Hi - I am female aged 35, and had both hips pinned at the aged of 11 in Ireland - with a slipped epiphysis. The right hip went first (pinned with two pins after I had knee re-alignment via a pin through my knee for two weeks) and then the second one pinned (one pin)followed a few months later (the surgeon pinned the left one as a precaution as it had the signs of slipping also). The plan was to remove the pins in my late teenage years - but the surgeon thought it best to leave them in.
Can anyone share advice on living life with this condition afterwards! I am really fearful that this is starting to deteriorate. Some of the posts I read on past blogs were very helpful. I thought I'd had arthritis down the road but now I feel it is starting in my left knee and hip. I have been walking regularly to keep fit and keep things mobile. Does exercising daily help?
Will I need both hips replaced as a general outcome for those of us with this condition?!
Unfortunately, no one can tell the future. It greatly depends upon how far the epiphysis actually slipped before it was pinned, and as a result, how congruent the joint currently is.
Also, some patients with SCFE also develop a disorder known as chondrolysis after a slip. This is where the cartilage layer of the bone becomes thinner. In most patients, this reverses itself over about a year after the slip, but in a tiny few, it does not.
So, if you had a bad slip, the joint in not congruent, you had chondrolysis that did not reverse, then you may need a replacement in the future. But, if the slip was not significant (as in your hip that was pinned prophylactically), the joint is still in round, and you did not develop chondrolysis, then you probably will not need a replacement. Of course, most patients fall somewhere in the middle.
Regular exercise is actually good for the joints and the body. It helps to maintain range of motion, strength, body weight, etc. Overuse or extremely heavy impact activities may be too much.
So, you will just have to see how things go over the next few years. There is not really anything you can do about it now. Maintain proper body weight, exercise regularly, eat a proper diet, avoid smoking and excessive alcohol (both have been shown to affect the femoral head), and continue to watch how the joint feels.