I have had kidney issues my entire life. As a child I spilled alarming amounts of protein in my urine. As a child no other kidney problems at all. Fast forward to adult. Several times I have developed a kidney infection and an abscess but I'm unaware that I'm sick until I'm septic. I end up being hospitalized and iv's of fluids and antibiotics are my main course of treatment. My theory is that I'm the one in ten women who don't have any symptoms when they have bladder infections. Since I don't know when I have a bladder infection then left untreated it makes it's way up into the kidney where an infection festers. Then an abscess forms because of an undiagnosed kidney infection. (I read this on the Internet.) Okay those are my kidney issues.
Recently, I met some relatives on my paternal side for the first time. Guess what? My first cousin's kidneys failed and they don't know why. Also, I believe that others have some kidney issues too. It sounds like there is a possible genetic weakness here with the kidneys. How do I go about finding out what's wrong with me and therefore possibly diagnosing a genetic issue for others?
Sure, lots of things can be genetic. I would seek multiple opinions from several Urologists. You may get different answers from each. I would get everything tested to see if its something specific causing this issue. If you have anyone in your family that has be diagnosed with anything major, I would try to link it with possible kidney failure. Make a list of all family medical history and diagnosis and start connecting the dots. I believe there is a link to everything. I applaud you for trying to find the answers and helping your family out. Turn it into a medical detective project. In the mean time, do everything you can for kidney health. you can look that one up as well, find out whats good and whats bad. Find out everything you can about that first cousin of yours and I wish you all the best of health!