I am so frustrated with my doctors. I have been to so many doctors and I am no closer to a diagosis. I've had 2 pheumatoid profiles that have both been positive. My white blood count is very high and I feel like i've got the flu all the time. I have a reoccurring rash on my face, neck, and groin area. They did a biopsy and I am waiting for the results. Why can't they tell me if I have lupus or not? The rheumatologist has mentioned sjogrens disease and behcets syndrome but he can't give me a definite diagnosis of lupus or the other two mentioned diseases. I have constant fever, headaches and not to mention I have had unexplainable and uncontrollable seizures for 3 years now. As you can tell, I am so frustrated and confused. I did have one drug that helped my seizures but it lowered my platelet count so much that I had to be hospitalized for petechiae rash. I was a middle school teacher and had to retire due to my seizures and now I am confined to my home. I just want to feel better. Does anyone have any advise for me? I have not been started on any treatment yet except just topomax for my seizures and pain medication for my aches and pains of migraines and joint pains and of course, I am on antidepressants and anxiety meds and meds for mitral valve prolapse. Any encouraging words out there? My eyesight is terrible. I need to go to an eye doctor because my vision is so blurry. My eyes hurt 24/7 and are so dry. The first doctor that found I had a positive blood test for lupus was my orthopedic doctor. I was going to him due to a torn rotator cuff in my shoulder and ruptured discs in my neck. I had a series of cervical epidural injections to my neck which helped somewhat, but I have been really sick for about a month with something like the flu which started with a rash which the doctor said was the shingles and then went into the flu. I thought I was dying. I am better now but still have low grade fever and aches and pains. Please help.
i hope you are doing better. i has some kind of same complication, i asked my doctor to put me on series of antibiotic shots. the grade of fever has came done. you may want ask your doctor to to the same. good luck.