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Painful Bladder after total Hysterectomy

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I had a total abdominal hysterectomy about a month and a half ago and a week after I had pain in my bladder I was prescribed antibiotics it seemed to have help for a few weeks... Then I started getting what I thought was bladder spasms and my entire bladder was hurting and it hurt when I went to the bathroom I went to my general dr they did a UA and gave me antibiotics... They called me back 3 days later for another UA my urine was worse and they put me on another antibiotic... I was still hurting really bad the spasm med wasn\'t helping either, so I called my GYN he did a UA through a cath and sent to the lab came back no bacteria so I\'m going to urologist!! My bladder hurts all the time it feels like it will bust when it\'s full!! I\'m very worried its surgery related what do u think it could be?
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First Helper NayNay11
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replied November 11th, 2012
I had a Da Vinci hysterectomy in March and experienced the same things. Fever, infection, bloating, burning when I urinated and feeling like I couldn't urinate. I went back to my doctor several times and was told that IT WAS NORMAL(!!!)and sent home!

Six weeks later I finally get an appointment with a urologist who did one CT scan and told me my bladder had a puncture, 5mm...exactly the same size as the robot! I had ANOTHER surgery to repair the bladder puncture but only AFTER I wore adult diapers for two months while I took antibiotics to treat the infection so I could be healthy enough for another surgery!

Worst of all, I had no idea this was even a possibility and now I am seeing so many stories of terrible things like this happening with the robot.

I am only 36. After missing almost three months of work I've just been "laid off" from my job that I've only been back to for two months. So Friday I responded to a facebook ad (crazy, I know but I am at my wits end!)and this really nice girl called me back almost immediately. It turns out that the infection and pain IS NORMAL after that surgery because the bladder punctures happen to A LOT of people!

I'm not trying to terrify you or anything but I have been through sheer hell. I only wish I not jumped on the bandwagon with this surgery robot. What was supposed to be "minimally invasive" has cost me four months of my life, my job and my dignity! Get a second opinion, fast!
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replied November 11th, 2012
Get a second opinion soon! This happened to me too and if I had to guess I'd say your bladder was punctured during the surgery.

I spent months in adult diapers...and my doctor tells me I may have to live with this forever. I'm 36 years old. This is devastating.

Check davincihelp . com. There is where I started finding answers.
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replied December 4th, 2014
Ladie I am so so sorry to hear your stories. Sadly I can relate. I had robotic surgery on July 10, 2014 and within the first week knew something was wrong with my bladder. I was tested over and over again for infection based on symptoms of frequency, urgency, pain, full bladder pressure with little or nothing coming out. It was the worst experience of my life. I suffered for almost five months. MRI showed nothing , ultrasound showed nothing. I saw urologist, urogynecologist, specialist at universities and I too gave up four months of my life. Almost 20 doctors. They all just had a different opinion, offered different options. I praise God I did not have the leakage issue, mine was the exact opposite feeling like I had to go all the time. I also suffered from bouts of numbness in my right leg and had a very horrible, uncaring surgeon the minute he realized I was having complications. I was told by the numerous other physicians I saw that it should resolve on its own, but I was not ok with that answer.

I finally researched enough and enrolled myself in pelvic floor physical therapy. It has made a world of difference along with regular massage focused in the hip and pelvic area. Both of these take a skilled hand and someone who has seen bladder issues post hysterectomy. Pelvic floor specialist are hard to come by, but if you get the right one, well worth it. Please do not settle for the answers you have gotten. It is my mission to help someone not have to experience. Worst of all had I found this physical therapy protocol prior to surgery I would have never had the surgery. It was completely unnecessary as my pathology came back completely normal.

Anyway feel free to contact me or respond, but in the meantime check out pelvic floor physical therapy. Kindness to you all!
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replied December 6th, 2014
Experienced User
Onthespot - I am glad to hear that pelvic floor therapy made a world of difference! I only had minor bladder issues post-hysterectomy but bowel issues were debilitating. Like you, I had an uncaring surgeon who dropped me "like a hot potato" after surgery even though I had been his patient for 20 years. I also discovered that he had lied to me to get me to consent to the surgery and remove healthy organs. Wo
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