I have been on pain medications for what seems to be over 15 years now. I have a rare neurological condition that mimics a brain tumor- i've had 4 major brain surgeries in the past 4 years. The last one was about a month ago- they tried a new shunt system- (i'm the first person to be implanted with the device).
I was so addicted to my dilaudid, oxycontin and exalgo. I was taking 8mg of dilaudid and then i'd crush it and inject it. It's amazing I didn't OD and die. But I had such a high tolerance for my pain medications. My pain was extremely real- trying to get doctors to listen to me and do the correct testing would have helped me. But I was always just a "problem patient" a "drug seeker", someone with somatization disorder or had munchausens. I was infuriated. To prove to my doctors something was seriously wrong, I voluntarily went into a medical detox. Unfortunately- I got sick, and needed IV antibiotics, so I was transferred to a medical floor.... and had to detox in the hospital with NO help through this. God I was in hell. I wanted to die- the head pain from my disorder was insane. As soon as the medications wore off I knew that something was majorly wrong and I needed another brain surgery. They wouldn't listen. 2 weeks later I ended up having 2 major seizures (I had way too much pressure in my brain.... imagaine living with meningiitis with no pain medication.... thats what I was living through) Luckily when they took the breathing tube out of me, and unrestrained me... I could explain my past neurosurgeries. I was in surgery within a few days undergoing a whole new shunt system because the old one failed... and I had been living this way for months. NO one would believe me because of all the pain medications I had been on. It shouldn't have to resort to having seizures to get the medical care you need.
Theres a difference between tolerance, addiction, abuse and desperation. Unfortunately I was so desperate to kill the pain I resorted to abusing my medications so that I could get "maximum effect".... it wasn't my intention to get high... I just wanted to be functional- and it all turned into a nasty, nasty vicious thing. I have "burned bridges" with so many people, I didn't even know what I was doing when I was that desperate- it seems like I was a totally different person. I was stealing medications from anyone I could (ie- my mother in law, my dad... it didn't matter, all I could think about was the god awful pain, and wanting to advoid the nasty painful detox that came with running out short... I would turn to alcohol a day or two before I could get my script filled to "numb" myself from the detox)
I'm lucky that I have a great husband who has stood by me, fought for me, believed in my pain and has patience and intelligence to help me deal with these damn doctors who wont listen. Now, here's the interesting part- I used to be a critical care nurse.... because of this fact alone- doctors trust you even less.