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pelvic adhesions after hysterectomy (Page 1)

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I had a hysterectomy about 5 years ago. About 2 months afterwards, I had lots of pain and went back to the doctor. He said it was odd and after a few more appts he advised me that I had bowel problems and that's where the pain was coming from. I know bowel pains when I have them. After some consultations with other doctors I was advised that I had pelvic adhesions which caused nerve entrapment.
The pain that I have is sometimes so severe, that I have trouble walking. Is there anyone out there that has experienced anything similar? I have even had cortisone shots both outside and inside. Ouch!
I don't want to have to keep going through that.
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First Helper crafty1
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replied March 14th, 2008
Pelvic adhesions after hysterectomy
Hi Qween-B again. Does anyone have an answer or gone through the same experience as I have?
Thanks again.
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replied February 6th, 2012
adhesions
I had a anterior and posterior repair cervix removed left tube and ovary removed because it fell and was attached to my outside vaginal wall. had to have vagina rebuilt adhesion removed from previous uterine hysterectomy etc. now 6 months later i have to go back to the operating room because my doctor says i have internal adhesions and a vaginal band that is not relaxing and has to be cut. the adhesions are intertwined into nerves and I am very scared because if he cuts nerves instead adhesions where will i be? sex with husband is horrible pain. I'm right there with u queen b
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replied March 1st, 2012
I had a partial hysterectomy in 1997 and in 2002. And with in a years time I always had lower pack pain across the pelvic area. I was always told it was strained muscle, IBS, diverticulosis of the bowel, which I do have. But the pas few years it has gotten worse. And I work for a blood donor center where we move a lot, even on the road a lot. And the pain has become crippling. It is to the point where they want to fire me from my job! I finally went to our local ER yesterday and they took a CT scan and told me I had lesions from my Endometriosis disease. So I have been putting up with this all those years. And never knowing. And yes it does hurt in the hip area as well as the pelvic area. So Queen B and nervousjellybelly and I know what you are going thur as well. I am hoping after my Dr's appt I can get sceduled to finally have them removed and I know the techniques they have today are far better than years ago.
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replied March 19th, 2012
Odd question
I had a hysterectomy in 07... I asked that they remove the right ovary because it always gave problems and pain with ovulation. Well, the right side has continued to offer some sensitivity and some twinges of pain over the past 5 years. I just returned from a cruise 3 weeks ago and have had severe diarrhea every day, and the pain in right side has gotten more intense. Upon having a pelvic exam, doctor tells me they cannot find left ovary...and instead it has detached itself and is moving over to the right side!!!!!!! Has anyone ever heard of this. I am wondering if they took out the wrong ovary?
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replied July 12th, 2012
I had a supra cervical hysterectomy in April of this year. Started having pain about 2-3 weeks ago that was so bad at times I couldn't walk. My MD wanted an ultrasound. She was worried that I now had cysts on my remaining right ovary. Luckily my ovary was perfect but the entire ultrasound hurt insanely bad. She referred me to a pelvic floor physical therapist and I have scar tissue on my right side. Going to work with PT and hopefully find relief. So far I have high hopes that this will work.
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replied February 6th, 2012
adhesions
I had a anterior and posterior repair cervix removed left tube and ovary removed because it fell and was attached to my outside vaginal wall. had to have vagina rebuilt adhesion removed from previous uterine hysterectomy etc. now 6 months later i have to go back to the operating room because my doctor says i have internal adhesions and a vaginal band that is not relaxing and has to be cut. the adhesions are intertwined into nerves and I am very scared because if he cuts nerves instead adhesions where will i be? sex with husband is horrible pain. I'm right there with u queen b
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replied July 3rd, 2012
I am so relieved to hear you are having problems. Had a total hysterectomy in June of 2011. Everything when well, then suddenly in October of 2011 I developed horrible hip and leg pain. Was told I had bursitis got a shot, and was a little better.
Starting in January of this year I have had hip and leg pain that is so severe that at times I thought I was going to either pass out or have a heart attack.
By this point I had developed severe scoliosis leaning to the right.
Just went in yesterday to a PT who did myofascial release who told me he thought I had quite a bit of nerve entrapment in my illiopsoas and this was causing all the pain.
It was really clear when he pressed on this area that my pain was duplicated. I have been so depressed and miserable the last couple of months that I felt relieved
hearing this.
What can be done to remedy this situation. Can it be made better. Thanks Qween-B for not making me feel alone.
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replied July 12th, 2012
Physical therapy can help break down the scar tissue. Just had my first appointment yesterday. Hope you find relief.
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replied September 16th, 2012
Hi Qween B, I read ur post about pelvic pain and I swear I culd have written it. I had a total hysterectomy 7 yrs ago and have had sever pelvic pain ever since. My pain is constant, I can't put full weight on my right side, and having sex is too painful to enjoy. It feels like a golf ball or something is right under the incision. I have to get lidocain shots which only last a day or two at most. For the last 5 or 6yrs I have to wear a lidoderm pad over pain site to be able to get around for the day, if I don't wear a numbing pad the site feels swollen inside and more painful as day goes on. The docs said they think I have nerves caught in adhesions or scar tissue, three times they cut me open at site of pain to remove scar tissue and such in hopes of releasing nerves. Needless to say, it didn't help it just gave me more scar tissue. I'm at a loss on what to do and gettn depressed cause of the chronic pain. Your not alone....
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Users who thank doral for this post: juliebirkinshaw 

replied November 28th, 2012
In some ways it helps to read these... I thought there was something wrong with me. I have struggled with pain for years and I'm only 32 years old... it sux!!!! The first fight of over 2 years was after I had an ovarian cyst removed... my left ovary became adhered to my colon which led to a hysterectomy minus my right ovary and tube. Then a couple years ago pain started AGAIN. I have gone through it sooo much that I seriously was starting to think it was all in my head. July 2012 I had yet a 3rd surgery at which point they found out my right ovary had twisted. It was removed I was ok up until a couple months ago when the pain started to come back AGAIN and I have NOTHING left of my reproduction system. Could it be adhesions? Am I going to seriously have to live with this the rest of my life? I'm dead frustrated and just want it over.
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replied November 28th, 2012
oh yeah and sex kills!
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replied November 29th, 2012
Yes I have the same problems as you. I had a partial hysterectomy and I am experiencing severe lower pelvic pain since the surgery and that was five years ago. He said that he had to leave my left ovary in because of adhesions. He said if he had taken it out I would have a colostomy bag and he knew that I didn't want that. It just seems that the pain is getting worse every year.
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replied March 24th, 2008
Extremely eHealthy
I can also relate. I have numerous adhesions from my appendectomy. Sometimes, the pain is bad enough that I almost think I still have an appendex. Surgery is the only way to get rid of adhesions. Unforutunatly. I opted out of that myslef.
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replied April 11th, 2008
Active User, very eHealthy
I had pelvic adhesions from former c-sections, and kidney surgery. That is part of the reason I had my hysterectomy. Surgery is the only way to remove them. They will also adhere to your bowels and other organs. It can cause a lot of pain. Hope you feel better.
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replied July 3rd, 2008
Oh MY the pain , please help!
really since I was a kid I have had UTI's , as I grew up I did not have as many.. after I had a c-section I had a UTI (in the hospital). that was 24 years ago.. since then I have had many UTI's (as in AT LEAST 2 per year! AT THE MOST 6 TO 7 PER YEAR) Today I sit here in "Major" pain, I seriously right now am shaking, and to be blunt when NOT on the toilet I have to hold "myself" because it hurts ever so bad. It's hard to pee, even though I feel the urge to all the time, even after I go to the bathroom. Last night I was extremely sick to my stomach, my back hurts, legs ache my tummy is swollen, and OUCH I feel like I have to pee ALL THE TIME as I said,(VAGINA IS VERY DRY) and as stated when not in b/r it kills me. I had to sleep in other room last night because when the bed moves it hurts me more (my husband flip flops in bed) About a year ago I remember well a pain in my back that felt like razors, or shattered glass bits (t's happened before that and after as well, mostly when walking alot).. seems odd, yea? I am 45.. and cannot leave this bed from the pain, please help. I do not go to ER because I do NOT have any insurance, and without it they see me, but do not take me seriously... they will give me pills and send me on my way until the next time this happens.

Just a note.. I have epilepsy , and have had it since 8.. and been on meds since I was 15 (30 yrs.), if I drink it truly is maybe 1 drink a year. if that much.

I did become very dizzy the other day.. and sort of am dizzy, not totally with it now.. (head swimming from pain) this pain has to go away.. I cannot deal w/ it. Please help, PLEASE I cannot live with this pain!
surgerys- exploratory , removal of ovarian cysts & appendix, c-section, hystorcetomy first time they left 1 ovary.. years later they had to remove that ovary as well
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replied March 1st, 2012
You may want to look up Interstacial cystitis. It causes extreme pain and what feels like bladder infections but really it's nureological. Only way to control it is with dietary changes such as no acidic foods and stay out of areas withies of vibration...planes and bumpy roads in cars.
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replied September 26th, 2008
Adhesions
I also had a hysterectomy and had severe lower abdominal pains. I went through so many tests and they finally opened me up. The doctor spent 4 hours cutting away adhesions that were wrapped around my bowels and other organs. The adhesions are like vines that wrap and pull on the organs and that's where the severe pain was coming from. They will grow back, but hopefully a little slower this time. I don't want to have to go through that type of surgery again. It took me a long time to recover.
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Users who thank cyndicay53 for this post: JanieYvonne 

replied September 15th, 2011
PELVIC SCAR TISSUE AFTER A HYSTERECTOMY IN 2007
WHO DID YOUR SURGERY FOR REMOVING SCAR TISSUE? I WAS TOLD A OB HAS TO DO IT, AND THEY TELL ME NO A SURGEN HAS TO DO IT! IM JUST PASSED BACK AND FORTH! I HAD A HYSTERECTOMY IN 2007 AND I HAVE GOD AWFUL PAIN EVERY DAY AND NIGHT, 24 HOURS A DAY! THE PAIN IS IN MY LOWER BACK AND COMES AROUND TO THE FRONT OF MY LEGS. I HAVE BEEN TO THREE PAIN DOCTORS, THREE OBS, A SURGEN, AND MY FAMILY DOCTOR. I KNOW ITS PELVIC SCAR TISSUE CAUSING THIS PAIN. I ALSO HAVE SMALL BOWEL PAIN. IT FEELS LIKE BLOCKAGE. I KNOW ALL THIS PAIN IS FROM THE SCAR TISSUE. I CAN NOT FIND A DOCTOR TO GO BACK IN TO REMOVE THE SCAR TISSUE. I AM ON PAIN MEDS 24 HOURS A DAY, ITS GOTTEN SO BAD. I HATE MY LIFE NOW! PLEASE HELP.
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replied December 18th, 2011
I know your pain!!!I had a hysterectomy in November of 2010,I had adhesion removal surgery in June of 2011.My pain is still here.I live with it 24/7.I hate my life now.I cant go to a dr now because my insurance ran out and I cant financially afford it right now.I'm 41 and I feel like my life is over.I have constant aching in my upper vagina and inside my rectum.Every time I sit down I feel it.When I had my adhesions removed they were bad,my vagina wall and bowel wall was connected my liver had adhesions I had a cervical growth where my uterus was cut from it,also I still had endometriosis in spots.I dont know what to do now.Its starting to get really bad again.Intercourse with my husband is painful,it has been since January of 2011.Im afraid my dr might have damaged something,dont know need to go to a new dr.I hope you find a dr soon.
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replied December 18th, 2011
I know your pain!!!I had a hysterectomy in November of 2010,I had adhesion removal surgery in June of 2011.My pain is still here.I live with it 24/7.I hate my life now.I cant go to a dr now because my insurance ran out and I cant financially afford it right now.I'm 41 and I feel like my life is over.I have constant aching in my upper vagina and inside my rectum.Every time I sit down I feel it.When I had my adhesions removed they were bad,my vagina wall and bowel wall was connected my liver had adhesions I had a cervical growth where my uterus was cut from it,also I still had endometriosis in spots.I dont know what to do now.Its starting to get really bad again.Intercourse with my husband is painful,it has been since January of 2011.Im afraid my dr might have damaged something,dont know need to go to a new dr.I hope you find a dr soon.
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replied February 18th, 2012
Adhesions after hysterecomy
I had a hysterecomy in 2000. I have an ovary to help me not go into menupause. Didnt work:-) anyways last june 2011 i started having horrible pain....saw a different ob/gyn(mine was on vacation) who sent me to another dr..who sent me to gastrointestinal dr who sent me back to my ob/gyn. Thank god! She knows my history...diagnosed it as adhesions. Had lapo surgery...my bowel was attached to my bladdee with adhesions hence the swelling. All of that was removed and i cleansed the bowel. It feels much better but i am still healing. Only surgery will help. See. Your dr and ask about adhesions as well as request the surgical cover on organs to hinder growth of new adhesions. I was back yo work 7 days later...a little tender but no pain meds needed:-) good luck
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replied September 22nd, 2013
how did you find out you had adhesion? - i have had an MRI but they dont seem to report on soft tissue? and my neuro surgeon just wants to do cortizone and i know that wont work...thanks
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replied September 15th, 2011
PELVIC SCAR TISSUE AFTER A HYSTERECTOMY IN 2007
WHO DID YOUR SURGERY FOR REMOVING SCAR TISSUE? I WAS TOLD A OB HAS TO DO IT, AND THEY TELL ME NO A SURGEN HAS TO DO IT! IM JUST PASSED BACK AND FORTH! I HAD A HYSTERECTOMY IN 2007 AND I HAVE GOD AWFUL PAIN EVERY DAY AND NIGHT, 24 HOURS A DAY! THE PAIN IS IN MY LOWER BACK AND COMES AROUND TO THE FRONT OF MY LEGS. I HAVE BEEN TO THREE PAIN DOCTORS, THREE OBS, A SURGEN, AND MY FAMILY DOCTOR. I KNOW ITS PELVIC SCAR TISSUE CAUSING THIS PAIN. I ALSO HAVE SMALL BOWEL PAIN. IT FEELS LIKE BLOCKAGE. I KNOW ALL THIS PAIN IS FROM THE SCAR TISSUE. I CAN NOT FIND A DOCTOR TO GO BACK IN TO REMOVE THE SCAR TISSUE. I AM ON PAIN MEDS 24 HOURS A DAY, ITS GOTTEN SO BAD. I HATE MY LIFE NOW! PLEASE HELP.
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replied September 15th, 2011
PELVIC SCAR TISSUE AFTER A HYSTERECTOMY IN 2007
WHO DID YOUR SURGERY FOR REMOVING SCAR TISSUE? I WAS TOLD A OB HAS TO DO IT, AND THEY TELL ME NO A SURGEN HAS TO DO IT! IM JUST PASSED BACK AND FORTH! I HAD A HYSTERECTOMY IN 2007 AND I HAVE GOD AWFUL PAIN EVERY DAY AND NIGHT, 24 HOURS A DAY! THE PAIN IS IN MY LOWER BACK AND COMES AROUND TO THE FRONT OF MY LEGS. I HAVE BEEN TO THREE PAIN DOCTORS, THREE OBS, A SURGEN, AND MY FAMILY DOCTOR. I KNOW ITS PELVIC SCAR TISSUE CAUSING THIS PAIN. I ALSO HAVE SMALL BOWEL PAIN. IT FEELS LIKE BLOCKAGE. I KNOW ALL THIS PAIN IS FROM THE SCAR TISSUE. I CAN NOT FIND A DOCTOR TO GO BACK IN TO REMOVE THE SCAR TISSUE. I AM ON PAIN MEDS 24 HOURS A DAY, ITS GOTTEN SO BAD. I HATE MY LIFE NOW! PLEASE HELP.
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replied October 28th, 2011
not this again! no more pelvic pain Please!
I had the exact same thing after my hysterectomy. They went in and got rid of the adhesions and put something down all around my insides to stop this type of growth. Does anyone know what I'm talking about? Well, its been two years and I'm starting to experience pain again. It's only in one spot.anyone know what this could be? I have had bladder surgery once, and no gallbladder or appendix.
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replied May 14th, 2012
Hello,

Can you tell me w64hat type of doctor you went to?
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replied December 22nd, 2008
post hysterectomy, three weeks
i just had an abdominal hysterectomy three weeks to the day today. if anyone is reading this, i will tell you that i was not prepared for such a intense recovery because i had two c-sections and they were nothing compared to this. i am a 47-year old female, totally healthy and in good shape. if you do the slightest bit of work, you will RELAPSE to the same pain as you had in the first week, so be careful!! i also had adhesions, which were really my problem but that pain was masked by the pill for years. i thought it was my uterus with fibroid that was the problem, but they were actually SMALL. i had "extensive adhesions" more than anything else. also my bladder was pulled forward for 17years when i last gave birth to my son, from the dr. nicking my bladder and had a stent in it. it was "tucked back in" and now i feel like i am young again due to the ability to maintain alot more liquid in my bladder. and as a result i am now drinking water which i never did, thus i am not as hungry, thus i've lost 10 pounds.
IF YOU HAD ADHESIONS PLUS HYSTERECTOMY, YOU ARE NOT GOING TO RECOVER AS SOON. DON'T GET UPSET OR CONCERNED. when they remove the adhesions you get "scraped" and then you have additional organs swollen. TAKE MIRALAX EVERYDAY IN WATER AND THAT WILL SOFTEN YOUR BOWELS SO IT WON'T BE SO PAINFUL WHEN YOU have to go to the bathroom. this will also keep your system empty , thus you will feel better. MIRALAX has no taste and no texture. it disappers in water and is truely a MIRACLE!! i hope this helped someone out there. if you even think for a second you will be returning to work in less than 6 weeks, THINK AGAIN...you will have a setback and it will be harder to recoup. i went out one time to dinner and had a whole day's setback. even when sitting too long you are stretching your stomach muscles. you need to LAY DOWN to heal. anyway, enough for now. good luck.
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replied March 12th, 2012
Thank you for your post! I am almost 3 weeks post op total hysterectomy (found out after surgery I had adenomyosis as well). I am an active person and know if you are out and about for a day you are out of it for the next day or so. Even if you feel good - need to recoup. Thank God I have two leather recliners one downstairs and we brought one upstairs to the bedroom and they are such a big help. I have been taking stool softeners and they help a great deal. I feel a difference already after having this surgery and I am glad my ovaries were removed too after reading some of these posts.
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replied December 22nd, 2008
one more thing
i had my surgery done by an oncologist/gynecologist. i advise ANYONE who thinks they may have adhesions BEFORE they have their hysterectomny due to previous c-sections to go to this kind of dr. they are experts and if they nick a bladder they can repair it, if they nick your bowel, they can repair it. THERE IS A GEL that they used to prevent future adhesions..so i will prob. be OK for atleast ten years. these dr's are the best ones to have the surgery with. they truely know their stuff. you do not have to have cancer to go to them, they will do your hysterectomy anyway. if you go to a reg. ob/gyne and something happens like it happened to me during my second c-section, he nicked my bladder, then you will have to lay on the table for an hour or more waiting for an oncologist. and whatever you do DO NOT NOT NOT DO A TUMMYTUCK WITH YOUR HYSTERECTOMY. IT'S TOO PAINFUL AND YOU WILL SUFFER LIKE A DOG!!!!!!!!!!!!!! THANK G-D I DIDN'T DO IT. PLEASE TRUST ME ON THIS. and one more thing...an oncologist/gynecologist will do a procedure called a "flap" which tightens your tummy. i saved $8000!! my previous indentation ugly scar was fixed. good luck. i want to help anyone i can as this is a horribly painful experience. if i knew what to expect more i would have been better prepared.
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replied November 5th, 2011
I know that I am reading this 3 years after you wrote it, but I just wondered if you could tell me who your doctor was. I am faced with the same thing and am trying to decide who to go to.
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replied June 20th, 2009
Adhesions
I was diagnosed with endometriosis 18 years ago, my sophomore year in college. I had a laparoscopy and almost hemorrhaged which landed me back in the hospital 2 weeks later after the surgery for about 6 days. Since then I have had 3 more laparoscopies where adhesions were found and scraped; 2 D&C's (miscarriages); hysterectomy to remove my uterus for adenomyosis and massive adhesions connecting all of my organs to one another in 2000 (age 27); surgery to remove my ovaries and tubes, and scrape adhesions from my colon in 2006 ; another laparoscopy to remove more endo and huge cysts, and adhesions; finally, dilations of my urethra due to scarring. Since 2006, I have had major pain and problems with my bowels. Everytime I have to have a b/m, I have to have a pillow on my stomach because it is so painful. Last week I ended up in the ER because of partial small bowel obstruction and remained in the hospital for 5 days because of vomiting, diarrhea, dehydration, fever, high white blood cell count, and multiple dilated small bowel loops/points of obstruction due to adhesions. I can not find a surgeon in Jonesboro, AR that feels confident enough to operate so they are telling me that I will have to endure this severe level of pain for the rest of my life. I desperately need to find a team of doctors that are willing to help me and find a solution so that I don't have to live in constant everyday pain...I relate to all of your stories.
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replied April 16th, 2012
ADHESIONS & PELVIC PAIN
I've had over 20 surgeries and more hospitalization... All of my surgeries were results of my CHRONIC PELVIC PAIN & ADHESIONS... Below are a list of some of my surgeries & hospitalizations from 1993 to present!!!

AUG.1993 - C-SECTION

AUG.1993 - BLEEDING on the BRAIN

NOV.1995 - ECTOPIC PREGNANCY & GALLBLADDER REMOVED

1996 - PID

MAR.1997 - PID/INFECTION

AUG.1998 - misdiagnosed ECTOPIC SURGERY

AUG.1998 - MISCARRIAGE/D&C

SEPT.1999 - LAPAROSCOPY SURGERY/CPP (Adhesions)

JUNE.2000 - LAPAROSCOPY SURGERY (Adhesions)

JULY.2000 - CPP/INFECTION

AUG.2000 - LAPAROTOMY (Adhesions)

OCT.2000 - LAPAROSCOPY (Adhesions)

OCT.2000 - HEP-B/SPOT ON LIVER

DEC.2000 - LAPAROSCOPY (Adhesions)

JAN.2001 - LAPAROSCOPY (Adhesions)

FEB.2001 - LAPAROSCOPY (Adhesions)

FEB.2001 - ABDOMINAL SURGERY x2 (Adhesions)

MAR.2001 - CPP/BLOOD TRANSFUSION

MAR.2001 - HYSTEROSCOPY SURGERY

MAY.2001 - SALPINGO-OOPHORECTOMY SURGERY

SEPT.2001 - CPP

OCT.2001 - HYSTERECTOMY

SEPT.2002 - CPP/SWOLLEN THYROID GLANDS

AUG.2003 - CPP/SEVERE BLADDER INFECTIONS

JUNE.2004 - PELVIC PAIN/BLEEDING/INFECTION

JULY.2004 - CPP/BLEEDING

JULY.2004 - LAPAROTOMY SURGERY/LIVER BIOPSY /UTERINE BLEEDING (Adhesions)

***Have been hospitalized several more times from 2005-JAN.2012 due to my "PELVIC PAIN"... I've been in "PAIN MANAGEMENT" since 2001 and that's the only way I've been able to live a productive life... I also get frequent "UTI's" and have been diagnosed with "IC", so I still have my moments when they have to put me in the hospital to control the infection & pain!!! #IFEELYOURPAIN
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replied October 14th, 2009
Cysts after hysterectomy
At about 35 I had a total hysterectomy. I am 51 now and just had a MRI ultrasound done and the DR. found some cysts on my left side where my ovary use yo be.Why do they come back after all these years?
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replied November 17th, 2009
I am so happy I have found this site.
The pain started exactly as you describe it 2 months post op. It has gotten steadily worse since then and now radiates down the back of my leg. I am guessing that is part of the nerve entrapment? It is affecting how I walk also. My doctor sent me to a chiropractor who wants an MRI after nothing showed up on my lower back xrays.
Thank you to those who have posted the information about adhesions.
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replied December 13th, 2009
ADHESIONS!!!!!!!!
Hi! I am 39 years old. I was a very active person before. I played sports, worked out and was always doing something to get a good workout. Now I can barely walk and in TREMENDOUS PAIN! I went in to have a simple in the office procedure done on my uterus to ease my menstral cycles. What was suppose to take 15 mins ended up taking 2 1/2 hrs. I went for 3 weeks in total pain and draining my uterus every week. Finally, I had a partial hysterectomy. Two days later was rushed to the emergency room in SEVERE PAIN! My doctor that had done the previous operations had hit my small intestine. Had emergency surgery. Made it through when the other doctors said it was a 50/50. Yes, my husband fired the original doctor. Had another surgery to remove adhesions 1 month later because everything became sticky due to having to be washed out. Colon was stuck to abdomen wall and adhesions. Had another surgery to remove ovaries because they were wrapped in adhesions. I am in constant pain. My lower back hurts and stomach hurts. Constant throwing up,watery diarrhea, stomach swells and feel like their is nobody out there that understands. I am seeing a doctor now and he gives me pain meds to help. Don't want another surgery because it only makes more adhesions. I have a group of wonderful doctors now that saved my life but So many doctors do not understand that you are not crazy that you really are in severe pain. I am so glad I found this website.
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replied October 25th, 2011
I am sorry for the events you have had to endure. I sure understand that feeling that no doctor "gets it" and it appears to them and everyone else in your life that you are crazy - 'cause it just does not seem possible that you have that much pain,and all the (expensive!) tests show you are "fine". The only help I have had is with Physical Therapists. They are the ones that gave me a diagnosis of scar tissue and their help is great. However, I really want to find a true answer to be rid of this cycle of pain, swelling and limits to what I can do. One MD after having sent me for several tests, all showing I am healthy, Thank God, he then just interrupted me and said "are you depressed?" and proceeded to write me a script for Zoloff ! The nerve! Needless to say I did not take it, and I don't think much of him being a so-called doctor. Doctors are supposed to care and try to determine how to help, not write you off with a drug. I wish you, and all of us having these issues, well, and pray we find answers.
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replied October 30th, 2011
Pelvic pain
Hi I'm just in bed right now thinking that I am going crazy as well
The doctors are not helping me. I'm glad that I found this site
B/c I am having the same pain as all of you. So thankful for this site I'm not going crazy after all
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replied December 25th, 2011
burning sensations and extremely painful all the time
I am 26 years old I have had 6 abdominal surgeries: tubal pregnancy, cyst drained, appendix and right tube and ovary removed, 2 c-sections, and partial hysterectomy, explore surgery. All since I was 22 after th partial hysterectomy I have extrem right side abdominal pain. It's stabbing, burning, aching pain and nothing helps as far as pillls most them pain pills just make me sick. I have had blood work, ultrasounds, ct scan and physical exams and no one can tell me anything. I believe it's scar tissue but don't know what kind of dr to fix it. I hear that there are procedures to remove the scar tissue but I don't know which ones. I'm going crazy, at least that's what it feels like cause no one seems to believe me like I'm making it up. The pain comes and goes and nothing I can tell triggers it. The pain shoots up my side down my leg and into my back. Does anyone else have these problems or solutions?
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replied January 6th, 2012
hi , yes i had my partial hysterectomy almost 4 years ago . have been experiencing the same pain you have described . somedays i can stand,sit ,walk ,laugh ,cough . no doctor has been helpful . i have recently been diagnosed with colitis & the doc mentioned maybe you have adhesions ! so now i will see what needs to be done .
hopefully i will have relief in the near future . people start to think you're crazy or making it up Sad . i know your pain . will keep you informed .
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replied September 19th, 2013
I know what you mean. Prolo-therapy injections. Trans-abdominal exercises and deep tissue massage has helped me more than 60%
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replied October 30th, 2011
Hi I'm just in bed right now thinking that I am going crazy as well
The doctors are not helping me. I'm glad that I found this site
B/c I am having the same pain as all of you. So thankful for this site I'm not going crazy after all
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replied December 16th, 2009
Community Volunteer (online)
Hi zeus10 and welcome to ehealth: I understand exactly what you are saying in the above post...Some doctors may think that we women are two bricks short of a full load, however, it its't their fault...They live in the body of a man, and unless they lived in our body they would never understand the hurts and pain of being a woman...Honey, they try and hopefully along the way more information will come their way to help them in years to come...Good luck and do take care....

Caroline
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replied February 21st, 2010
adhesions
Wow!! Had a hysterectomy jan 15. Just got released but asked Dr why I had to still do lamaze breathing before a BM. He talked about adhesions and said I would know more at 8 weeks. We just sort of left it at that. The pain is worse at night as I am still swelling after a whole day at work. Is there any non-surgical way to loosen adhesions, ie: lifting weights or running hard, I am willing to do that first! Thanks a million!
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replied March 9th, 2010
I have learned that adhesions are just a part of surgery, some people experience them more than others. I had a partial hysterectomy (cervix and uterus) in 2001 which caused my ovaries to go wild producing multitudes of cysts. They were relieved by birth control pills for a year. About six months following my hysterectomy I had to have laparoscopy due to adhesions, my intestine had adhered itself to my ovary. A couple of months later I had another laparoscopy and endometriosis was removed - I had never had this before. I was okay for a while until I had to have a bladder lift. I opted for a tummy tuck at the same time since they were going to cut me open anyway. That recovery was rough. Not long after full recovery I began to have horrible achiness in my pelvic area that radiated all the way down my thighs to my knees, putting me in the bed. There was no rhyme nor reason as to the intervals in which I felt the pain. Every visit to the Gyno led to an ultrasound and medication which never worked. I was told that adhesions or endometriosis was causing the pain and exploratory surgery via laparoscopy was the next step. Finally when sex hurt too bad and I could not stand the pain any longer, I signed up for the surgery Nov. 2009. When I awoke form the surgery, I was told that I had a laparotomy instead because they could not release the adhesions otherwise. So I had a 5 inch incision and a 3 day stay in the hospital, unexpected of course. A month and a half after that surgery I began to fell a horrible stabbing pain when I would move certain ways so I went back to the doctor, he said I had a cyst and sent me for an ultrasound. Sure enough I had a blood filled cyst on my right ovary. I took Provera for ten days and the pain only kept getting worse. I am to go back for a repeat ultrasound in 6 weeks but don't think I can wait that long. I guess my question is should a cyst hurt for two months, progressively getting worse? The pain is so bad now that all I want to do is lay in bed. I can't do that because I have young children (born through a surrogate). Could this be something other than a cyst?
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replied April 8th, 2010
Adhesions
Ahhesions!!!

Hi Im 26 and have had 5 op''s in 4 years! Some Surgeon messed an op up...My Adhesions! Including Laparocopy. I had gone to have another op (private gync) a week and half after.in 2006 My stomach attched to my Bowel. I had a futher 2 op''s on my bladder too and lost a relationship due to it. so as well as Loveing dancing and keeping fit it has been a long while rocovering and now I feel Im back to square one. mentally Op''s are draining!
I have just another op a week ago for the same ADHESIONS.. Stomach Attched to my Bowel.my thrid laparoscopy. \i can still feel the same pain and was told after a month this should subside. Its quite rare this but Cyst can be mistaken for Adhesions and I was told not all Doc''s touch them and sometimes can lead to more complications but there is no other way to remove them then Surgeory.. My best advice is to stay positive and rest well for post op. My partner has been very supportive and that helps to recover better too.
Yes over 10 years there is a 3% chance they will come back but 97% people they don''t we been the unlucky ones. I went to an amazing Gync who works only private and I asked why I get Adhesions and I used to be a show jumper..horse riding but appaently its constant knocking which can make the organs stick together.. (Adhesions) Good luck everyone.
Does anyone know If they have experienced scar tissue pain months to years after an op for adhesions?

Elaine
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replied April 13th, 2010
I just had (3/31/10) a hysterectomy via the Da Vinci method. I''m having shooting pains under several of the incision sites. I have to urinate frequently & urgently, no kidding, when I have to go I have to go! I''m having pains in my low back (but do have 3 herniated discs) and pain the radiates down the back of my thighs. I also have what feels like menstrual cramping.
Am I losing my mind? Menstrual cramping? There''s nothing to cramp! It''s gone! Ovaries don''t cramp!
What is this pain? Am I doomed for adhesions? I''ve had two previous C-Sections and my Gyno said I had "A LOT" of scar tissue he had to work through! Is that a bad sing? Could adhesions be the reason I hurt so bad and hyst was my last resort for relief?
I want to make sure that my recovery is "normal". I''m schedule to return to work next week! YIKES! That is scary! The pain intensifies the more I move around! Does that go away?

Anne
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replied April 14th, 2010
Yes! I had my hysterectomy a year ago, and the pelvic pain has gotten more severe than better. I can''t walk, I can''t sit at a desk for any period of time, standing hurts like crazy. Needless to say, I''m unable to do any type of workout like I have in the past. Between the horrific pelvic pain and depression from the weight gain, I''m at my wit''s end.

My doctor is going back in laprascopic surgery in a few weeks, and he''s hoping to find the source of the pain.

I do know what you''re going thru. There is NO POSITION that feels comfortable, and sleeping thru the night is a thing of the past (between pain and hormones, that is).
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replied October 31st, 2011
Hi 39, I just read your blog and was wondering what was the out come of your surgery?
I'm going through the same thing right now and I can't get any help from doctors
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replied April 14th, 2010
So now I'm really worried. The more I move the more I hurt. My low back today is awful, I have rolling pains across my lower stomach! If I sit to long my lower stomach really hurts, my back aches! If I walk around to much I bloat!!! I look 9 months pregnant! If I lay down to long I ache and feel jittery! I just got my disability leave extended by a week and still do not know if that will do any good! I'm scared to death and just feel like curling up in a ball and sobbing!!!
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replied April 14th, 2010
Community Volunteer (online)
crafty1, you are only two weeks out of surgery...Give yourself time to heal...You have internal stitches that are pulling too...Backs do ache after this surgery...You will bloat for months so expect it...You will be fine just give yourself time....Take care...

Caroline
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