Kidney Conditions Forum - Renal angiomyolipoma (5cm): risks

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Q: Renal angiomyolipoma (5cm): risks

asked by: vaiop on January 25th, 2009

New User

I have been diagnosed with a renal angiomyolipoma incidentally in my left kidney, when I had sudden pains in my liver due to a huge hemangioma of about 20 cm in the middle of my liver. I was operated in 2004 to extract the liver hemangioma. Since then I just follow the renal angiomyolipoma up with ultrasound. It has grown from 4.5 to 4.8 cm since 2004. I had a brain MRI and there is no tumor there. However, there is an hyppomelanic macule in my right gam (leg), which my mother noticed when I was 6-7 years old. Now I am 30 years old. My family history includes: My mother has an asymptomatic small cyst in her kidney and my father had recently operated 3 small rectal polyps. My questions are:
1. possibility of spontaneous hemorrhage
2. possibility of spontaneous hemorrhage during pregnacy due to estrogens
3. do I have tuberous sclerosis?
4. Is there a treatment? Drug treatment or embolism?
5. possibility of an angiomyolipoma in my right kidney
Thank you in advance!

Replies(3)

MandMs

replied on January 27th, 2009

Extremely eHealthy

The risk of hemorrhage is greater in masses with a diameter >4 cm (almost 80% of masses with diameter bigger that 4 cm are symptomatic, bleeding being the main symptom, leading to pain and weakness).
The angiomyolipomas are usually bilateral (found in both kidneys) and multiple, when associated with tuberous sclerosis.
What is suggestive for a tuberous sclerosis is the white or lighter patch of skin you have, and the fact that solitary angiomyolipoma when is not associated with TS is usually found in the right, but not in the left kidney as in your case.
In cases in which patients have recurrent episodes of hemorrhage or massive bleeding, the tumor can be resected.
Renal arterial embolization may also be used to control hemorrhage.

Best wishes!
Marija

vaiop

replied on January 27th, 2009

New User

Marija,

thank u so much for your concern and provided information! I am so happy I got such a response! However, what is your reference? I mean, are you a medical doctor or could you share with me the papers or book you read so that I can search more? You mentioned very interestingly that a patient with TS usually have bilateral angiomyolipomas and when solitary it is in the left kindney. How can I be sure wheather I am a TS patient or not? Moreover, my angiomyolipoma is assymptomatic, should I have an operation of left kidney ablation and what are the alternatives? Having all these questions in mind, a suggested source of information would be extremely helpful.
Thank u again,
Eleni

vaiop

replied on January 27th, 2009

New User

keep up the good work

Marija,

I just saw your full profile and it really touched me. Keep up the good work with your daughter, life and studies! You have the essential components to be a good life-giving (in a broader way) doctor. Therefore, you should finish your studies, disregarding the difficulties. This site may help you deepen your knowledge by helping others, let you see how the patient feels and also understand that every patient has the right to know what his/her problem is and what the alternatives are, so that he/she can decide for real.

Thank u for being here with us,

Eleni

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