It seems after I eat..........I go crazy with the itch. I swell and later it drains. Are the glands plugged with the stones I read about. I went to a doctor years ago and had dye and x rays, but I never remember any suggestions or treatments.They had me suck on a lemon and just the thought of it makes me swell.Now here is the crazy part. I cannot stand to talk on my cell phone. The pain and ache are horrible. Help!
swollen parotid glands/salivary glands/ with severe itching
I an also plagued with these symptoms and just had CAT scan this morning with contrast dye. Mine has bothered me for years and has escalated. I had allergy tests for foods first a month ago after eatting a breakfast bar one night and drinking milk. It became so swollen I had to go to the ER and the Dr, there was amazed and wished he had another Dr. to show it to, I was then sent to the allergist. I found I have a 4 plus to sunflower seeds which could not be the problem. On to the ENT Dr. and he had me keep a list of foods that seemed to effect it. Mine can swell and itch even when I have not eatten. It is very painful when it occurs and it has gotten very obvious to the naked eye of anyone looking at me. The doctor thinks it is probably stone blockages but is not sure of course. It can also be some kid of autoimmune system response like Lupus but I am sure I do not have Lupus. My Dr. says he has 3 other cases that have the same symptoms and like yourself there has not been a real "cause" found. The itching drives me crazy and I could scratch my cheeks off and my ears feel involved too like if I could go down in them I could finally scratch the itch. Anyway you are not alone and maybe this helps. I know your post helped me alot.
swelling and intense itching in ears, on and under parotid gland
I have had the exact same issue for 25+ years.Just as you describe it kkgirl.. Been to specialists to no avail. They seem to think i need to drink tons of water and that is supposed to help. It hasnt I have episodes where i scratch and rub for hours on end ...swelling so bad i can barely open my mouth and a strethcy substance that will come thru the inside of my cheek. Sometimes after the episodes which can come at any time even wake me from a sleep my face and neck will be bruised from all the rubbing. Most everyone including doctors think i am nuts or have allergies. I call it my curse. But at least I know I''m not the only one with this freakish and apparently non treatable condition...Can someone please help us?
Intense Itching in Ears, Cheeks and Neck around Salivary Glands
Oh my gosh! It makes me feel so much better knowing that I''m not crazy, that someone else out there can validate these symtoms are real! Although I feel bad that you are all suffering as well. This condition started like a year and a half ago and I have noticed recently that it has been worse. My life is much more stressful now, so I''m attributing the increase to stress, but I have been concerned that I have something life threatening like cancer or something, but now that I''ve read your posts my fears are somewhat settled. Everyone i know thinks i am nuts. My mom believes it must be triggered by a food allergy. I notice when I drink beer, after a heavy night of drinking or have a cig (I only occasionally do, I know it''s bad) the itching is so intense I feel like a dog with fleas. The itching is so bad in my ears that I feel like I want to take pipe cleaners and stick them deep into my ear to reach the itch. The itch in my neck on my glands is the same, like I have a mosquito bite inside my neck and I can''t reach the itch. I went to our family doc and he told me I have neurodermatitis, but I know that isn''t it. The itching moves all around my salivery glands and I never break the skin or get redness or rashes. No fluids draining. Just a fullness feeling, itching and sometimes aches and shooting pains in my jaw, neck and ears. I''ve also noticed the feeling you get when you eat something sour, but when I''ve eaten nothing at all. It''s almost like a tightening feeling. Who knows though maybe the itching and stress from the itching is causing additional symptoms to arise. I''m going to the Ear Nose and Throat Specialist regardless, I''ll let you all know what they have to say...
I have had these same symptoms for many years now.Only one specialist had a suggestion, check for Sjogrens syndrome(my sister was diagnosed with the after many dead-end tests for other problems, not like mine). I declined to do this simple blood test because if that was the answer, I would then have a pre-existing condition and would be refused for any insurance in the future if my current insurance lapsed. As feared my insurance has lapsed after the dissability of my husband. If any of you fellow sufferers have not been tested and can be I only hope that this helps someone.
how is ur sister doing having this sjogrens?I have been on antibiotics for a month and no relieve my oral surgeon said he thought it was a tumor and usually they r not cancerous but who really knows,i did follow up with a ent that the oral said i should see asap and have a cat scan which the ent did not do,he said if its not gone in 2 more weeks come back well still not gone but going to Mass general which is one off the Best so tuesday will know the truth i hope,good luck to both of u
I have been going through this same thing for several years (I'm 61 now). It's been awhile since I tried googling it-- and when I didn't find any similar cases previously, I figured I was the only one! There seems o be no rhyme or reason to my periodic swelling and more common itching in the salivary glands. Usually it's on the left side, but sometimes it's the right. Nothing specific brings it on. I was tested for Sjogren's and it came out negative. And my CT scan showed no stones. <shrug> It's like a curse. The last ENT I went to told me there's a salivary gland center in New England somewhere and maybe I should go there. I don't think so! That was his only advice... but he still charged me, of course! LOL
Hello, I'm 28...and i'm joining your club. i too have the same issues, but my husband calls them my bugs. When they go to itching, he asks if i've fogotten to feed them today. I have all the same symptoms you ladies do, severe itching with nothing consistent, perodic swelling with intense pressure followed by drainage. A few things that i haven't heard mentioned that i'm going through are when i'm talking to friends and family, my jaw gets tired and tight, almost as if its wanting to lock. Then on my right side of my jaw there is a place i can press and saliva will burst out, but what is strange (if that isn't enough) is that it's salty...very very salty, atlantic ocean salty and i can make it do it every time.
I've search the internet so many times looking for information on anything remotely close. My ENT and I are both doing this. He's working his side and i'm printing off google anything and bringing it to him. I think its wonderful that he wants to try and get to the bottom of what ever this is. There's just on enough people coming forward with this problem and not enough doctors thinking its interesting enough to do a case study and add it into the medical journal. In order to get diagnosis, we might need to get a large group of people together and find a doctor willing to do a case study and get that ball rolling. there is no reason why we should have to suffer in todays day in age. Before I turn over this soap box...are there any men with this issue out there?
I am male and have had almost the same exact symptoms for almost 3 years now. Want to scratch cheeks off and pipe cleaner in ear and both right and left side. Sometimes from eating sour foods and sometimes when I haven't had anything to eat in hours. Glad I finely found this posting! Almost had a biopsy on my lymph nodes in the area today but the doc after the ultrasound was convinced that my nodes are perfectly normal. Then he mentioned me looking into the parotid gland and here I am. 33y/o male
Your ENT sounds lots more caring than mine is! "Mine" isn't quite true, since I wouldn't bother going back. Please let us know if you ever find out anything more. Other than the salty saliva squirt (say *that* fast 3 times!), my symptoms are so similar to yours. I can't do the same squirting "trick" though.
I think I've finally figured out that this is caused by gluten intolerance. If I can keep gluten out of my diet I have no more of this crazy itching and swelling. My itching eventually turned into dermatitis herpetiformis(a result of gluten) which is how I finally figured it all out. I just accidentally ate gluten and have been itching for an hour with my gland totally swollen. There is gluten in so many things it's unbelievable but I'd suggest try going gluten free and see what happens. It's totally amazing when you don't itch anymore.
Indeed, gluten and dairy products are very high up on the list of allergens and they can pop up just like that.
Most posts here are because of food (or smoking) allergies, I am quite sure of it. My husband gave up milk (which he only consumed in his coffee) and within THREE months he was completely cured from sinusitis and losing balance issues. Two different ENT's wanted to remove polyps from his nose (which they thought was the cause of his balance loss) but he didn't want his nose cut .
Empathising with each other gives a one minute release, but it's much better to cure yourself by giving something up that is causing your discomfort. Usually you will know at the end of three months whether it's helped. Pick your most favourite food which you have every day. That could well be the culprit.
I have had the same symptoms for over 10+ years and have also been told by several doctors just to suck on lemon drops, which usually only makes it worse. I have taken pictures to the doctor showing the "chipmunk" swelling and I get a "hum" and that is about it. Since it is bilateral, I too thought it might be an allergy. My left side is usually worse than the right. My ENT said it might be a narrowing in the glands and ran a wire in both of them to open them up- which maybe helped for a week or so. When I asked him how many time I could have the treatment - he said 2 or 3 times- since it could cause scar tissue to grow. So, no more treatments. It helps to know that there are other people with the same problem and that I am not crazy. I am going to try the gluten free approach and see what happens.
Parotid gland removal for itching seemingly in ears and cheek
You need to have your Parotid gland removed. I am in the middle of dealing with the same symptoms for the last 2 years.Finally found a doctor that put it all together. He does this operation all the time. It's a very delicate operation because the facial nerve can be damaged and leave you with a droopy face. I have a Parotid sialogram next week. Check the net. Hope this helps!
Maybe we can find a common cause. Does anyone take a diuretic, or maybe Cipro? Maybe there is something we all have in common. Something as simple as instant coffee. I am just not ready to have my glands removed. I have trying to avoid gluten for the last week and have had only a couple of mild out breaks. Will give it another week.
I google saliva gland swelling and itchy face once in awhile. I have had this for over 6 years. Had MRI and have no stones, no tumors nothing blocking the duct. It swells on either side about every 2 weeks. Just in the last year I noticed that it itches on my cheeks before it swells. It is not painful but it seems like when I do the sour candy or saliva producing gum then it comes on. My ENT just said it was sialadenosis (sp) and to do the above. My GP said it could be anything and I would just have to live with it. I am 61 female. Any men get this? How is the no gluten working out? My son suggested I quit eating almonds because I eat them a lot but that didn't seem to make a difference. It has distorted my face and it is really depressing. I totally identify with the chipmunk cheek comment. I have said that too. Swelling can be just one side or the other and lasts for several days. Lets work on this together.
I thought I had solved my problem... about a month ago, my asthma got worse, and so I started using a sample inhaler my doc had given me several months back (I didn't feel I needed that much medication at the time) that is steroid-based. After a few days, not only had my asthma abated, but I realized that my gland was not itching or swelling, either! Aha, I thought, it's the steroid that's fixing it!
But then I woke up this morning and it's all swollen again. Grrr...
I've also been suffering the past few months with what the dermatologist(s) called seborrheic dermatitis. It's causing my scalp to itch terribly and to form crusts, but worst of all, my hair is falling out at record speed. I may need a wig soon, because I don't know how much longer I can hide this with small hairpieces. I'm devastated by it, because I always prided myself so on my beautiful, thick head of hair. All the meds and shampoos prescribed have not helped.
Jerseygirl53 I am wondering how long you have had the dermatitis? Did the rash just start 2 months ago or possibly had you been able to ignore it for awhile. I am asking because I think I have narrowed it down to bumps I have had behind my ear and into my hair line in the back. They don't itch but I have had them for years. The only time I had them diagnosed it was said it was cellulitis. I now wonder if it is related to my parotid gland swelling. My next stop is a dermatologist. Did your doc give you antibiotics for the dermatitis. I am thinking that might be what is going on. I just ignored it for so long. We need to see if we have any other symptoms or possible causes in common. When my swelling isn't happening I always feel I have solved it but it keeps coming back. I have recorded the timing for years on my calendar and it is no longer than 2 weeks apart.
Any of you above still having problems with the swelling? If you have found what caused it please let us know. If you still are suffering with this please let us know. Do any of you take any medications? Antihistamines? Meds to sleep? Any OCD symptoms? Please don't go away when you find a cause... please give some ideas. Those of you that have the itchy cheeks and then cheek swelling in the saliva glands it seems we have the same issue. Thanks.
I'm so sorry to hear you are all suffering like myself. I am a 35 year old male from London. I have suffered from chronic itching of the parotid gland area of both cheeks for nearly 9 years. I have been told everything from changing my shampoo to stones or allergies, by many different doctors, but none of these have had any impact on my condition. All I know is that left untreated it is getting worse. I am at the point where even a gentle kiss on the cheek from my wife in the morning sets it off violently enough to have noticeable 'chipmunk' cheeks for a couple of hours. This will cause pain whilst swollen and thus the inability to eat or drink. I will have at least two random attacks a day regardless of my diet or surroundings.
I agree with the other comments in that we must keep posting and pressuring the doctors for further research.
I am going to Paris very soon to seek advise and further tests and yet another appointment with a UK consultant
I will let you know...
Thanks for posting. When I first started getting the swelling I didn't realize that it itched first. I try to not itch wondering if I don't will it still swell? But, it seems to be impossible. I will try compresses but then I end up rubbing the area with the cloths for relief. Sometimes it looks like a golf ball in my cheeks and sometimes you can see the whole gland and down my neck where it looks like I have jowls.
I have watched everything I take, eat, drink, use. What specialist handles the parotid glands? I thought ENT's but mine just gave me the diagnosis but no way to fix. He suggested the sour candies and hydration. I find when I am proactive and do things to activate more saliva that it comes on. Have any of you been told you have overactive saliva glands? That is what my dentists always have said. Could that aggravate this? Keep posting. Please don't go away when you find what this is. The doctors don't take this as important but they aren't the ones with chipmunk cheeks.
I have had all the tests and there are no stones, tumors, etc.
thanks ... and hopes for health for us all
Tracy, I'm sorry I haven't been back here in awhile to update. There's not much to tell...
My scalp problem started 6 months ago and is still worsening. It's very itchy and gets all crusty; treatment(s) help only briefly (like less than a day) and then it's back. My hair is still falling out. I bought a wig, but I hesitate to start using it... I guess I don't want to admit defeat. I'm seeing a 3rd dermatologist next week, but I'm not expecting much.
My salivary gland problem is also still around. Sometimes it itches (awful!), but that doesn't always result in swelling. The other day my left gland itched like mad, and then the next day, my right gland swelled. My right gland has never itched, though. My husband jokingly calls it "goiter neck," although it really has nothing to do with my thyroid (and goiter does). I tend to stay home when it swells because it's so embarrassing (I work from home, so that helps).
I've been to 2 ENTs, neither of whom were helpful. I don't appear to have stones (but they could be too small to appear on a CT scan) and I tested negative for Sjogren's (and don't have other typical symptoms).
There seems to be no link to food, drink, or medication. Between my two conditions, I'm awfully frustrated! I know neither is life threatening, thank goodness, but still... it's difficult.