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Purple feet

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I have purple feet all the time. They don't turn color in response to temperature. There is not discomfort. The skin appears healthy other than it ranges in color from red (like sunburn) to purple (like a bruise). Applying pressure to the skin causes it to go back to flesh color but as soon as the pressure goes away, the redness/purple return. Elevating the feet does not seem to have an impact. Sometimes the feet are cold to the touch but probably not more so than the average woman's feet.

It started about three years ago and has progressed significantly in the last 6 months. I'm very healthy - ex-smoker of 7 years. I exercise daily - run several days a week. I take no medications other than a daily vitamin. I have no allergies.

I've been to a dermatologist, general practitioner, vascular specialist and rhuematologist - all whom have never seen anything like this and none of whom have a clue what it could be or how or if to treat it.

I'm hoping there is someone else out there who has experienced this or knows someone who has. Thanks.
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First Helper Telengectasia
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replied January 21st, 2009
toes
My toes have red spots and the one toe has a purple tip. This has started since the weather has been cold.
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replied April 7th, 2009
have you gotten any info since this post. my symptoms are VERY similar and i'm going through the blood work process which I have a funny feeling won't show anything and then will prob be referred to a specialist.... i'd love to see if you have figured out what is causing this?
please let me know
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replied May 25th, 2009
my sister has these same symptoms and like yours it has been going on for awhile.. the doctors say its just poor blood circulation but its a crock. If it was bad circulation then exercise and elevating them would help and there would be a throbbing pain associated with it. So if anyone has any answers please share them, I'm worried- I think it could definitely be a bigger problem than what the dr.s would like us to think it is. Thanks, a concerned sister
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replied July 4th, 2009
Red / Purple Feet / Telangiectasia
Hi, I think I can answer your question as I have what sounds like exactly the same thing and have just discovered (after nearly two years, and seeing a vascular surgeon, rheumatologist and dermatologist, and lots of blood tests!). It is called 'Telangiectasia' which basically means enlarged blood vessels. If your Dr has performed blood tests and found no underlying cause then it is likely that it is 'Essential Telangiectasia' If you search Essential Telangiectasia in Google you will find more information.

I have had this condition for the past two years and would be happy to talk to you about it, please feel free to write me. I hope this helps Smile
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Users who thank secretsquirrel75 for this post: Telengectasia 

replied September 15th, 2009
I have Telangiectasia too, for the past 7 years. Would love to touch base with others with this condition.
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replied January 31st, 2010
I have been suffering for over 3 years with these exact symptoms - it looks like broken capillaries - but my doctor disagrees - she says Reynauds - which I strongly disagree with - my feet are red/purple all the time - worse after exercising and having a hot bath/shower...I am soooo embarrassed by this....I was beginning to think I was all alone and a freak!! LOL If anyone has any more to share please let me know!! I don't know what to do - I guess demand tests - the only thing she has done is refer me to a dermatologist - and my appointment is not until next September - that's like 9 months away!! Unreal....i really miss being able to wear sandals - or no socks...
btw - i have noticed it seems to be spreading upwards - like by my knees a bit - but not as bad - anyone else??

Holly
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replied February 2nd, 2010
Hello Holly and everyone else too....I was diagnosed with Generalized Essential Telangiectasia about 4 years ago and have had it for about 8. I have all the symptoms described above. Mine has spread upwards, even now has reached my arms and hands. I started a facebook page entitled "Generalized Essential Telangiectasia" for those who have been diagnosed looking to meet others with this. There are links with more information about GET and photos as well. When you go to the Dr., ask them if this is what you could have. Visit the facebook page. You can always message me too, on facebook, if you would like to touch base about it. Thanks, Paolina
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replied March 10th, 2010
Hello all,
I have had the symptoms that you describe for over 3 years. Of the doctors that I visited, only the podiatrist offered any kind of diagnosis. He said that it was probably caused when I worked outside in very cold weather for a period of about 3 weeks. He called it "chillblains". My symptoms are identical to those described by "upforfun03". I will research it further now that I have a name for it. (GET) I am a male which if I do have this affliction puts me in the minority.

My wife keeps insisting that I need to try to find out more about this. I searched for the facebook page that "Telengectasia" mentions above but could not find it. Could you please give me a link or instructions on how to find it?

Thanks,Walter
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replied March 11th, 2010
Hi Walter. Make sure you are spelling it right on the facebook page "Essential Telangiectasia". I hope you find it. There are some photos of some of the members.
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replied January 10th, 2011
Hi there,
I have been searching for more information for quite a while. I am a 27 year old female and I was diagnosed with Essential Telangiectasia about 2 years ago. it has contiuned to worsen and has spread up my legs quite a bit, it looks like spider/thread veins. I suffer from bad circualtion in my feet, they are cold a lot of the time but the colour as you all have mentioned above is dark red and purple. it really gets me down as I am sporty, energetic and love to wear skirts and sandles, but this has completely stopped me from doing that. i was going to get some laser treatment recently which is quite expensive (about 400 euro a go) but i had a slight tan on my legs so they advised against getting it done. has anyone gotten any treatment? I had all the blood tests but it did not point at any condition. I am just worried that it might be an underlying health issue.....
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replied January 10th, 2011
HI there. I was diagnosed with GET about 8 years ago. Have you seen my facebook page entitled Essential Telangiectaia? I set this page up in 2009. Also, please feel free to write me with you if you would like to touch base and share stories. Thanks, Paolina
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replied May 23rd, 2011
Hi went to facebook page but couldnt find any picks etc and couldnt find where to message u on it i have had essential telangiectaia for about 6 years now and am really miserable with it got it on my legs, stomach, chest and arms so all over really have u found any way of covering it up?
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replied September 4th, 2013
Hello,
I am trying to get to your facebook page but not luck. I have the same and nobody did know what do I have, since I am type 1 diabetic I got really worried and its being a nightmare for me thinking that that was it for my feet, but the doctors couldn't diagnose what do I have. I really need to get to know more about this, please, any help? Thanks!
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replied May 23rd, 2011
Purple Feet
Hi Terri. Looks like you found the page. I will message you there.
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replied January 5th, 2012
Purple foot
The sole of my mums foot has turned purple. I am worried about this as it is has only happened to her left foot and she has varicose veins in this leg. It doesn't look like spider veins as it is pure purple. She won't go to see the doctor. Can anybody advise on what may be the cause?
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replied April 24th, 2012
Purple feet
In my case, my red and sometimes purple feet is bizarre. I get a hot burning sensation on one foot, and the next this moves to the other foot. Then the foot in question cools down and I feel much better, but starts to get hot again if I lie down on a bed. I have had emphysema now for some 6 years but the red foot stuff started some 3 years ago. My doctor is stumped as to the cause, but I think the heart isn't pumping enough oxygen to the feet. Anybody else got this burning sensation?
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replied May 24th, 2013
I believe I have Generalized Essential Telangiectasia as well.

Has anyone tried laser?
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replied June 18th, 2013
Re: Purple feet
upforfun03 wrote:
I have purple feet all the time. They don't turn color in response to temperature. There is not discomfort. The skin appears healthy other than it ranges in color from red (like sunburn) to purple (like a bruise). Applying pressure to the skin causes it to go back to flesh color but as soon as the pressure goes away, the redness/purple return. Elevating the feet does not seem to have an impact. Sometimes the feet are cold to the touch but probably not more so than the average woman's feet.

It started about three years ago and has progressed significantly in the last 6 months. I'm very healthy - ex-smoker of 7 years. I exercise daily - run several days a week. I take no medications other than a daily vitamin. I have no allergies.

I've been to a dermatologist, general practitioner, vascular specialist and rhuematologist - all whom have never seen anything like this and none of whom have a clue what it could be or how or if to treat it.

I'm hoping there is someone else out there who has experienced this or knows someone who has. Thanks.
|
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replied July 7th, 2013
I think that this group needs to be split. There is the original person who has purple feet. There are a bunch of people with varicose vein type GET issues, and finally the person whose mom has soles of feet that are purple. These are three different problems.

The purple feet can be caused by exposure to a carcinogen called vinyl chloride from PVC plastics. In 2007, Toyota, Honda, and Nissan volunteerly stopped using PVC because of the danger but PVC is all over the place. It becomes carcinogenic when the temperature goes above 140 degrees Celsius. In 2007, Califonia being pro business legalized the use of PVC for hugh city water piping. PVC can also be in particulate matter in e air we breathe. I live in Los Angeles and the air is so bad that I'm moving to Honolulu where the lead count in Te air is 1/60th of Los Angeles. The ozone layer is at 10/11 where 11 is hazardous. That allows for Uc-c not just UVa and UVB rays to get through and have effects on the particulate matter.

Check your particulate matter levels on google search. Buy the best air purifier you can afford both for your work and home. BlueAir is considered one of the best and is made from metal. Throw away unnecessary large plastic items like garbage cans and laundry bins. Purchase large plants for detoxing the inside of your homes and place them next to the central air unit if possible.

Allegra allergy 12hr will help relieve the circulation problem, but you must address the underlying toxic causes in the air and water or you're just hurting yourself. Spend the extra money in these health things instead of purchasing some unnecessary items. Also I have the dylos particulate matter sensor very helpful to clean up the air.

I also read taking large amounts of ginkgo biloba helps - 8 pills four times a day I read but I'm trying less first.

Last thing I read was about blood serum albumin protein levels being low as a cause. Collagen is available as a supplement which should help raise the albumin.

Also please check for foods that contain or release histamine and the big eight list of allergens. I used to not be allergic to anything but things change and allergens may be contributing toy our congestion in the blood.
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replied December 1st, 2013
I have read every ones problem and it sounds like Raynaud's Syndrom. those who has not checked by the Vascular Surgeon then please go to the Vascular Surgeon. Because if you wont get treatment in proper time then your feet has to be amputate.I don't want to scare you guys but this is how it's sounds like. if your problem has just started then it can be control by the Prostavasin Therapy and if it has been worse then Noninvasive Recanalization by Systemic Fibrinolytic Therapy, and if with this therapy the symptoms goes more worst then only amputation is the treatment.
So people , who have these symptoms like redness in your feet or purple colour of feet, with pain or it becomes dark in colour then soon consult a Vascular surgeon.
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