I have been diagnosed with reactive hypoglycemia with a 5 hours GTT in the middle of which I fainted.
My symptoms have been very severe for most of my life.
Weakness, lethargy, tiredness, aching muscles, short breath, palpitations, sweating, cold spells, cold hands and feets, confusion, forgetfullness, panick, anxiety, irrational anger, irritability, insomnia, spaciness, vertigo.
I generally feel terrible in the morning, need to nap in the afternoon and start feeling better in the late evening.
Since the diagnose I have never failed to experiment to find the right diet for me.
I have tried many approaches and none of them has worked fully.
I want to explain the approaches I have tried and why and I hope you can lead me to the right direction:
1) High complex carbs, low simple carbs and low-fat diet
It is suggested here, but it never worked for me.
http://endocrine-disorders.health-cares.ne
t/reactive-hypoglycemia-diet.php
Maybe a slight improvement but still all the symptoms were triggered
2) Eating many small meals a day instead of 3 meals.
It never worked for me and actually made my symptoms worse.
The more times I ate, the more reactive my hypoglycemia became to the simple act of eating and digesting.
Someone suggested that 5-6 hours must pass between eating to allow insulin levels to come back to baseline.
After all, before discovering I suffered with RH I was snacking all day.
Allowing time for insulin surge to subside after a meal by not eating often has improved my symptoms a bit.
Read this:
http://tinyurl.com/cotrp4
3) Low GI diet
Made sense, but among the low GI foods are things I can't tolerate right now.
Like fruits for example, they might be low GI but I don't tolerate them, actually they're the worst offenders right now.
4) Life Without Bread
This is a book which suggests 70 grams of carbs a day.
Carbs are considered are listed as bread units. One bread unit is 12 grams of carbs.
Even sugar is allowed in this plan, you just have to limit yourself to 6 bread units.
This was promising because the book showed the glycemic curve of people who reversed their
reactive hypoglycemia with this diet. But on the diet when I was eating carbs I was having symptoms and when
I was eating less bread units I got symptoms of carb starvation. So I never tried the no carb approach I have been suggested.
5) Ketognic diets
I read the Atkins diet. In the book he mentions people with reactive hypoglycemia reversing their symptoms with this diet.
At the beginning after an "Atkins meal" I was actually feeling good, less reactive.
But I was sugar crashing more often and feeling ever more lethargic and losing muscular tone.
I realized that I was not consuming enough fat and too much protein.
Many people switch to low carb without replacing carbs with fats and they end up following a sort of protein starvation diet. A diet which is both low-carb and low-fat (lean meats and low fat cheese) is a disaster, you can't have energy in such a diet. Besides proteins are insulinogenic and too much of them have the same effect of carbs (I know people with RH react badly to protein powder)
So I started to eat more butter, more fat meat, more cream, more mascarpone, more nuts.
And it worked somewhat but still I was crashing and craving carbs.
When I would allow myself to eat carbs, though, the reaction was even worse than it the past.
The diet was reducing "triggers" but was making myself more carb sensitive.
6) Ketogenic diet with refeeds
I learned that low-carb diets are a problem for many, expecially athletes.
You start to feel better but then your energy decrease, you have energy and sugar crashes and you can't stomach the food.
The reasons seems to be "depleted glycogen"
That's why people who do sport and want to low-carb have invented diets where you do low-carb till your glycogen is depleted and then you have an high-carb meal to replenish the glycogen. The carbs are easy metabolized into glycogen and don't affect blood sugar and then you can start again a low-carb cycle feeling good and waiting for glycogen to be depleted again.
This is where I am now and this is somewhat better than anything else.
But I still have symptoms, I still have after lethargy and spaciness.
Less symptoms than when I began but still I haven't found a total cure or solution.
Forgive the long post but I thought you might benefit from my personal discoveries obtained through painful experimentation and also in suggesting me what approach to try, you already know what I have tried and failed.
I hope you can help or at least to have a chance to discuss symptoms, personal triggers and solutions.
Thanks for reading
Niklas