Hello Wendy,
It hurt, REALLY HURT to read of the pain that you are in.
May I ask what non-invasive techniques your doctors tried before you had surgery? Sorry but I get this very uneasy feeling that your doctors put you into the OR much too quickly.
Wendy, PLEASE seek the advice of other spinal surgeons and shoulder specialists. Seek out the very best ones that you can find in your area. I sincerely believe you need second and yes third opinions in this matter.
Regarding physical therapy - PT can really help and has helped me. However, my therapist has always said that if a given exercise causes me pain to let her know immediately and she will stop that exercise.
My thoughts and prayers are with you.
RichT