Can anyone please help me? Has anyone gone through any of these problems? I could use any help!
I've been reading and looking for information on the internet and I feel that maybe I could have a Non-Secreting Tumor ( near pituitary / hypothalamus gland) due to the symptoms I've been experiencing.
I've been to many physicians in the last 8 months and am now being treated by an Endocrinologist.
The Gynecologist told me today, during post-op (Laparoscopy) appointment that I was free of Endometriosis and no indications of PCOS. I was diagnosed with PCOS in the year 2002. This was when I stopped having a menstrual cycle (I was 22 years old).
I was placed on Birth Control (have been on since 2002) and two years ago a different endocrinologist placed me on Metformin. ( My Androgen levels were EXTREMELY HIGH).
Eventually, I stopped having menses even with being on birth control (to give you an idea, the first day of my last menses was 18 June 2008, which only lasted a day). I had three total menses for the year of 2008. This has been ongoing since 2002.
Symptoms that have gradually gotten worse in the last 8 months are:
Chronic Amenorrhea, Visual Disturbances (never had problems with me eyes and it comes and goes often), headaches, weight loss, diarrhea, hematuria / blood in urine (once a couple of months ago), painful burning urination (was 1 day per week every week - last occurrence was 2 weeks ago).
Recent labs showed
LH level: >0.1
FSH : >0.2
Medical Rule Outs have been made by:
Urologist: (Cystoscopy - No UTI or Kidney issues)
Digestive Disease (Endoscopy/Colonoscopy done in March showed only Gastritis)
Gynecologist: Normal Pap results; (Laparoscopy in April - no Endometriosis or indications of PCOS)
Optometrist: (Prescribed glasses/lenses) in January - 4 months of continul visual disturbance that now comes and goes - I do not need to wear glasses everyday - but it's so bad that I can't see near or far without serious squinting which doesn't help - but this comes and goes - no history of visual problems - for instance right now, I have no visual disturbance.
Endocrinologist: (Cortosyn Stimulation Test - performed a week ago) This Physician actually works with my Gynecologist. I go back for results / appt. with Endo. 27 May. The Gynecologist told me today that I have Pituitary Hypothalamus Axis Shut Down and that my Endo will be ordering an MRI of these glands with more testing.