I relate so much to this I was limping and sitting toward my right side due to left side pain (avoiding) after a few years started having alot of tension in right side lumbar gute med. spoke to physio, doctor no help, went to osteo no help, saw myptherapist for dry needleing which illiminated lingering left side pain and started reducing right side tension, did this for a couple of yrs every 6 months i plateaued, told her she had to go deeper she said there nothing but bone deeper, went to chinese medical practitioner who told me i had transverse proccess syndrome (this apparently means i have conective muscle tissue/ muscle membrane attached to my right side trans pro on L3. he has treated me with electro acupuncture and im heaps better in 4 months more improvement than a year of conventional dry needling. however the ropeyness and tension is still there its just more on and off, still almost always on, but my posture has improved.
(i have also seen a new osteo that helped relase my joins as myo and acu released muscles).
the problem is that the ropeyness remains and causes pain and my acupuncturist seem astounded and amused by the sound it makes but doesn't sound confident that it will discipate or he is but can't give a time line and dismisses the amount of discomfort i am in.
I am reading this relating to the rope tense muscle problem you describe and also the fact that most doctors, and i even find physios don't want to press hard enough to really feel what's happening inside, or they dismiss it as general tension or non specific muscular pain and offer me no help i have had to push people to give me opinions. i think this is because they don't know and don't want to speculate but also don't wanted to admit not knowing.
anyway i am now going to push a new doctor (i'll have to find) and my new physio a found a couple of weeks ago about myogelosis.
I tried a C.H.E.C.k prac its helpful as is any good diet and excercise but i don't think its the cure they belive it is although this was before acu treated me for tr.pro syndrome and i do feel more unstuck know and maybe check excercise woul work better know.
I am also doing rehab pilates to address the muscle inbalance 7-10 years of pain have left me with. i am now on a high protein diet just started taking L-glutamine don't no how this will go but here's hoping.
sorry to go on but i found reading this helped me feel better at least. i refuse to belive there is no cure will get better i have so far, why not a little more more?
what kind of injections do you get are the results temporary?
to the guy spruking his book it is simpleton snake oil sales men like you and other docs and physios/body workers that promoted only general cures that leave people like us overwhelmed, let down and under diagnosed.
i do babble on but i'm home with pain, i also now this is fairly old but i found it helpful and wanted to help whoever comes next. if anyone's still around how are things going on the myogelosis anyone found anything helpful?
anyway that's it thanks for sharing all.