Hello, new to this. I'm 21 and have had Crohns Disease for 7 years and been taking Remicade ever since every 6 weeks and never had a problem. But lately I've been having flu like symptoms and both legs hurt really bad from hip to my ankles it almost feels like I just got done running a marathon. Also my arms feel the same way. I don't know if it could be from the Remicade that's making me sick or if its something else? But after reading a bunch of posts on here it seems like I'm not the only one with these types of symptoms. If anyon has any suggestions please let me know. Thank you
Hi I've had Crohns for 23 yrs with fistulas for the last 4. I tried Remicade when I first got the fistulas, it worked really well for about 5 treatments then I started to feel really unwell for days afterwards. It got to the stage that by the time I felt ok, it was nearly time to start the whole process again. About to start Humira next week. I also got leg pains but this possibly due to the doctors finding I was very aneamic as a blood transfusion stopped that pain right away.
hope any of this helps.