I''ve been reading a few threads it appears quite a few people have had meningitis come back 4+ times.... This is starting to scare me because I got a case of viral meningitis about 3 weeks ago... took me a week to recover and it was the most terrifying experience I have been through in my life. I would never want to go through this again but there seems to be so many posts about repeat cases. How many of you out there are getting more than 1 case of this and how many of you have only had it once without it ever coming back???
Scared, that is a fear of mine as well. Once is one too many times in my opinion. For what it's worth, I have been told it is incredibly rare to contract it again, and have read that many of the repeat cases have a spine or skull injury (i.e., a break/crack in a bone that protects the spinal column or brain). I do not have much confidence in what I've been told so far, and this question will be something I ask about when I meet with a specialist in June. With your question, I want to know if it is recommended we be vaccinated to prevent the possibility. I see it's been a month since your post, so I hope you're feeling better by now.
I have had it 6 times.. It started around the time I gave birth to my daughter...that was painful.
I got out of the hospital in December and got it again. I just was released from the hospital today. There is a name for repeat cases. They even have a help group for it. It's deadly, scary and painful. But I am used to it.
I have had viral meningitis 8 times in the last 13 years and I'm in my 30s. It is incredibly frustrating. I'm worried someday I'll have noticeable brain damage. My infectious disease doctor gave me a daily antiviral med but it causes me to get a yeast infection therefore I don't take it. Really sucks.
Consider looking into Lyme disease. The intense meningitis I had and long term side effects ended up being caused by a co-infection to Lyme, Ehrlichia Chaffeenosis or Human monocytic ehrlichia from a tick bite. I did not remember a tick bite or a rash which is consistent with 50% of patients. Many of my neurologic symptoms have disappeared with long term antibiotics and supplements.
You have to go to a Lyme specialist for the right testing as most of the common tests the doctors order are not accurate enough. I continually test negative for Lyme disease but positive for the co-infection, (having a negative test result is common). You have to test with one of the three recommended labs that the specialists refer to. Lyme borrelia can cause similar symptoms and is caused by a bacterial spirochete.
If you continually get migraines, there are some medications that can help so keep asking and seeking a doctor who is compassionate.
My original doctor said that once you get meningitis, you are more susceptible to getting it again. I would keep looking for answers if you are getting it often like some of the replies above. Best wishes.
I have only had meningitis once and I hope it stays that way!
My sister and I got viral meningitis in our late 30s. it was fall of 2004. We had never gotten meningitis before and it is currently 8 yrs later and neither one of us have gotten it again. (hope it stays that way!) We both contracted it from my 4 mo old son, presumably from changing his diapers. He has never gotten it again either, although he is not mentally retarded, he did have a stutter for awhile and took him a much longer time to learn to read than most of his peers.