After a kidney stone surgery in March 2007, I immediately developed a hernia near my belly button which developed into a double hernia.
Due to various factors I was not able to have surgery till May 2008. My hernias had continued to grow larger during that time. I could barely sit, stand, walk, climb steps. There were 2-3 times that I thought I may have had a strangulated hernia, but I could literally feel my muscles tearing to make room for the expanding bulge.
I had a mesh repair, but the pain has never gone away. I had a drain, but it fell out prematurely. At first the pain was extremely unbearable. I couldn't roll over in bed without horrific pain. This went on for months, and in September 2009 the pain subsided just a little to the point where I could function somewhat, but was still at a pain level of 7.
Since then I have continued to have increasing pain. My constant pinpointed stabbing and aching pain is in my right abdomen area between my side and my belly button. I also have some pinpointed pain in my back, but feel that may be either not related, or a result of the pain in my right abdomen. I have another pinpointed pain at times in my pelvic area. I also have burning and dull pain throughout my abdomen on my right side extended into my hips and back. I always feel bloated. I am overweight, but it seems as if my stomach is distended - edema.
My pain level becomes worse when I stand or strain when I lift things. I have to hold my side when I walk or climb stairs. And when the pain is the worst is when I am constipated.
When I reach across and down to pick something up it feels as if my entire insides come loose!
Last week the pain in my right side abdomen was so severe I couldn't roll over in bed - couldn't stand up - and could barely walk without screaming in pain and agony! I went for 5 days without having a bowel movement.
I did not vomit and was not extremely nauseated, but was a little bit nauseated.
Again I felt like my muscle was tearing. The pain was pinpointed in my middle right abdomen but also gripped my entire abdomen and back and traveled halfway up my spine and down into my hips.
I believe that the tearing muscles caused a spasm reaction that spread throughout my muscles. My abdomen also burned.
I can feel a small bean size nodule just beneath the surface that is tender to the touch (would this be a staple or scar tissue)
Plus I feel a large mass - lemon size that feels like a hernia. This is what hurts me so terrible! Since I am heavy, I have to search to find it. It is not apparant visibly.
I had a CT scan last week which did not show anything the matter at all and no kidney stones (which is another thing I thought I might have had - the urine lab showed only a trace of blood).
The doctor can feel the 'bump' and (reluctantly because of my ok CT scan) referred me back to my May 08 hernia surgeon.
I went to the surgeon today for my referral today and after waiting 2 hours, he saw me for less than 5 minutes. He did not let me explain my pain - asked a couple short questions that took about 15 seconds, but did not let me talk much at all. I think it was because he was so far behind in his appts today.
The surgeon felt only my abdomen at the mass for about 2 seconds (which is difficult to really get a good feeling for it because of my weight), and said that he can feel the bump, but since a hernia did not show up on the CT, it is not a hernia (He did not look at the CT personally).
He blamed it on my being fat!
However, I reject that idea. I realize it's not healthy to carry extra weight, but I do not believe that the bump and the pain which is excrutiating at times, is a result of my weight.
I have read where a CT scan does not always show a hernia. I had begged to have an ultra sound instead because I had a CT scan before my last surgery and another one before my kidney stone surgery, so I've had a ton of radiation.
However, they gave me the CT scan anyways.
I feel as if because I am heavy that doctors are dissing my pain. I can't describe how I suffer. My family has begged me to go to the doctor because they are extremely aware of my pain, and I finally did, but now feel nothing has been resolved.
I do have border high platelettes. My count last Friday was 495 - that is chronic and I have probable ET controlled with aspirin.
I had a 15.5 wbc on Friday as well. I had high wbc after my 08 surgery - but also had a urinary tract infection at that time that they failed to treat for 2 mths - so to say my wbc is chronic isn't really accurate.
Is it possible that I have a hernia but that it does not show up on the CT, because I was on my back for the CT.
I adamantly feel like I have a hernia! I know what a hernia feels like!
My pcp made the comment, "Your CT is normal. Just what are your expectations. What is it you want from us!"
Obviously that put me in tears and I said, "I just want the pain to go away!"
Pain of this magnitude is not normal - no matter how fat I am. If the pain was caused from me being fat, then it would be on both sides of my abdomen - not pinpointed in the middle right side.
Please advise!