I have been sick for 9 months now. I have a constant low grade fever peaking at least once daily at 101 or 102. I went to the hospital originally in july 2009 when I couldnt maintain consciencness. They found I had low potassium, low neutrophils, high monocytes,high lymphocytes, increased insulin, increased proinsulin, increased cpeptide, and a slightly enlarged spleen. They ran a bunch of scans looking for an insulinoma and they couldnt find one. I feel extremely fatigued, nauseated, and have severe muscle and joint pain. I also get at least one infection per week. My eyes hurt all the time and I have become very sensitive to sun exposure. Since I have gotten sick, I have gotten 4 rashes. I also have extreme pain in my left top abdomen. I just went to an infectious disease doctor and they're checking me for lupus and to look for any other tumors. Can anyone help point me in the right direction for diagnosis or tests? I'm getting increasingly worse.
I can understand the phases you have been passing through of late; they are really hard times for anyone. Your investigations like high lymphocytes, a prolonged history of illness with weekly attacks and a clinical finding of an enlarged spleen do lead in favor of an immunological problem. Increased C peptide levels are seen in gastrinomas and also polycystic ovarian syndrome as well.
You should continue with your infectious disease specialist for now and you will probably be able to benefit from it. Do ask your doctor about the things I have mentioned.
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