Hello, not that I can be of much help, but I'll share my experience. About 10 years ago I had my first "attack". I got a sharp, sudden pain in the right side of my head (right above my ear and to the front of head...kinda above temple area). It went away just as fast as it came, but scared me nonetheless. I do not remember now when I got the next one, but they became pretty regular, although only lasting seconds at a time. About 6 years ago, they began lasting longer, but not as much "stabbing" but painful. I've kept this pain for weeks at a time, NO pain meds help. I have gone months without pain, the it just hits and will often linger for weeks at a time to this day. I've had two MRI's and it shows nothing abnormal. It is very frustrating. I also have reocurring shingles on the same side of my body, maybe that has something to do with it...some nerve damage? Also, just in the last few months, my daughter has asked me why I was shaking my head (like saying no). I did not know I was. I've done this about 4 times in the last 6 months. No, have not been to doctor as I have lost faith in the medical system. Not sure if all these things are related ot not, could be coincidence? I am only 43. I thought I may have Trigeminal Neuralgia. This is the closest thing I have found to what I experience, but mine is not triggered my touch, brushing teeth, etc. It just happens whenever. Does seem to happen more when I am tensed up from driving or cold, etc. I also have a knot on my back under my right shoulder blade....it gets very sore and inflamed, I thought maybe that had something to so with it as well????? I wish I had an answer for you. Oh, I also went to neuro who prescribed me an anti-seizure drug (which I did not even bother getting filled as I hate doctors who give you a drug to cover up a problem). Anyway.....I woudl love to hear an update on what your Dr says.
