So, I am hoping my daughters story will be a positive and not turn into a negative. I was really hoping for at least one that spoke of quick recovery. My daughter is 11 and got mono tested positive for the antibodies.. she never really got the fatigue and her fever never got above 101. She did not get the swollen spleen or liver either. She did get the terrible throat pain and swelling and severe nasal congestion. The fever broke just over two weeks and now her congestion is almost gone. My concern is in reading all of this the lasting effects people have. She is a competitive dancer and really wants to get back off the couch and into the studio. I would love to hear a ray of light about a quick recovery versus the 6 month-year! I have also heard Virgin Coconut oil, Omega 3 are all good for recovery.
I have had mono for 3 months. I was backpacking Europe when I got it and I had to come home because I was so sick. I have been home for 2.5 months and I am starting to feel better. I have worked my way to biking for about an hour and/or hiking the same amount of time. I still have pretty intense bouts of fatigue but try to push myself and drink coffee. I pick up every bug and have already had the stomach flu twice in 3 weeks. I am planning on finishing up my backpacking adventure which means I will be traveling non stop in israel and peru for the next 3 months. I am leaving on the 9th and wondering if putting this much stress on my immune system is a bad idea. I can handle the persistent fatigue but if i get full blow mono again I feel like i will slump back into a depression.I going to keep fighting and plan on finishing my trip. I guess if it gets too debilitating I can always go home and rest...I am just at the point where I am not going to let it change or effect my life but with that being said i don't want to get CFS. any advice....should I go on my trip and keep pushing through it?? Anybody else backpacked around post mono??
The best advice you will get is - DON'T DO IT! You are begging for prolonged recovery if you stress your body too early. Forget about hiking unless you make at least two months straight symptom-free. Mono is a b***h and you seem to underestimate this well-known fact. Take your time and do not overcook the meal even if you feel better, otherwise things can easily relapse/go chronic and then you can suffer for months if not years.
I am at month six right now and after feeling some improvement in recovery I decided to finally break my alcohol diet for the Christmas Party with colleagues. What a mistake - I felt terrible five days straight after drinking just 3 beers, 4 shots and not getting enough sleep.
I recently spoke to an infection decease doctor and she advised me to keep my diet for a whole year after onset and get plenty of rest meanwhile - get the point? BTW I'm 29 and was a strong, bodybuilding active young man prior to getting mono in July, so really my best advice is take your time and do not overestimate your immune system’s limited capabilities against this persistent infection. This is not the flu that you beat in a couple of days, it’s freakin mono and it puts your mind and body to severe stress for months, if you are lucky.
Wishing you all the best in recovery and livestrong!
Hello! I do know hopw you all feel! i wanna share my story too! last 2 possible cases that might gave me EBV was 14/10 and 21/10 i started to devolope the illnes symptoms which are fever extreme fatigue and sore throat and loss of apetite at 6-10/11 ! then after sore throat persisted and swollen lymph nodes in groin under chin and anterior cervical started to enlarge! i got so worried it might be HIV or anything more serious! but i started to feeel better! and glans got a lil smaller after a week! but then my throat got worse and gland enlarged again they were very swollen , ( no further location were found), i went to doctor on 24/11 he diagnosed me with acute tonsilitis! i ran test for StrepThroat (bacteriologica assay) and IgM EBV test ( for acute ebv infwection) they both came back positive, so I was diagnosed with Strep Throat and Mononucleosis and Tonsilitis! i took antibiotics course for a week! but they did not help me i got a sore throat about twice - 4 times a week for a month ! on the 23/12 i never felt any pain in my throat, but i felt it swollen and lot of white stuff we there so i started another course of antibiotics, it is getting better now! but lately , about 4 days ago i started to feel a very mild fever 37-38 ! and in addition my swollen nodes are still swollen, sometimes they are painful, they do no increase in size! and in addition to that in the first of december 1-3/12 i started to feel another swollen lymph nodes in the back of my head and neck ( occipital) they are swollen as well but 2 of them are decreasing in size!i maid CBC, and found out in increased Lymphocyte count 55% neutrophils count is low but absoulute count is normal, and liver enzymes are highly elevated which indicate mild hepatitis, So to sum up i had sore throat for about a month and a half and swollen lymph nodes for almost 2 months! and now diagnosed with mild hepatitis! and i do feel fatigued and sleepy! is there anything to worry about! am i still havin mono! i mean active EBV ! should not swollen lymph nodes go down after 4-5 week! i am 19 years old guy! skinny and i am allergic to fruits so i do not eat them! does that have any connection with the fact i am still experincing the symptoms! HELP ME PLEASE
Hi my mono started 2 weeks ago it just gets worse day after day i sleep for 15 hours straight wake up tired try to stay awake and go right back to sleep its so hard to drink or eat anything im losing weight rapidly if anyone can help please message me thankyou.
I am 50 and discovered I had mono right before Christmas last year. I am guessing that I had it since around Thanksgiving since the doctor estimated I had had it for about 4 weeks at the time of diagnosis. It started with a sore throat in which I went to see a doctor and was given a round of antibiotics. I improved some but wound up feeling like I had a mild case of the flu that would not go away. I finally wound up in the hospital emergency room late one night when my temperature shot up to 104 degrees. It was there they did some blood tests and noticed my liver enzyme count was very elevated. I was sent home later and told to see my doctor for more tests. The initial test at the hospital did not indicate mono but the EBV test later came back positive. I have been through 6 rounds of antibiotics since my diagnosis for various bacterial infections that I have caught. I am some better but by no means am I back to "normal". Fatigue is a big presence still and days where I have flu-like symptoms. Days that I do feel pretty good I probably do too much just trying to catch up on things from so many months of not being able function normally because I usually feel awful and exhausted for several days afterward. It is so very hard for others to understand just how debilitating mono can be...even for me to understand! I cannot remember what it was like to feel well since it has been at least 4 months now. Recent check on the liver enzymes showed they are still at an elevated count.
Take care everyone. I wish you all the best.
Greatly limit activities on "good" days until you are well, Especially with liver enzymes elevated you need to be resting well for another few months..If you don't, you can expect this to drag on for months or years..So take care of yourself now..Good luck.
In January of this year I decided to go back to college for a second degree. Things started well enough, but after a couple weeks I noticed my digestion was affected. I had strong acid reflux, burning yellow stool, I was losing weight, and I was dealing with anxiety and episodes of extreme fatigue. I had been ill for several months the previous year with gastritis/reflux, so I assumed it was a recurrence of the same problem.
Over the course of the next two months the fatigue became worse and worse, I felt like I wasn't even inhabiting my own body, just a shell. I continued to lose weight, but I managed to keep the anxiety in check by meditating. I went to two gastroenterologists, an acupuncturist and a general practitioner, had an endoscopy, colonoscopy, several stool tests, a chest x-ray, countless blood tests, a sonogram and a gall-bladder scan. No doctor could tell me what was wrong with me, they couldn't even offer a hypothesis or a reasonable plan of action. Because the stool tests showed Blastocystis (a potentially - but not necessarily - harmful parasite) I was put on antibiotics for 10 days, twice. Both times they made the symptoms much worse and there was no improvement afterward.
I kept seeing different doctors, and eventually an internist (who was willing to explore all options) decided to test me for Epstein Barr Virus. It came back positive for Mono, which appears to be between the acute and chronic phases. Gaining this knowledge has been a huge relief. It may take a long time, and it may be difficult, but at least I know I can beat Mono. It's been 4 months since I first noticed a change in my body, and 3 months since the fatigue became constant. Still, these days all I can do is hang around the house and try to do bits of activity, but I feel like the physical tiredness is slowly getting better. My mind still falls into stretches where it zones out, and it takes real effort to stay alert. But hopefully these things will improve in the next few weeks. (As a side note, it does not seem the digestive issues are related to the Mono)
One thing that has really helped is to drink plenty of fluids. Since I never really developed a fever or sore throat, I didn't pay much attention to how much water I was getting. At one point I noticed my urine became cloudy, and after walking for 10 minutes I became completely dizzy and felt like I was going to faint. I think since your body is doing so much work to produce antibodies and filter out the virus, it needs a lot of hydration. Since I started drinking more water I haven't had any more dizziness/fainting.
First of all I hope your son is doing well! I too have mono right now. I was diagnosed 5 weeks ago and I understand how horrible it is! I too, get that "weird" feeling your son gets, you feel almost paralyzed! I'm not sure what it is or how long it will last.
But I just wanted to let you know that my mum had me on vitamin B pills and I saw my doctor for a check up. We asked if a vitamin B shot would be helpful. The doctor said that most doctors don't necessarily recommend it as there isn't a high chance it will make a difference. She said it wouldn't hurt to try it and it was completely our choice. I didn't end up taking the shot because my blood test results claimed my vitamin b was very high, but the doctor said getting a very high amount of vitamin b won't hurt! Im sorry I couldn't help much but I hope this was a little useful! Good luck to your son! I hope he feels better soon.
I didn't even realize when my MONO started. I'm not sure how I got it if it is from stress or sharing a drink at a concert with a few friends. This summer I was taking college classes, interning, and working almost six days a week. I know I over worked my self, not to mention that I'm constantly stressed, and live in New York City. I self diagnosed my self with MONO around August 19th . I went into the doctor to get tested and it came up negative. The night after I woke up with a severe side pain and went to the ER. The next thing I knew I had to have my appendix out. This was the week that I was starting my Senior year of Fashion Design. I am still trying to maintain my classes. Recovering from having my appendix out was hard enough. I realized I was still extremely exhausted, I went back for MONO testing again and it came up positive. The MONO comes on in spurts. I had to go on a medical leave from work. I'm still trying to keep up and go to class because I need to finish this semester. If you have any tips on vitamins, food, etc I would love to hear them. Also is MONO sometimes stress related ? And can you fell better and then added stress make the MONO worse ??? What is the longest time it can last ??
I have only had mono since January 2013 I have been taking bee pollen granules, olive leaf oil and lecithin gel capsules along with vitaman D. I also drink alot of different teas milk thistle and chamolmile tea. I followed a regiment that I found online on ehow I think the info was obtained off of Elizabeth Nobles site. The supplement have helped me out alot I do have occasional symptoms but nothing like I had in the beginning. I was so depressed and felt like I was going to die or develop some sort of autoimmune disease. Hope this helps I really dont think there's a fast cure but by changing your life style and adapting to this stupid virus is what has helped me. I try and eat extremely healthy I find that when I give in to eating bad foods when I'm with friends is when I start feeling ill again. I have my good days and my bad luckily I've been having more good ones than bad. Throughout my sickness I manage to make it to work everyday I took a total of 5 days off here and there especially when I felt the worst. I refused to take medications and anti-depressants that were prescribed and took the natural approach in trying to find a cure or something that would help aleviate my symptoms. I hope one day to be my normal self again but untill than I might as well make the best of it. Best wishes to all!
I'm writing this because reading all the other mono stories on this site made me feel a whole lot better, so I reckoned I'd add my two cents. No-one else I know has had mono for this long, or this severely. I thought I was going nuts until I found this page.
So, I kissed a cowboy and got mono. It started in October. It is now April. He wasn't worth it. The mono first manifested as strep throat so severe that for three weeks all I could do was breathe and drink soup spiked with prescription painkillers. Around mid-November, my boss fired me because I couldn't make it to work most days, and when I could, it took two Advils and four double espresso coffees to get me through. In February, after a couple months sitting around doing nothing, it looked like it had cleared up. So, I went to Ecuador for five months. Big mistake. I had to return home three months early. My symptoms by this point (late April) are headaches, brainfog, severe fatigue and nausea, no immune resistance to anything, and depression, (although I suspect the depression is mostly just me.) I've lost ten pounds of weight, which ordinarily I'd be pretty happy about, but I've since realized that I really didn't have ten pounds to lose, and being this skinny isn't attractive AT ALL. The loss of immune resistance is the biggest problem. If anyone so much as sneezes on me, I'm down and out for two weeks. The mono doesn't show up in a blood test anymore, but I still have a very low white blood cell count. Doctors orders are to sit tight and stay quiet until August, much to my frustration. I'm heading off to university in September, and I really hope it'll be mostly gone by then. Meanwhile, I'm hanging around being useless, because if I try to do anything productive I fall flat on my face. It's a bit of a comedown from the hyperactive athlete I usually am.
To anyone else with this thing, I feel your pain, I really do. Just, don't ignore it and try to bull through like I did, you'll only get sicker. Coffee cures most things, but not this one. And really, really, don't go to Ecuador. Just, don't. Take it easy, get lots of rest, and if you're the hyperactive type like me, do something like knitting to help feel less useless. Seriously, I taught myself how to knit three weeks ago, and I've since made a scarf, five pairs of gloves, and a crocodile stuffy toy (the croc is for my little Australian cousin). I don't know why, but it helps with the depression, especially if you work with fluffy pink wool. Vitamin C is a godsend, and so is green tea. If you leave a tea mug lying around, make sure to put a 'bio-hazard' label on it, so no-one accidentally uses it. On that thought, if anyone gives you s*** for lazing around, french kiss them. They deserve it.
Good luck to everyone, and thank you so much for sharing your stories. It's awesome to know that I'm not the only one. Guess I shouldn't have kissed that cowboy.
Oh boy am I glad I stumbled upon all these posts! Let me tell you why:
I was mowing a little more than 3 weeks ago when I started sweating buckets and felt like I was going to pass out. Thinking it was just dehydration, I spent the next 3 weeks dealing with hot hot flashes, cold sweats, and insomnia. Finally, it got so bad I went to the ER, and alas, Mono. That diagnosis was 4 days ago, and it seems like ever since they pulled that IV out of me, the rest of the symptoms started coming (nausea, joint pain, etc). However, the one thing the doctor didn't tell me to expect were the mental symptoms, and that is where you all have been so helpful. Last night was the worst. As usual, I was up well into the night not being able to sleep, and my dog ran up my door and started growling as through something was out there. This set off this wave of paranoia that I could not control. So much so that I was out in my back yard with my fire stoker and flashlight searching my yard. Then I returned into my house and started to feel depressed, then anxiety. Finally, I was laying in my bed, eyes wide open, and a tree was moving around in front of the moon and for some reason I started freaking out thinking it was some UFO beaming light into my window. Finally, at around 7:00 am I finally fell asleep for a couple hours. I know this all sounds crazy, but I am such a calm collected person that I could not make sense of any of it! So hopefully, if someone has mono and they are about to have a mental breakdown a 4 in the morning they Google like I did and see that this stupid f***ing illness attacks everything! You aren't crazy! Thanks again for your posts everybody, you made me feel at ease.
I'm a 15 year old guy from the Netherlands, and I was diagnosed with mononucleosis three months ago after I had my blood checked because of a severe throat inflammation. I have no idea how I got it, I haven't kissed anyone or knowingly drunk from someone else's glass.
Reading all these stories makes me kind of happy, because, well, I barely notice I have mononucleosis. I'm not feeling significantly more tired than normal, I'm not having a mental breakdown...
The only thing that really bothers me is it interfering with my sports. I'm quite an avid middle distance runner, I train three times a week. Just before I got ill, I ran a new personal best on the 800 metres, 2:19 (I said avid, not good...). Obviously, when I had the severe throat inflammation, I couldn't practice any sports, and after I heard I had mononucleosis, I knew my whole season would be messed up.
After I heard my diagnosis I didn't sport at all for a month (too dangerous), but being the avid athlete I am, after that I slowly started training more and more. My first race was already a week after I started training again, and I ran 2:29. That's 10 seconds off the pace. Doesn't sound like a big deal, but in athletics that's a HUGE difference.
So after that, I started training more and more (and I'm still doing that) in hope to bounce back and be in great shape for the National Championships Relay.
I think that to some extent mononucleosis helped me, as I'm more eager to get in shape than ever before.
I am a 54 year old female and this is my second time to have mono, the first time I was 17. My doctor said this is probably a new strain of mono since there are now different strains. I've been out of work for 2-1/2 weeks and am scheduled to go back to work in 2 days. Still don't feel well, but am better. I was put on the steroid dose pack which helped my very sore throat. Oh, by the way, I'm a dental hygienist. I can only assume I got this new infection from one of my patients since I am in close contact with people's saliva all day, but not sure. The infection is worse when you're older. Apparently it is very rare at my age - lucky me. I plan on sleeping for the next two days and hopefully will feel well enough to return to work.
I found this forum while having mono, and I wanted to post on here for everyone suffering from mono. I have some information that people might want to know about. I had mono with some very unusual symptoms like the ones mentioned on this forum. I also have sinus problems, and actually thought that is what was going on with me. Because of this, I didn't realize I had mono for quite some time before figuring it out. My ENT even thought it was sinus related.
I am 22 years old college student (this is usually the type of person who gets mono, the vast majority). I had no regular symptoms, no sore throat, no fatigue, no headache, nothing. This is why it took so long to figure it out. The only two symptoms I had was extreme dizziness, and some inflammation in the stomach area. I did not have an enlarged spleen or liver. The doctors were afraid of this because I had mono for so long. Luckily, my mother is a doctor at Johns Hopkins, and was able to get some of the best doctors in the world to look at me. My case is very very rare, but it can happen.
I eventually got a blood test and that is when mono was confirmed. Although, my symptoms are not normal, they do happen. If you feel dizzy with mono, that can happen. That quote is directly from one of the top ID doctor's in the world. Don't assume you have something else. It is very rare, but it does happen. My dizziness slightly became less severe week by week. Lasted for about 5 weeks (still feel a little to this day), after I finally figured out that I had mono. The doctors say they are seeing more and more people with dizziness, and they don't know why it is not listed as a symptom by the CDC. I would recommend taking 2 25mg (50mg) of meclizine daily. This stuff is over the counter and is only medicine that worked for me. It did not cure the dizziness, but it made me feel so much better. Dramamine did nothing for me.
When you're feeling really dizzy, DO NOT walk anywhere. At times this made it really really bad because I felt I could walk and could not. Don't take any chances as your body needs as much rest as it can to recover. I found this out the hard way. If you don't rest you're prolonging your mono experience. Even if you feel great, rest.
That was a long ramble, but if anyone has any questions regarding my experience, please let me know. Mono sucks, but I might be able to help you get through it.