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Post-hysterectomy hip pain and nerve damage (Page 1)

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After my hysterectomy in December 2006, I experienced severe bi-lateral hip pain for months. The only relief was mega-doses of ibuprofen. The gynecologist who performed the surgery has denied any inappropriate positioning in the stirrups, but I can't imagine what could have caused both hips to hurt so badly if there wasn't some kind of trauma while I was anesthetized. Additionally, I awoke with severe, sharp stinging pains by my left knee, which eventually spread up to the thigh area over the following days.

In addition to the hip pain, the gynecologist severed my right ureter. The urine that was coming from my kidney was leaking into my body and out the incision in my vagina. The urologist who repaired my ureter sent to me a pain doctor for the leg pains I was experiencing. I was diagnosed with meralgia paresthetica and seen by yet another doctor(neurologist) who told me it would resolve itself over the next year and dismissed me.

Now, almost 2 1/2 years later, the nerve trauma has evolved into a more serious disorder called RSD (Reflex Sympathetic Dystrophy) or CRPS (Complex Regional Pain Syndrome).

Has anyone else experienced these complications? I'd love to compare notes and hear how you are doing.
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First Helper laj822
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replied June 3rd, 2009
Community Volunteer
I have had a numbness in my left hip since surgery...Feels like needles...Sometimes it gets real bad and other times it will settle down...Just some of the pains of life...

Caroline
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replied June 13th, 2009
Beware of total Hysterectomy
I'm experiencing debilitating back and hip pain from a total, unnecessary hysterectomy. One of the reasons we're feeling hip pain is because the gynecologist severed 4 sets of ligaments that anchor our hips and tailbone when they amputated our uterus. These ligaments are what gave us pelvic support. Now, my rectum and bladder is collapsing into my vagina and my vagina is falling out of my body (prolaspe) There is no easy fix. My uterus had anchored my vagina inside my body and when she cut off my vagina, there is no longer anything holding it up. Hysterectomy opens up another way for a woman to be mutilated again with repeat surgeries that cause nerve damage, infection and trauma to our organs. In my case, the gynecologist lied to me and told me I had "tumors" I didn't have. I had no gynelogical problems before getting hysterectomized and castrated. For all you women out there contemplating hysterectomy, please go the the HERS Foundation for advise before falling prey to someone amputating your God given Uterus, cervix and ovaries. If you don't heed this warning, you will suffer the consequences of life long health problems, pain and suffering and loss of sex life. The medical profession would never castrate a man without reason, yet they do it to about 750,000 women every year.
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replied June 13th, 2009
Community Volunteer
I have all the confidence in the world in this surgery...It is performed with the greatest skill available...I have no regrets...My fibroids had to come out or I would have bled to death...Since that time I have never looked back...Everything about my life has been better...I had and have the numbness in my hip from moving me around on the operating table...This I found out afterwards...I accept this even though I don't like it...I had a very competent OB-GYN...I researched everything about him and the surgery...Sure there are problems after the surgery, but many of these things are problems of aging to start....Now about the sex life...You have no idea of what you are saying...Sex is in the mind and it is you who makes it work...My sex life has been and still is better than ever....You see I disagree with everything you have written....

Caroline
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replied June 20th, 2009
My wife (55 years) underwent complete hysterectomy in April 2008 after the doctor diagnosed her bleeding due to fibroids. She had earlier undergone two Ceasarian deliveries. Now she has multiple complaints from High Blood Pressure, pain in the back below neck radiating to the arms, palpitation with hot flushes accompanied severe sweating. She also complains of crushing feeling in the middle chest region, fatigue and loss of balance while walking. Can anyone help
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replied June 20th, 2009
Community Volunteer
osc wrote:
My wife (55 years) underwent complete hysterectomy in April 2008 after the doctor diagnosed her bleeding due to fibroids. She had earlier undergone two Ceasarian deliveries. Now she has multiple complaints from High Blood Pressure, pain in the back below neck radiating to the arms, palpitation with hot flushes accompanied severe sweating. She also complains of crushing feeling in the middle chest region, fatigue and loss of balance while walking. Can anyone help


Having had this same surgery when I was 47 years old and for the same reason, hopefully I can help a bit...The high blood pressure would have nothing to do with the surgery...This you could attribute to her Ceasarian deliveries...I had a vaginal delivery and this is when mine started...This is the stress of the heart and a baby...KInd of one of the things that nature does to some women....Her pain in the back below the neck and radiating to the arms could be anything...Palpitation with hot flushes and severe sweating is Menopause...This is a result of the Hysterectomy...It is something that all women go through...As far as her crushing feeling in her chest region, I would see the doctor on this...I, too, am fatigued as age does this...Now for her loss of balance while walking, this I would see her doctor about...This could be caused by high blood pressure and getting light headed when she gets up....

I hope that this has helped you...I know very well the fun of aging...But it is the only show in town....

Good luck,

Caroline
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Users who thank JavaMissus for this post: osc 

replied June 20th, 2009
Thank you for the prompt reply. Is there any remedy to reduce her suffering and symptoms. Apart from her own suffering it has disturbed our whole family.
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replied June 20th, 2009
Community Volunteer
Hi Again: Have her see her OB-GYN for some possible hormone treatment...He should be able to give her information to help her get through this time in her life...Good luck.....

Caroline
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replied June 17th, 2010
I was mowing last wednesday and had trouble starting the mower after emptying, anyway towards the end of my mowing I had some extra numb areas in my groin area. I had a right hip replacement August 2006, can it go bad?
Since I am in aweful pain and have this tingle and
rash and sore areas at the front top of this same leg what the heck?
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replied September 16th, 2010
I can relate to many of your problems. I too had a total hysterectomy June 09, I have lost my quality of life. My hips hurt and are on fire; most of the time and I have no energy and a lot of stomach pain. If only I could turn back time, but can't do that, so press on. I'm seeing another OB/GYN out of state in a month, maybe I can get some answers. The OB/GYN that did my surgery told me "He Did His Part". Boy did he ever....It is nice to know I'm not alone though. Just sorry we have to suffer with so much pain.
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replied October 7th, 2010
I had a hysterectomy just over a year ago. It was the best thing I have ever done, medically. My periods were so heavy, I was anemic. I had lost a lot of iron. And don't get me started on the myriad of "accidents" due to heavy periods! My ob/gyn was awesome. She explained many options for me, and I was the one to choose. Initially, I had 1 fibroid removed. It grew back... BIGGER! And that day surgery gave me a numbness in my left knee, which eventually went away. After my partial hysterectomy (still got my ovaries!) I am period-free! which is awesome because before I really was bleeding for 3 people! I would say I am 97% back to how I was pre-op. My surgery area is still kind of sensitive. I don't dare poke at it! And I feel I'm really off balance now! Not sure if it's age (I'm 46) or the fact that I'm missing an internal organ! No biggie, since I'm not just tipping over while standing still. But just wondering if anyone else has that "off balance" feeling. (For those who are having a hard time, please go see a healthcare professional. If your own Dr. was not helpful, go to another. You have every right to be living a pain-free life with no complications. Good luck to you, djnewbie)
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replied July 30th, 2011
I had a hysterectomy 3 yrs ago...the biggest mistake i ever made.ive had 2 surgeries,9 nerve blocks and 14 rounds of shot in my groin area to try to help me.now my life is wprse than befor surgert cause the last dr operated on the wrong nerve.i dont see any relief in the future.it only seems to get worse.so now im looking for someone that specilaizes in the illengal and femoral nerves.
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replied July 30th, 2011
Extremely eHealthy
hi, I hope u get the help u want and I hope women thinking about such a procedure read what u wrote;
of course for some it is absolutely the way to go but I have seen terrible consequences when it did not seem to be needed.
good luck
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replied July 30th, 2011
Community Volunteer
Hi krenee50...Usually nerve damage will clear itself up over time...I know that I had a problem with my hip for a while, but for me it was a surgery well needed and my life has inproved because of it...I hope everything clears up for you...Take care...

Caroline
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replied October 16th, 2011
Problems from vaginal hysterectomy
I can relate to the women who have had catastrophic problems after the hyst. it has changed my life for the worse. I can't even begin with the problems of my painful physical life, CONSTANT, and my marital life, which has been almost ruined. I don't even have the energy to tell my story anymore, but I have been in constant pain, multiple surgeries etc. on and on and on, now for over 10 yrs. you may come out better, but anytime they touch you your chances of coming out worse are greater, believe me you are ALTERED, regardless, and I have one statement that doesn't even begin to express what I've been thru, but here it is "I have the VAGINA from HELL!!!! straight thru.....
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replied October 16th, 2011
Problems from vaginal hysterectomy
I can relate to the women who have had catastrophic problems after the hyst. it has changed my life for the worse. I can't even begin with the problems of my painful physical life, CONSTANT, and my marital life, which has been almost ruined. I don't even have the energy to tell my story anymore, but I have been in constant pain, multiple surgeries etc. on and on and on, now for over 10 yrs. you may come out better, but anytime they touch you your chances of coming out worse are greater, believe me you are ALTERED, regardless, and I have one statement that doesn't even begin to express what I've been thru, but here it is "I have the VAGINA from HELL!!!! straight thru.....
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replied December 3rd, 2011
I don't no when this was posted(no dates on here) but I had my womb removed in 2006 then 5 weeks ago (27/10/11) I had my ovaries removed and the pain is unbearable my hips legs and back are killing me I rang my GP and asked for more pain killers and yas told you can't still be in so much pain!!! After been opened 5 times in the same place (3 c.sections, womb romovel then ovary removed) and the surgeon was shocked after he new, but why I'm I still in so much pain??? So fed up
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replied December 4th, 2011
I could write for an hr. here but all it takes is for a doctor to cut on you, and especially THERE because there are so many nerves in this area, and they connect to just about everything. I think they are very rough with people who are under anesthia. Hopefully it will get better. I had severe tailbone pain after mine, those nerves and ligaments there can cause pain all the way down. There is no telling what could be causing this pain. I have been researching all this for 11yrs. I can tell you, these doctors will not continue to give you pain meds for very long, you may have to go to pain mgt.and even there they have become so restrictive because of the new guidelines for narcotics. I have been going for yrs. now, and still in pain, but take my pain meds daily, I hate to be on this stuff, but I make no apologizes for it, because this pain has taken so much of my life already, it may eventually kill me, but I am going to live for right now as with as little pain as I can, and it is debilitating, even with meds, and nobody understands, and that is very difficult, especially with the husband. Good luck. I would like to follow your results, so keep posting when you can.
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replied June 20th, 2012
You sound just like me! I had to have a total hyst after 4 open pelvic surgeries due to stage 4 endometriosis @ age 30 in 2008. After my hyster I have had severe constant pain in my right hip and my lower back. MRI and X rays show nada. Since my hyster I have been pretty much bed ridden and see a pain management Dr so I can get through life on heavy pain meds that I hate. Ex-friends and relatives think your a drug addict which is what you become on opiates but I do not abuse anything! Before any of this I wouldn't even take a Vicodin in the ER when I broke my foot. I so agree with you that it feels like no one understands. I cannot have children, lost my job of 5 yrs that I loved and my marriage. I'm at my wits end so you really made me feel like I am not alone unfortunatly for you. I pray that we will soon have our lives back but they will never be the same. I just don't get what causes this and all my Drs. are stumped! Try and hang in there, I have way more bad days than ok ones and I too feel like my life has been taken from me and I try not to be bitter and mad but I am. If anyone has any other ideas on how to get this pain to go away, I would greatly appreciate it. Thanks for reading.
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replied December 4th, 2011
I could write for an hr. here but all it takes is for a doctor to cut on you, and especially THERE because there are so many nerves in this area, and they connect to just about everything. I think they are very rough with people who are under anesthia. Hopefully it will get better. I had severe tailbone pain after mine, those nerves and ligaments there can cause pain all the way down. There is no telling what could be causing this pain. I have been researching all this for 11yrs. I can tell you, these doctors will not continue to give you pain meds for very long, you may have to go to pain mgt.and even there they have become so restrictive because of the new guidelines for narcotics. I have been going for yrs. now, and still in pain, but take my pain meds daily, I hate to be on this stuff, but I make no apologizes for it, because this pain has taken so much of my life already, it may eventually kill me, but I am going to live for right now as with as little pain as I can, and it is debilitating, even with meds, and nobody understands, and that is very difficult, especially with the husband. Good luck. I would like to follow your results, so keep posting when you can.
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replied February 3rd, 2012
My ex-wife went in for a hysterectomy. She was fine. She woke up from surgery in excruciating pain in her tailbone and hips. 5 months later and still in pain, test after test, doctor after docter, going to Nashville TN to a so called specialist, she finally found a doctor in Evansville,IN, that diagnosed her problem. When doing a bi-lateral sacrilliac joint(S.I.) injection, he found that the left S.I. joint and the piriformis muscle were torn, causing the pain. AGAIN, I TELL YOU, SHE HAD NONE OF THE PAIN PRIOR TO HER HYSTERECTOMY. 5 months later, some days, she has little pain. Other days, she can barely get out of bed. Other days she has to walk with a walker. She was 48 when she had the surgery. She can no longer work and has filed for disability because of it.
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replied January 14th, 2012
I had a laparoscopically assisted partial hysterectomy March 2011. With the exception of immediate and severe progressive bladder pain and blood immediately following surgery, i was back to work a week later and fully resumed my life after 6 weeks. The blood and protein increased in my urine and after 4 months my right kidney was killing me. I also started to develop severe abdominal discomfort, bloating, restricted bowels and urination, fever blisters on my face and a yeast infection from hell that developed a few days after my surgery and has persisted still. Things got so bad a new gyno/ob went in for exploratory surgery and found severe adhesions across my entire abdomen. Ater 2 plus hours of surgery, shoulder damage from prolonged hyper extension, the adhesions are back again, still have an uncontrollable yeast infection, turns out it wasnt bladder pain, it was adhesions and an error in suturing the top of my cuff( this caused severe hip and tail bone pain that traveled down my legs) due to all the drugs they have givene over the last 10 months and the now chronic inflammation, the are testing me for Wegeners granulomatosis.... My advive to any women... Prior to getting a hysterectomy, research all your options, the cons and the Dr.'s history of complications. If i had it to do again, i would have gone with ablation.
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replied January 14th, 2012
Complications from hysterectomy
I've had all this stuff, and like I said earlier don't have the strength to tell my entire story, and I know some women who are worse off than me, but I can tell you the constant pain takes it's toll. Seriously, it has been 12 yrs now and I am still in pain, 4 surgeries trying to fix this pain. Pain mgnt. has really gone down hill because the new restrictions. My hips, tailbone and especially my vagina. For the first 3 yrs. my vagina was horrible, just with the tissue pain and irritation. I kept going in saying it felt like infection in there, but the wet mount came back ok, finally after 9 mo. they did a culture, severe bacteria overgrowth, of Ebacter, next time Klepselia, I had to be treated 3 seperate times for these infections, and then I would have yesat from the antibiotics, and this pain was aside from the pain coming from the vaginal cuff inside I went back and forth with bacteria, yeast. And of course by this time my husband had lost his patience, so I just gave in and took it, which made things worse, I was in agony because my tissues were so inflammed. I tried everything you can name for a lubricant on a daily basis, even had my pharmacy to make a compound, but nothing worked, I was at the point of suicide. I was working as a dental assistant and on my feet all day. But, one day I was so desperate I decided to put something in there that would stay, so I put Olive oil in there rubbed around a little and that seemed to smooth it out a little, so I put that in there EVERY day as a constant after a few months it did get better. It was like a voice just came to me to do that. When your hormones are disrupted and all the trauma from a vaginal hysterecomy, and I believe contamination from the surgery. But, I was so DRY that a hormone pill placed in there would not even disolve. I had never in all my married life used a lubricant with sex, didn't even know to do that. It took me yrs to finally get a hormone JUST FOR ME. Believe me, everyone is different. I use a low dose of estrogen patch (am sensitive to estrogen, but need some)and use a fairly high dose of testosterone, and I wouldn't be without that, my hormone of choice. Some women need progesterone also. That is pretty good in that area, but I still have severe pain through my vagina and rectum. It took them 3 yrs. 2 exploritory surgeries and still didn't find that I had an enterocele, and I just happened to find a good Pelvic Floor specialist who found it right away and had surgery to fix this, and indeed did fix it, but I've still been left with horrible throbbing there, either from a trapped nerve or just nerve damage. I had a surgery a couple of yrs ago just to see if it was adhesions, he said none, but that I had IC, a chronic bladder inflammation, but I don't believe that is the main cause of my pain. I've given up on a resolution of this condition so I just take my limited pain meds and suffer on. Nobody but the people who have this understand. Now I have Arthritis on top of it all. But, at least I'm not working, and did get disability, last yr. at age 60, am 61 going on 62. I hate to think of getting old. The pain doctors hold you hostage, you can't demand they give you the right dose, they will just get p----d and then you are really up the creek, and it is so difficult to change pain docs. Oh, well so sorry to go, on and on, that is just a very small summary of my story. But, all listen, there is a very large nerve plexes right where they do these surgeries, and if you get a bad doctor, or one that is having a bad day, or over tired your chances of a bad outcome are good, not to mention, this ALTERS you. I just had a prolapsed uterus, which caused low back pain, I shouldn't have had this surgery. I think women who have some weight on them do better with the hormone situation because they store them in fat cells.To all you women that had a good outcome, I am gratful for you, and there are many who do, that's is why I had mine, I had heard women say 'that's the best thing I ever did.' So it can help some people, but not me, and it is the toss of the dice. Anyway, good luck to all!!
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