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pain after nerve graft

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Gardening Mom

New User, Becoming EHEALTHy
Joined: 14 Mar 2008
Posts: 1
pain after nerve graft
Posted: 03-14-08 14:10pm

Hello, I am new to this forum. I hope to be able to discuss my situation here and get new ideas on possible solutions. Or, at least to better understand what, exactly, is the source of the pain I am experiencing. Please allow me to explain my initial injury and the pain I am still experiencing as a result.

My nerve damage comes from an injury from over 20 years ago. I was shot with a 30/30 rifle. Long story short...don't turn around in a driveway in the country when you get lost, especially if the owners of the house are doing drugs.

Anyway, the bullet went through the shoulder and took out a large chunk of collar bone and severed many nerves. I lived in GA at the time but ended up being sent to Duke University in NC where they took nerves from my leg and grafted the arm nerves back together. Oddly enough, I now live in NC about 45 mins from Duke.

The surgery went great but Doc was unable to find one nerve ending so he tied the end he had into another nerve and told me the end he could not find would just die and eventually my body would absorb it. Interesting, when you touch my upper arm, I feel it in my hand. I am incredibly blessed to have as much use of my arm as I do and to have the unbearable pain I was in minimized so much.


However, there is still pain. I cannot sit or sleep without propping my arm up on a pillow or something or it starts hurting immediately. I have noticed when I do alot of walking where my arm is by my side, it hurts every time. It hurts mostly on the back of the arm between the elbow and the shoulder but it will sometimes move further down and the whole arm hurts. The weather works on it too. I know osteoarthritis has set in already but I think the really unbearable pain is still coming from the nerve damage. Sometimes, it just starts hurting for no obvious reason.

It's getting worse and I just need to find out if anything could be done at all. I feel kindof selfish or maybe ungrateful to even complain considering the shape my arm could be in had the surgery not helped so much. But, pain is pain. I have 4 young kids who need a Mom who is not hurting all the time. My regular Doc does have me on a combination of non-narcotic meds to try and keep the pain down. But, they are no longer doing enough for me. It's mainly an insaid type drug approach he is taking.

I wonder if anyone else here has had any similar experience. Perhaps in the 23 years since this happened to me and I had surgery, new developments have been made which could help me. A friend suggested I go to a chiropractor because hers helped her with nerve damage pain in her back. I suppose I could try it. I have never considered it because I don't want anyone touching the wound site because the missing bone section and the metal schrapnel still in there makes it very painful to the touch. The words "shoulder massage" do not relax me at all, rather, they strike terror in my heart.

I'd like to understand why the position I have my arm in is key to triggering some of the pain also. I really want to understand the specifics of just what is causing this pain. I appreciate any information you can share with me.
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