Join Our Community!
Share
Conditions and Diseases > Hypoglycemia Forum > Reactive Hypoglycemia
User Profile
Q: Reactive Hypoglycemia
asked by: Niklas89 on April 10th, 2009
New User
I have been diagnosed with reactive hypoglycemia with a 5 hours GTT in the middle of which I fainted.
My symptoms have been very severe for most of my life.

Weakness, lethargy, tiredness, aching muscles, short breath, palpitations, sweating, cold spells, cold hands and feets, confusion, forgetfullness, panick, anxiety, irrational anger, irritability, insomnia, spaciness, vertigo.

I generally feel terrible in the morning, need to nap in the afternoon and start feeling better in the late evening.

Since the diagnose I have never failed to experiment to find the right diet for me.
I have tried many approaches and none of them has worked fully.
I want to explain the approaches I have tried and why and I hope you can lead me to the right direction:

1) High complex carbs, low simple carbs and low-fat diet

It is suggested here, but it never worked for me.
http://endocrine-disorders.health-cares.ne t/reactive-hypoglycemia-diet.php
Maybe a slight improvement but still all the symptoms were triggered

2) Eating many small meals a day instead of 3 meals.

It never worked for me and actually made my symptoms worse.
The more times I ate, the more reactive my hypoglycemia became to the simple act of eating and digesting.
Someone suggested that 5-6 hours must pass between eating to allow insulin levels to come back to baseline.
After all, before discovering I suffered with RH I was snacking all day.
Allowing time for insulin surge to subside after a meal by not eating often has improved my symptoms a bit.
Read this: http://tinyurl.com/cotrp4

3) Low GI diet

Made sense, but among the low GI foods are things I can't tolerate right now.
Like fruits for example, they might be low GI but I don't tolerate them, actually they're the worst offenders right now.

4) Life Without Bread

This is a book which suggests 70 grams of carbs a day.
Carbs are considered are listed as bread units. One bread unit is 12 grams of carbs.
Even sugar is allowed in this plan, you just have to limit yourself to 6 bread units.
This was promising because the book showed the glycemic curve of people who reversed their
reactive hypoglycemia with this diet. But on the diet when I was eating carbs I was having symptoms and when
I was eating less bread units I got symptoms of carb starvation. So I never tried the no carb approach I have been suggested.

5) Ketognic diets

I read the Atkins diet. In the book he mentions people with reactive hypoglycemia reversing their symptoms with this diet.
At the beginning after an "Atkins meal" I was actually feeling good, less reactive.
But I was sugar crashing more often and feeling ever more lethargic and losing muscular tone.

I realized that I was not consuming enough fat and too much protein.
Many people switch to low carb without replacing carbs with fats and they end up following a sort of protein starvation diet. A diet which is both low-carb and low-fat (lean meats and low fat cheese) is a disaster, you can't have energy in such a diet. Besides proteins are insulinogenic and too much of them have the same effect of carbs (I know people with RH react badly to protein powder)

So I started to eat more butter, more fat meat, more cream, more mascarpone, more nuts.
And it worked somewhat but still I was crashing and craving carbs.
When I would allow myself to eat carbs, though, the reaction was even worse than it the past.
The diet was reducing "triggers" but was making myself more carb sensitive.

6) Ketogenic diet with refeeds

I learned that low-carb diets are a problem for many, expecially athletes.
You start to feel better but then your energy decrease, you have energy and sugar crashes and you can't stomach the food.
The reasons seems to be "depleted glycogen"

That's why people who do sport and want to low-carb have invented diets where you do low-carb till your glycogen is depleted and then you have an high-carb meal to replenish the glycogen. The carbs are easy metabolized into glycogen and don't affect blood sugar and then you can start again a low-carb cycle feeling good and waiting for glycogen to be depleted again.

This is where I am now and this is somewhat better than anything else.
But I still have symptoms, I still have after lethargy and spaciness.
Less symptoms than when I began but still I haven't found a total cure or solution.

Forgive the long post but I thought you might benefit from my personal discoveries obtained through painful experimentation and also in suggesting me what approach to try, you already know what I have tried and failed.

I hope you can help or at least to have a chance to discuss symptoms, personal triggers and solutions.

Thanks for reading
Niklas
Did you find this post useful?
|
Replies(8)
User Profile
ketchup2me
replied on April 18th, 2009
New User
I know your pain
I too have suffered for many years with severe hypoglycemia. I start seeing flashes and become unable to walk at level 60 on the GTT! I know your pain and I feel for you. It is a very misunderstood disorder. I have found only one thing that works for me and even once or twice a month I still have a "coma crash". That one thing is "never eat anything starchy or sweet (including fruit) until I have eaten protein". This applies even if I have already crashed in the morning and can't even stand the thought of eating. I wish you the best of luck!
Did you find this post useful?
|
Avatar
hyposuz
replied on April 20th, 2009
New User
Niklas89
I'm not sure you'll see this but the main thing that helps me is to balance carbs, fats and protein(maybe Zone diet). When I was I child I would eat homemade pasta with meatballs and not want desert and feel really good after wards or a croissant sandwich with avocado,chicken,tomato and felt fine for longer than after eating any of the "healthier" foods. The worst thing for me is diet Coke, or lots of caffeine combined with carbs. Also, salads with protein ie; a steak salad makes me feel like I'll die without something starchy. Not very technical, but maybe some help!
Suzanne
Did you find this post useful?
|
Avatar
splash75
replied on May 18th, 2009
New User
u sound like me!
Your symptoms and description of diets are like I am reading my own progress.... fats did work for a while, but like all the diets even when I found something it works for a limited time... back come the cravings, comb like crashes, spacing out etc....

I have tried all the above Atkins, Zone, high carb, low carb... some worked for a time but not after...

re: the running down carb, then higher carb... does seem to work to some extent, but I seem to get very emotional coming off the carbs...
Did you find this post useful?
|
Avatar
karabelle
replied on August 10th, 2009
New User
Niklas,
Just wonderin how you're doing now? Have you found anything that works for you. Your symptoms sound similar to mine. I get SO frustrated with this and trying to figure out what works for me. Last week I did low-carb and I always get very weepy and depressed. I can't stay on that for long or I pay for it.
If you have any new ideas please share. thanks.
Did you find this post useful?
|
User Profile
underworldchef
replied on October 8th, 2009
New User
reactive hypoglycaemia
Hi All. I really appreciated reading all this and finding I am not the only one struggling to find the right approach to RH. I am curious to know more about the"running down the carb then higher carb". Does anyone know where I might find more info on this? One dilemma is that I exercise every day to try and manage weight but then I need to eat more to sustain my blood sugar and my weight remains the same couple of kilos over. In fact I have to say its gone up the more I exercize. I have found that animal protein is fairly essential at most meals particularly breakfast and lunch. I'd rather not eat so much of this but if I dont my blood sugar drops and stays down. I also need to combine this with carbs to feel grounded. I have to say this condition rules my life as I'm always having to be prepared. I read an old book about hypoglycaemia once, that said it was a condition associated with all sorts of criminal activities-I thought this was quite funny and could also see why it had this kind of reputation.
Did you find this post useful?
|
Avatar
mandycandy23
replied on October 13th, 2009
New User
Reactive Hypoglycemia
I too have suffered from RH and trying to get my diet balanced. I avoid eating anything sweet without also eating protein and fat (like I won't eat an apple without some nuts). I could not imagine trying to go 5 hours without eating. I recently bought the Reactive Hypoglycemic Cookbook from Amazon, and it's worked so far. It isn't the low fat approach or Atkins but more of a plant based diet. While I'm sorry that you are suffering, I'm glad to have found some other people to share.
Did you find this post useful?
|
Avatar
sewandsew
replied on November 8th, 2009
New User
Hi Ive recently been diagnosed reactive hypoglycemia and trying to follow low gi diet. Not really helping.I am so confused as lots of web sites have different info. I toohave noticed if i have meat at evening meal symptoms better but dont really want to go back to eating meat regularly. I seem different from most people Ionly have my obvious symptoms when i lie down to go to sleep. I may be effected more but I have fibromyalgia and M>E so difficult to tell! I think I am going to try eating fat and protein with every carb meal or snack and see if that helps. Also I can see how the many meals instead of 3 approach might help but mealtimes are social and I see my husabnd little enough without being able to have the same meals as him.Any suggestions please this is really dong my head in as we say in the UK! cheers Julie
Did you find this post useful?
|
User Profile
cibolagirl
replied on November 10th, 2009
New User
I have to tell you all that earlier this fall I got the flu and lost my appetite. I took this opportunity to go on this cleansing diet of nothing but protein and green leafy vegetables for the first week. My gosh! I have never felt better. The problem was that first came company then a vacation for me and I fell off the diet. I am back to my old ways of craving carbs and sugar and feeling miserable after eating. Though I eat well at lunch I have usually eaten some sugar mid morning. So after lunch I crash. At Halloween I was so bad I was falling in to the "crash coma" states regularly. If only I could stand the diet again for a week. I have not felt that good since I was a child!
Did you find this post useful?
|
Quick Reply
Search