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Conditions and Diseases > Gland Disorders Forum > Pituitary Hypothalamus Axis Shut Down
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Q: Pituitary Hypothalamus Axis Shut Down
asked by: Skyebleubutterfly on May 19th, 2009
New User
Can anyone please help me? Has anyone gone through any of these problems? I could use any help!

I've been reading and looking for information on the internet and I feel that maybe I could have a Non-Secreting Tumor ( near pituitary / hypothalamus gland) due to the symptoms I've been experiencing.

I've been to many physicians in the last 8 months and am now being treated by an Endocrinologist.

The Gynecologist told me today, during post-op (Laparoscopy) appointment that I was free of Endometriosis and no indications of PCOS. I was diagnosed with PCOS in the year 2002. This was when I stopped having a menstrual cycle (I was 22 years old).
I was placed on Birth Control (have been on since 2002) and two years ago a different endocrinologist placed me on Metformin. ( My Androgen levels were EXTREMELY HIGH).

Eventually, I stopped having menses even with being on birth control (to give you an idea, the first day of my last menses was 18 June 2008, which only lasted a day). I had three total menses for the year of 2008. This has been ongoing since 2002.

Symptoms that have gradually gotten worse in the last 8 months are:

Chronic Amenorrhea, Visual Disturbances (never had problems with me eyes and it comes and goes often), headaches, weight loss, diarrhea, hematuria / blood in urine (once a couple of months ago), painful burning urination (was 1 day per week every week - last occurrence was 2 weeks ago).

Recent labs showed
LH level: >0.1
FSH : >0.2

Medical Rule Outs have been made by:
Urologist: (Cystoscopy - No UTI or Kidney issues)

Digestive Disease (Endoscopy/Colonoscopy done in March showed only Gastritis)

Gynecologist: Normal Pap results; (Laparoscopy in April - no Endometriosis or indications of PCOS)

Optometrist: (Prescribed glasses/lenses) in January - 4 months of continul visual disturbance that now comes and goes - I do not need to wear glasses everyday - but it's so bad that I can't see near or far without serious squinting which doesn't help - but this comes and goes - no history of visual problems - for instance right now, I have no visual disturbance.

Endocrinologist: (Cortosyn Stimulation Test - performed a week ago) This Physician actually works with my Gynecologist. I go back for results / appt. with Endo. 27 May. The Gynecologist told me today that I have Pituitary Hypothalamus Axis Shut Down and that my Endo will be ordering an MRI of these glands with more testing.
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HelloNurse
replied yesterday 02:12
New User
Perhaps Celiac Disease?
Hi there,

Sounds like you have an awful lot of symptoms going on! They are so widespread that it sounds like it has to be from a larger cause. I am thinking it could be a nutritional or dietary issue. I'm not a doctor, but recently, my family and I have all experienced Celiac disease. It was triggered by a stressful event we all went through years ago and that's when the symptoms started. It took 10 years before we were diagnosed and stopped including ALL wheat in our diets. Some symptoms get better immediately, others take time and the body repairs itself.
Celiac is a wheat intolerance that is genetic and can be triggered by stress. The villi which absorb the nutrients in your small intestine are mistakenly attacked by the body's immune system when wheat is consumed. It's not an allergy, it's an autoimmune disease. The only solution is to not eat wheat. Diarrhea, the inability to gain weight, and no menstrual cycles are all symptoms that occur from being badly malnourished, which is essentially what happens when a person with Celiac is eating wheat. As long as wheat is being consumed, the individual will never be fully nourished, and as a result your body has all these weird symptoms that do not make any sense. I had super high cholesterol for example (despite the fact that I am fit) and bowel movements a few times a month. Since I have been off wheat, I have much more energy.
Just a thought..wouldn't hurt to look into it. Hope you find answers and good luck!
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