arms. He has also been diagonised by an pediatric opthamologist with seems to have Amblyopia for which glasses and eye patching is recommended. could anybody let us know how many physiotherapy sessions he may need before he may possibly walk?
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mini1302
replied June 21st, 2010
Hi my son is eight and has spastic diplegic cerebral palsy. The doctors told me he would never walk. However following lots of Physio sessions, the constant wearing of day and night splints from the age of 18 months he starting walking at 3 years old. I was washing up one day and suddenly saw him out of the corner of my eye !! He still uses a frame and is very unbalanced but he has a good level of independence. I know every child is different but don't give up hope.
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ilovechocolates
replied September 14th, 2010
hope is there
hey mini1302 i have spastic diplegic and i walk with cane almost all my life. doctors say alot it doesnt mean its true maybe one day ur son wont need to walk with any surport everybody is different
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mini1302
replied September 22nd, 2010
Thanks for your comment - there is always hope. He has started going Karate now which is helping with his balance although his thighs are getting tight at the moment which is hunching him over a bit. There really is no stopping him though - he wants to be a Basketball player in the NBA and a Formula One driver. I always encourage him as best I can however having a bit of a problem with other people at the moment because they are a bit more 'realistic' as they would say, their faces say it all !!!! However other that his Physical disability he is as eager and full of life as any other 8 year old boy !!!
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ilovechocolates
replied October 17th, 2010
hi mini1302 i love how u encourage ur son my mom does that too. my mom still tells me to this day it doesnt matter how u look what matter is whats in ur brain and ur son sound really smart. with physical therapy he will be fine have u ever hard of the euro peds u should go to their website www.europeds.org do u live in michigan
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mini1302
replied October 18th, 2010
Hi thanks for your response. I actually live in the UK and things are a bit slow progression wise here. The best they can offer is plastic slints which cause terrible blisters even though I have been back to the hosptial four times about his current ones already. I tend to have problems with the teachers at school because they either do too much or too little. He got his first ever detention for pushing a child who was annoying him, the teachers were more shocked than anything I suppose but I tell him to stick up for himself just as any child would.

Thanks for the website, I will have a look.

Take Care
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mini1302
replied October 18th, 2010
Hi thanks for your response. I actually live in the UK and things are a bit slow progression wise here. The best they can offer is plastic slints which cause terrible blisters even though I have been back to the hosptial four times about his current ones already. I tend to have problems with the teachers at school because they either do too much or too little. He got his first ever detention for pushing a child who was annoying him, the teachers were more shocked than anything I suppose but I tell him to stick up for himself just as any child would.

Thanks for the website, I will have a look.

Take Care
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