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Partially patulous eustachian tube with tinnitus ?

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I am looking for help. I have trawled the internet since the start of the year and gone to tewo ENTS but I am getting no where. I will try to keep my post as short and concise as possible, but want to include a lot of information - I really hope there is someone out there who can recognize my symptoms and offer me some hope and/or direction, as I just don’t know what to do anymore. I don’t overstate things generally, but I really feel like what I’m going through is going to be the death of me.

My problems started 7 months ago. After a once off rehearsal with a band (actually just me on guitar and a drummer) I had trouble hearing (the next day). Everything was muffled and not sharp. I became very worried and anxious as I didn’t understand what was happening. After about 16 or 17 days my ears ‘popped’, a day or two apart, as if I had been on a plane. I could hear again clearly in each ear.

However two days before they popped a roaring tinnitus began in my right ear and has never stopped. It began very suddenly, and faded in. It sounds very like the noise you get when you yawn, a roaring , windy, airy sound very low frequencies, or like the noise you hear on a plane of the air rushing past.

Over the months since the noise started, I developed soarness in my ear, and the right side of my face, as well as sinus like pain in my teeth and headaches. The pain has been getting worse and worse, and is now almost more annoying than the noise. It feels very tight in my right ear, I think the feeling is on my ear drum, like a clothes peg or something. It is there about half of the day, and becomes excruciating, and then sometimes the pain fades in to the background a little. Hot drinks and hot soup seem to help sometimes. But it comes back.

Additionally I frequently feel like something is rattling around in my ear. If I am on a bus, or in a car, I feel a vibration like something hitting off something else, near where I imagine my eustachian tube is.

Also my ear ‘pops’ all the time, not like if I have changed altitude. It is a rough crunching noise and feeling, and it is triggered by the slightest noise - such as someone speaking near me, putting a cup down, etc Just in my right ear.

Finally, three weeks ago the hearing in my right ear went crazy - the effects seem to be that of patulous eustachain tube. I could hear my own voice like an echo, and it seemed so very loud. When I spoke I could hear static and noise, and couldn’t hear outside things normally. It felt so straange. It passed after a few hours.

I have been to see two ENTs about it. The first, about two months after it started, said it was probably a virus, which had left me with this. There was nothing, he said he could do.

I went to a second, just last week, for a second opinion. He did a thorough exam, looked in my nose and ears. He said there was no sign of infection, and that the most likely explanation was damage to my cochlea. I asked him if this would cause the pain in my face and ear and he didn’t seem to think so. I asked him about the rattling feeling, which he said was probably always there, but that I was only noticing it now as I was concentrating on that area. I find this impossible to believe!

My theory is something along these lines; back at the very start when my hearing was muffled, my eustachian tubes were jammed shut due to shock(I hadn’t been around music or noise in quite a while before the rehearsal), but before they released, a part of the eustachian tube, at the ear end, opened up, or the muscle was damaged, and as a result it is not closing properly anymore. This is having creating problems with pressure in my ear which is causing the pain in my ear drum, and stopping me from hearing clearly.

This fits with my eustachian tube opening up comletely three weeks ago, as part of is always open?

Has anyone gone through this? Or can anyone tell me if my theory is even plausible? What do I do next? My life has been completely dominated by this curse. I feel so bad for all the people who go through serious ear problems like this, until you have experienced it you have no idea how frustrating and dehabilitating it can be.

Many thanks.
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First Helper thelittlesthobo
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replied August 18th, 2009
Patulous E. Tube
Hi,

I visited an ENT Doctor this afternoon. For the past year I have suffered off and on with my ears feeling stopped up and hearing my own voice. When I lay down my ears are fine but once I swollen or start walking around my ears will fill up again and I hear myself. I went to the ENT doctor about this several months ago. They said that there was nothing wrong with my ears, that I had acid reflux disease and needed to get that under control. I then went to a Digestive Healthcare person as I was coughing, clearing my throat constantly and feeling like I had something in my throat. When I swallow I hear my ears making a cracking noise. I went to an allergist who said I have LPRD which is like acid reflux. He put me on nexium and zyntec and gave me lots of Nosonex. My symptons seemed worse as I couldn't speak today and my ears were horrible. I went back to the ENT doctor who checked my ears with a type of instrument and had me close one nostril while I took a breath. He said that I have patulous eustanchian tube disease which my tube stays open most of the time until I lay down. This is very annoying and frustrating. He is looking into some medicine but told me to stop taking the Nasonex and decogestions as this is making the symptons worse. I hope to hear from the doctor and hopefully get some relief. I hope this helps..........
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replied August 19th, 2009
Hi Boreski

Thankyou for your quick reply.

Sorry to hear about your own ear problems.

I get the crackling noise you mention as well. I think decongestants would be the wrong thing to do for PET as they would have opposite effect - ie opening your tubes more rather than closing them.

Do you mind if I ask are you underweight at all, or have you lost weight in the last year? I've read that this can cause problems in some people and my ENT mentioned that in some cases weight gain would be the prescibed treatment. I myslelf am very light (70kilos, 6ft 1) and I probably lost weight in the few months before my problems started (I went on a vegetarian diet from October 08, and my problems started in mid January, following which I went back on meat because I wanted to make sure I had all the nutrients and proteins to help me get better - still haven't gained any weight though).

I find when I lie down on my left side my symptoms ease, but not on my back. But in any case I don't think PET on its own is exactly my problem.

Hopefully we can both find some kind of relief soon.
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replied September 8th, 2009
Tinnitus, Hearing loss and Hyperacusis
Hi everyone
I started my problem with a blow on my right ear , and then my simptoms are very similar to the littlesfollowed Difference is that I have being diagnosed tinnitus since march this year wth some hearing loss on the same ear and mild hyperacusis. Do you or anyone also have these simptoms? I have also a problem wiht my mandibular joint but dentist says it is not so severe to cause tinnitus so it makes me think that the PET is my problem. I have also being under long time treatment with nasonex and other similar medications as well as operil drops . Any ideas how to proceed to find solutions? thanks for your guidance
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replied September 10th, 2009
I'm going to keep an eye on this thread as this sounds so similar to what I've had for the past year now. Especially podboreski's symptoms. I'm getting really fed up; now that I've started work, it's really become a problem. I can hear myself: every footstep, my voice, my breathing. I feel like I'm shouting yet people tell me I'm mumbling O.o I also sound like I have a cold when speaking when I don't. Like you said, it eases after I've lay down for a while but comes back once I'm up and about again.

To thelittlesthobo, I've always been very thin, no matter what I eat, I don't seem to bulk out at all Razz Can that really be related?
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replied September 20th, 2009
Patulous Eustachian Tube
I've had the same sort of problem since I was 18 and now I am 32! Many years of dealing with this and you're right, it is debilitating. It's hard to talk or feel normal - very stressful. Mine doesn't do it every day and there is no pain, so that is one good thing. Just last night I did an internet search to find out if anyone else had the same problem and I was relieved when I found out it is not just me! And that there is a name for the problem (patulous eustachian tube). One thing that sort of helps me that I have done over the years is to sniff in kind of hard to close the tube... but then it feels like there is too much pressure. I find that better than hearing my own voice and breathing so loud in my ear though. There's no way I have time to lay down to get relief because I am a mom of three small children (ages 6, 5, and 3) and I homeschool them because the oldest has an immune problem so school would be very dangerous for her. I am 7 months pregnant and this PET has been worse throughout the whole pregnancy - it is an every day thing now. I read that can happen during pregnancy because of the hormones that relax and soften the cartilage throughout the body. The eustachian tube is made out of cartilage so it gets effected. I've also noticed throughout the years that staying hydrated helps a bit - although that hasn't worked during pregnancy Sad Anyway hopefully there's something a good ENT can do. I read that only specialized ENT's can do anything about it - I think they are called odologists...
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replied September 25th, 2009
I have been having the same problem for the past 4 years! But at the time I did lose over 75 lbs. and the symptoms started soon after. I would have sudden dizziness spells as well as sharp pain in my left ear (which went on for days at a time) and the feeling of tight fullness in it. First ENT I went to gave me a course of antibiotics which did nothing. I went to another ENT and he too started me on other medications which included decongestants. At the time I started getting pain in the left side of my face and headaches. When medications did not work he referred me to a professor who made me undergo an MRI for my ears as well as a hearing test and some very annoying physical ear tests that included dropping my head back and moving it to the side (made me feel like I have had over 40 bottles of vodka!). Hearing test showed that the painful ear had above average hearing (58% higher than average)and MRI showed a dark shadow behind the left eardrum. The professor traveled and never got his interpretation but another doctor said it is my body's way of protecting my nerve since it is more sensitive thus it formed a fluid like sack. Recently symptoms have gotten worse to include a sudden feeling of blockage and hearing myself speak. This happens same as the others who mentioned it, when I am standing up for a long time or doing stressful work standing up. I also end up getting the nasal voice and start sniffing a lot to help relieve the annoyance. It got embarrassing once when someone pointed out to me that I am acting like a cocaine addict sniffing a lot and talking with a weird nasal voice!!! I am already on reflux medications for GERD so nothing related to that. I wear a TMJ apparatus to relieve my jaw muscle which seems to have gone bad when the ear problems started. Arrghh I just hate chewing the sounds of the crackling when I chew as well as the mild popping only makes it worse! Lets hope all of us get some real good answers to why this happens... I will update as soon as the prof. is back from traveling, so fingers crossed... Thanks all for sharing!
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replied November 4th, 2009
PET
You have no idea how happy I am that I found this website. I really felt like I was the only person out there that had this problem. I've had it for years now. Out of no where, I can hear myself breathing, mumbling when I talk and my heartbeat and footsteps. When I lay down or tilt my head all the way to the side, it goes away. As soon as I get up, its back. Its very very very frustrating and makes me so stressed. I went to an ENT 3 times and every time I have gone he said it was my TMJ. And everything he says to do to help my TMJ does nothing to my ear. It actually just disappears on its own and comes back every so often. The last time I had this was back in May or June I believe. I had a really bad cold recently and was put on Claritin D. I'm wondering if my cold caused this? Or the meds? I have no idea. I'm just wondering how long its going to last now. Sometimes its a day, sometimes its a few weeks. I cant take it anymore! All my docs say nothing is wrong with my ear when obviously there is! Is there a special doc I can go to? Anyone have remedies theyve used?
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replied January 29th, 2010
PET solution
Hi!
My mother has been suffering from PET for the last 5 years. 2 years ago she tryied the Patul-End drops which was very useful for the fist months, but after that everything went back to normal and the drops did not have any effect.

After that she started to put just water in her nose, using the Patul-End drops container. For the last year and a half this has been working very well! There are some days that she doesn't even have PET symptoms. The water works instantly.

If you have used the Patul-End drops, you have to put the water in your nose the same way you did with the drops.

I jave seen my mom suffering a lot before this, and now I'm very happy to see her "back to normal".

Hope this will help!!

NV
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replied March 19th, 2010
Eustachian Tube Dysf/Autophony ?
OMgosh Me too.
Constant feeling of pressure and fullness in and below both ears. Can not tolerate anything touching my ears even slightly. A pillow will even magnify the pain/pressure. My ears pop in and out. Sometimes so much that every other word & breath or so is magnified. This makes me so crazy. Pain sometimes is in my jaws as well. Constant headaches. Dizziness often, sometimes severe sometimes just when I turn over in bed or tilt my head back and look up to the left. I thought eveyone heard a crackle when swallowing. Ringing in ears sometimes loud enough to hear over noise & very distracting. (makes me crazy sometimes) Symptoms lesson for months at a time and then without fail worsen in Dec & Jan. By Feb I always end up with severe Sinus infection requiring at least 20 days of antibiotics. This year the infection seem to include an upper respiratory infection as well. I've been to all the doctors with the no help. At least now I know I'm not alone in this.
I'm 43 and have been suffering with this for about 4 years now. And I too feel worse during the day rather than at night.
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User Profile
replied May 11th, 2010
Patent Eustachian Tube Dysfunction
I have had PET for about 3 years now. Seen and been transferred to all ENT''s and now a middle ear specialist. I even tried the Patul-end drops and that didn''t really work. Gonna give the water a try though. I havent done all the research yet but my Dr. told me that there is one Dr. In Boston MA who is studying PET and can do surgery. They retrieve cartilage from your nose or ear lobe and go thru the nasal passage to get to your Eustachian tube and add the cartiladge to help thickin it up so it supposedly opens and closes correctly on its own. I have not gathered the success rate on this but know all I ''ve been told at this point is to gain about 5 pounds. But found to be only for underweight or malnourished people with these systomps. Of that I am neither. If anyone ever wnat to talk or get more info. on this dr. in MA please let me know. I can send you a few pages he wrttien on his studies. Don''t know how comfortable you are with e-mial but I would live to talk to someone who deals with PET everyday. How are you manageing your smile for your family, talking to people at work and making them not think youve have a cold or are tired becaue you keep squatting down to the ground to tilt your heard to get the blood pressure there
so you can get up and keep doing what you were doing. Eating and talking just makes me more frustrated and trying to describe whats happening to someone just ends up with an Im sorry you have a earache. well, living with it as callmly as I can for now but not quite ready to give up on the remedy!
Carrie


in so you can get up and keep going
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replied June 26th, 2010
i know..
Hi all
This is very comforting to read. but also very upsetting. I started with this around age 17 after dropping lots of weight AND going on the pill. It bothered me to extreme for YEARS.. and without realising it, after I had my son, it only ever bothered me when exercising. so i didn't. I had almost forgotten it over the last 4 years. Just knew not to go skipping, running etc. then i was totally fine. Suddenly this week. BAM. its back. to the extreme. I had gone back on the contraceptive pill after a long break 2 months ago and am almost certain this is my trigger. I have now dropped it immediately - 2 days ago and am praying the effects will be reversed. I also feel (don't know, just feel) that upping dairy will help (they tell you to cut it out when you are too mucusy right - so maybe the opposite is true) BTW - I am now 34 and thought i had all but 'grown out' of this. more depressed than ever now.
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replied May 20th, 2011
oral contraceptives --> PET?
I know it's been about a year since this was posted, but I've only just now been seeing doctors for PET, although in retrospect I've had it about two years. I've been pregnant for the last 9 months, and it has gotten unbearable, which is why I finally went to the doctor. Before that, it was "just" very annoying. Now, I'm wondering if possibly I developed it in link with beginning oral contraceptives: I started taking them around 2 years ago, which is about when the PET symptoms started. Your post is the first I have read of a possible connection. And of course PET can develop or worsen during pregnancy, so I'm wondering if, in my case, these may have been the "causes."

If anyone else has had a similar experience, please share... there is so little information on this out there!
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replied July 2nd, 2010
A tale of ear problems...
Hi,

I have a permanent feeling of "difference of pressure" in my left ear, one which was never there before. The degree that I experience this is directly proportional to how loud my world is, and it has to be quiet, as even my own voice exacerbates my condition. Every morning when I wake I have to resist the urge to "pop" my ear to counteract this feeling (I would hold my nose, stick finger deep into my ear and very gently blow!). Now, I try to resist this, as it obviously puts stress onto my middle ear, but it is the only way to get any relief from this sense of fullness, which is unbearable otherwise.

The pressure is akin to the sensation one gets after a airplane flight, or of coming out of a swimming pool or the bath with water in one's ear - the external canal - but in my case there is no fluid in the external canal, and while the fullness usually experienced from external pressure changes invariably cures itself, in my case it always feels as though halfway through the middle ear's normal method of regaining "equilibrium" - which can be heard as a series of clicking noises - the process becomes stuck - I can actually feel this as a sort of build up of pressure, and often hear the different parts of my middle ear clicking, popping and grinding as they try (but ALWAYS fail) to find their correct "positions". On the occasions when this fullness is particularly bad then, as I apply pressure by blowing, my ear emits a loud, mouse-like squeak - a sound that can be clearly heard by others. Sometimes the fullness and subsequent popping process becomes so painful it feels as though someone has hammered a nail into my head - I have got close to collapsing from the pain on occasions.

Further to this, I have something which has been described as hyperacusis, where certain noises sound unduly loud, sometimes painfully so. I have this to such a degree that even the sound of an envelope being torn in half can sometimes be too much for me to bear. Even quiet conversation is to be avoided.

When my ear is particularly bad, I also experience a "shadow" to everything I hear - by this I mean that for every sound I hear, including the sound of my own voice, a fraction of a second later, I can hear a crunch-like echo in the same ear, like the sound of gravel underfoot - sometimes I'm pretty sure I can actually feel something moving in my middle ear alongside this "crunch". This can get so bad that when I have a telephone conversation, holding the telephone to my (good) right ear, I can still hear the crunch in the left - sound transmitted through the bones in my skull alone appears to be enough to set it off. I have taken to using a speaker-phone as I have often experienced all my symptoms worsening in the days following long (only two or three minutes long) telephone conversations, but people can't hear me as clearly now, so I have to raise my voice a bit, which in turn further irritates my ear, ruining the point of employing the speaker-phone in the first place.

Finally, I have a small but noticeable lump on my head, to be found covering the mastoid process below and behind my bad ear. I spoke to my consultant regarding this, he said that as far as he knew there was nothing that could cause this in connection with the rest of my problems, but, whenever my ear gets worse, the lump gets larger, while if I stay away from loud noises for a few weeks (a neigh-on impossible feat in this modern world in which we live) then the lump goes down a bit. I don't understand how the size of this lump can appear to be dependent on how my ear feels, but not be at least in some way connected to my condition.

All of the above symptoms occur as a response to sound. If I am exposed to any degree of loud noise then the next day, and for several days, and invariably weeks, afterwards my tinnitus, hyperacusis and this "fullness" become so unbearable that I feel the need to pop my ear more and more frequently, sometimes several times a minute. The discomfort definitely gets worse over time, so that while the day following any exposure to loud noise the fullness, rumbling and hyperacusis are slightly irritating, as days pass they become more and more intolerable. I call it the "grudge" - a tiny insult, and it can remain angry for months at a time! Sometimes my ear feels as though a bee has stung it, deep down inside. Sometimes the pain feels although someone has recently hit me on the side of the head with a heavy frying pan. It has affected my behaviour - for fear of exposure to uncontrollable noise, I have come to avoid most forms of social interaction, conversation, travel etc. I avoid all but the most important of conversations - as I said before, talking makes it worse - I need to live in a world of whisperers. It has also ruined my concentration levels - I feel "stupid" - and it prevents me from getting to sleep at night, each and every night.

On top of this, when I now encounter further normal, everyday sounds (including the sound of my own natural talking voice), all the above symptoms become considerably worse. Over time, the pain and feeling of pressure or fullness I have within my ear becomes truly unbearable, I become sensitive even to the most unobtrusive of sounds (eg the sound of someone in the same room turning the page of a newspaper or stacking plates) and my tinnitus also gets significantly worse. When these symptoms become particularly severe, my eardrum swells, mimicking an ear infection, as does the area of bone behind my ear, while putting any pressure on my middle ear (eg by sneezing, blowing my nose etc) causes excruciating pain, and I experience further unpleasant noises as described above - in particular, I hear a retort or a shadow/echo effect in response to everything I hear, loud or quiet, and I feel very much as though something is moving in my ear when I experience this - my ear feels as though it is full of broken stones.

I have yet to find any relief for any of these symptoms and it takes weeks, sometimes months for them to lessen to a point where they become tolerable once again, and any subsequent exposure to sound - even a single loud noise - can set them off once more, making all these symptoms even worse, and it takes even longer for my ear to calm down again.

My only way of avoiding the above problems is to minimise contact with any environment where the noise levels are beyond my control, but the consequences of protecting myself in this way means that my movements and my ability to interact with others have now become severely restricted: many of the simple aspects of modern life one takes for granted are now denied to me as they invariably aggravate the problems I have with my ear. For example, I cannot hold any sort of conversation for any length of time, I cannot be in a room with more than 2 or 3 people in it and I have to avoid people with loud voices. I also have to avoid crowds and public places and almost all forms of travel, and when walking down the street I have to be wary of road-works, sirens, whistles, brakes, car stereos, loud vehicles etc - everything really. And when it rains, the sound of cars on the streets gets even louder. For fear of exposure to uncontrollable noise, I am reticent about going to "new" places as I cannot predict how loud they might be. I can no longer enjoy listening to music, or simply going to cinemas, pubs, social events etc. I have to be especially wary of my own voice. This makes it difficult for me to develop or maintain relationships and impossible for me to work, making me feel withdrawn and very isolated from the world around me. It has come to a point where I have next to nothing to look forward to, at least not without the fear of painful and debilitating consequences. Everywhere I go, I want the sound turned down. My friends think I am becoming a hermit, and to a certain extent this is true. I have seen a psychotherapist in an attempt to deal with some of these issues, but even talking quietly with someone for half an hour can be a potentially very painful experience.

As well as having to avoid everyday noise levels, I also cannot endure a totally quiet environment as this exacerbates my tinnitus (also in my left ear) - I need to have some form of background/white noise otherwise my tinnitus becomes very unpleasant and seems to amplify my other symptoms. While I can manage the tinnitus (I live in a room with several quiet electric fans and a fish tank complete with an air pump which provide sufficient background noise to counteract the background rumble in my ear), the rest of the symptoms I have described are very difficult to deal with.

I have seen a NHS ear specialist about all this, a surgeon, and he basically dismissed me as a time-wasting second-rate citizen interrupting his important schedule of golf and cocktail parties. After an interminable wait and countless other tests, I saw another specialist, a clinician. I had a MRI scan - it demonstrated nothing. I had a CAT scan - it also demonstrated nothing. As far as diagnosis was concerned, he suggested that I suffered from some form of eustacian dysfunction, triggered by some form of allergenic response. For this I was prescribed a course of steroidal anti-inflammatory drugs, taken nasally as a spray. He also suggested that my condition was something that would eventually die down. This was over 5 years ago! Unfortunately, the sprays - despite their strength - have had no effect whatsoever and, in fact, my condition has deteriorated.

As a consequence, for the last 6 years I have been forced to abandon my former life - I have no job, no career, no money, no pub, no cinema, no music, no parties, no "relationships", almost no social interaction and nothing to look forward to whatsoever, at least not without the fear of painful, debilitating consequences. This is, as you can imagine, not exactly life-affirming. Everywhere I go, I want the sound turned down. My friends think I have become a hermit...

If I were to employ medical terminology to describe my "condition", on a bad day I would say I have a number of symptoms commonly but not always associated with one or more of the following: chronic otitis media - COM - (apparently brought on by day-to-day sound, with no indication of associated infection) / otalgia associated with temperomandibular joint syndrome (TMJ) - I don;t have this, but some of the symptoms are similar / tensor tympani syndrome and/or stapedial muscle spasm / eustacian tube dysfunction (ETD) / patent eustacian tube / scarring of middle ear and possibly eustacian tube / underlying unilateral tinnitus. Confused? You should be (everyone else is). Annoyingly, my symptoms do not conveniently fall into a neat pattern as defined by any one of the above conditions alone (if only they did, then all this would be much less of a problem) - instead, depending on how bad it is, more and more symptoms from any or all of the above conditions are combined, one piled on top of the other.

In theory, I may have all of the above. This is unlikely, as is the possibility that I have none of them. Instead, I probably have a combination of two or three of them, plus possibly something else that no one has thought about. This is why, when people ask, I now reply "I have something wrong with my ear". If they inquire further, when pressed I would probably take a deep breath and say (hopefully quietly) something along the lines of "I have something wrong with my ear which at present cannot be easily pigeon-holed into a single clear-cut and definable set of recognisable symptoms pointing either towards a diagnosis or to a regimen of treatment". At which point they go glassy-eyed and the conversation invariably turns to the weather.

I feel that at least if I had an accurate diagnosis, then perhaps I could pursue a cure, and then maybe get my life back, which would be nice.

Any suggestions?
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replied December 11th, 2011
keep the faith
I am sorry to hear you are going through this,,,,it is terrible when you experience this kind of symptoms and noone seems to know the cure...I also have some of this symptoms which make me think I have a patulous condition, in my case it is intermitent, not always, but when it appear made me sad, specially the echo voices irritates me....I surfed the internet and read a lot of interesting stuff,,,there is something called resolution magic, a method of mental exercises that might help with this, who knows but I want to learn more about it...I also read a post of someone with hyperacusis which seem very interesting and hopefull: the hyperacusis network, minor's story...
I guess the best thing is not going into panic mode, keep breathing and living having faith that this is going to be cured and keep searching on your own and learning ways to cope with the condition.
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replied December 11th, 2011
keep the faith
I am sorry to hear you are going through this,,,,it is terrible when you experience this kind of symptoms and noone seems to know the cure...I also have some of this symptoms which make me think I have a patulous condition, in my case it is intermitent, not always, but when it appear made me sad, specially the echo voices irritates me....I surfed the internet and read a lot of interesting stuff,,,there is something called resolution magic, a method of mental exercises that might help with this, who knows but I want to learn more about it...I also read a post of someone with hyperacusis which seem very interesting and hopefull: the hyperacusis network, minor's story...
I guess the best thing is not going into panic mode, keep breathing and living having faith that this is going to be cured and keep searching on your own and learning ways to cope with the condition.
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replied October 27th, 2013
I have most of the symptoms you have, which developed over the last two months (since July 1013). I visited a new ENT and got a blank stare when I mentioned my symptoms. I am scheulded for tests. Did they ever come to a definitive diagnosis on your problem?
Thanks
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replied January 14th, 2011
I came across this site while researching the link between depersonalisation and Meniere's disease. These descriptions of Pat ET are excellent, far better than can be found in any medical journal or textbook. I hope they will be retained upon this site indefinitely. Could JFSebastian please write me, as I think we may be able to help each other?
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replied May 18th, 2012
me too
I too have this issue. I have had it off an on in my life. It only recently got worse in the last two years. Its only in my right ear. What I do is tilt my head right and it closes the tube for a bit. I don't know if that will help anyone else. This really only started after I had my ears cleaned due to wax blockage. I have delt with high pitch tinnitus sound from it as well. Although its not that loud. What I have done is used a noise maker on at all times, somewhat quiet and I learned to ignore it 98% of the time. However the hearing of my breathing in the right ear is annoying. I also sometimes feel pushing and pulling in the ear if I sniff in when my tube is wide open. So annoying. I don't think anything can be done. I heard a rumor some guy said he lays down on his back, feet up and over a chair for 15 mins a day 4 times a day for two weeks and it helped him?? *shrug* Laying my head to the right for a few mins seems to get it to stop off and on.
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replied September 21st, 2013
superior canal dehiscence
I think you have superior canal dehiscence. I hope to god an ent has done a high resoultion ct scan, vemp test, and bone conduction test on u by now. It really sounds like your issue. They can do surgery to fix it. Please google it and see
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