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Non functioning gallbladder

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Hello

I am writing for advice regarding my Gallbladder. I just recently had my HIDA scan complete. I have a non functioning gallbladder. They said I am not producing any bile. My level was 0 which I was told she had never seen. I have been working on my diet and having better choices. My question... If I am able to control this issue with diet, it there any harm with leaving the gallbladder as opposed to having it removed? I know that with surgery there isn't any guarantee that I will feel truly any better or 100 %. Isn't a non functioning gall bladder the same as no having one at all? Your advice and comments are greatly appreciate.

Thank you

Amelia
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First Helper Shumate
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replied January 14th, 2010
Hello,

Welcome to the ehealthforum and I am really glad to help you out. See the general rule of medicine is that any non functioning organ should be removed because if it kept for long in the body then it may cause future complications. In case of a non functioning gall bladder, if not removed it will lead to accumulation of sludge which may act as irritant and may also predispose to malignancies. So it is better to get it removed.

It is very difficult to precisely confirm a diagnosis without examination and investigations and the answer is based on the medical information provided. For exact diagnosis, you are requested to consult your doctor. I sincerely hope that helps. Take care.


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replied January 27th, 2010
Hida Scan at 0%
I am going through the same thing, only I have decided I want it out.. and the quicker they can get it out the better. I had my HIDA scan on 1/25/10 and I also have a 0% level. My gastro doctor set up a surgical consultation for me that I can hardly wait for. On Friday 1/29 I will meet with a surgeon and beg to get this thing out of me. It is going to be hard to even get through the next 1.5 days.

Are you having pains all over your stomach area? I not only have the typical right side pain, but I also have awful pains on my left side as well as right in the center of my chest below the breast area. I can hardly eat, I am always nauseous and I am having trouble sleeping because it hurts to lay on both sides, my back or my stomach. This morning even the water from the shower was causing pain on my right side. I still throw up, get awful headaches and have the worst bloating I have ever seen on anyone. There are other symptoms too like the hot flashes, dizziness and varying between constipation and the big d!

I really do not know if you will experience this eventually, but trust me it is not fun. Before I started getting sick (in October 2009) I was a healthy 33 year old woman. I am not overweight and eat a well balanced diet. I never cut out all foods that were bad for me, but 90% of the time I had healthy food. I was starting to run and had even completed my first 5k which I was really proud of because running was always awful for me due to side stich (which I think was really gallbladder attacks). Now I have gained weight in spite of not eating much and I am not eating any bad foods. I walk around like a zombie and I am constantly clutching my sides. It is embarassing at work and I have also missed several days because of the pain (not to mention all the tests it took to get a result). It's a terrible thing not to be yourself.. I know it is scary to think of removing an organ from your body, but noone should have to go through this kind of pain.
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replied May 8th, 2012
this is all helpful to me. I know this post was two years ago. But it has taken 6 years for me to figure out what has been going on with me. I have just found out after many tests I have a less than 1% functioning GB. I am scheduled to get it out on Thursday and I am freaking out. I am also concerned that they might find something else! I have read up on so many posts, articles etc. I am concerned that the problems will still be there after the procedure. I do not have stones. I understand it is diseased and needs to come out but, still there are concerns.
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replied May 17th, 2012
Gall bladder removal decision...
I have the same concerns. No stones and I am a healthy active person. Hida scan shows GB at 1% and I'm afraid that having it removed will only bring bigger issues. I'm tired of not feeling well, having a bloated stomach,and over the daily burning sensation and the odd metalic taste in my mouth. However I am terrified of the side effects from GB removal.
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replied June 22nd, 2012
Have you had the surgery? If so how do you feel now? I am having very similar symptoms.
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replied January 2nd, 2013
Gall Bladder Removal
I had the surgery only five days ago, Post surgery was fine I was not aware of any pain as they has set up a morphine pump for me to use.

I am feeling fantastic, no more pain, bloating, acid in the back of my throat, what the hell was I worried about. I knew I was in trouble when I needed three out of hours visits by the emergency doctors

They in turn contacted my surgeon and he called me Friday morning and offered me the surgery that afternoon .
I do not Joke !

Operation completed and I was allowed home at 6 pm the following day. I FEEL BLOODY GREAT. No post op complications at all. Eating everything put infront of me and now really feeling good.

Its been the best Christmas gift I received this year.

I know surgery frightens the life out of all of us, but I would go through it again and again if needed the result has changed my life, no more do I carry a bottle of morphine with me .....I am more than happy with the result I have been left with.

Pat
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replied January 4th, 2013
That's great news! I finally have just discovered, after a intense year of pain and testing, and wrong diagnosis, I have a non functioning gallbladder. The HIDA scan revealed it, just two days ago.
I am awaiting my consult to get surgery scheduled. I hope to be feeling better, as you are!
Just wondered if you too had the HIDA scan? It seems all other tests fail to find a cause.
Best wishes to you!
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replied January 4th, 2013
Post OP Gall Bladder and HIDA Scan
Hello;

As for tests I had everything, blood's , Endoscopies top and bottom, CT scan, Ultra sound. MRI followed by the HIDA, two and a half hours on the table and an xray every twenty seconds. you may say how do I know that? Its the only thing for you to see. You can see a TV monitor hanging from the machine and as I had nothing better to do I then noticed a new picture appeared after every twenty seconds. They looked exactly the same as the first set of pictures and that was after drinking the full cream milk 500 ml to started the gall bladder excreting bile.

It was also mentioned during the Ultra sound. the consultant conducting the procedure showed me; he measured the thickness of the walls of the gall bladder
and told me that the walls of the bladder where very thickened, he did tell me what the normal thickness should be and then told me that the mine was thicker than it should be.

I now consider my self being completely recovered from the surgery, I could not be more happy with the outcome. All the problems I experienced prior to the operation have now gone. I know you know what I mean, And best of all my relationship with my partner is right back on track, as I found intercourse unbearable due to the feeling of being bloated and gassy all the time.

I can now sit down and eat a real meal, no more grazing, and best of all I have started to loose weight and that's without dieting.

I am now in control no more pain killers, that controlled my discomfort but left me with constipated and that then required medication to sort that out.

If its confirmed that the problem is a non functioning Gall Bladder have it out!!

I have one hole about 2cm within my belly button, one hole about 1 cm just under my breast bone and two little holes on my right side just below the line of my ribs and they have almost disappeared from sight but measured 5mm at most.

I do not know how your problems are affecting you, however if you would like any further help re this I would be more than willing to answer any questions you have that are bothering you.
I am so Bloody happy now that is GONE !

Pat
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replied August 29th, 2013
Chester, even with them finding your gall bladder wall very thickened you were still able to have it out laparascopically?
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replied August 10th, 2013
I have been going through horribe pain that started intermittent about 2 years ago in my abdomen. I always had acid reflux but the pain got worse, unbearable at times so Icalled for a gastro aappointment. They ran all the standard tests and dismissed my pain by telling me to take additional over the counter antacids. The pain became more intense and the attacks more often so about 8 months ago I went to a second doctor again more test were run including food allergies. Everything came back fine except that I had a slightly enlarged liver but she didn't believe that would cause the pain. I remember being close to tears and asking what next telling her I have a high tolerance for pain but I can barely eat and I can't take the pain anymore. She looked at me (I am overweight) and she said your body is obviously absorbing the nutrition it needs I suggest you try to loose some weight and talk to your primary doctor about the slightly enlarged liver. I left her office got to my car and cried. I immediately made an appointment with my primary they ran bloodwork that came back normal and also recommended I loose weight! I guess this is why everyone is turning to the internet for answers...we who have been through it are more compassionate with our answers and webmd has never been out right mean! Well 4/13 the pain started to become a constanst gnawing everyday pain any and everything I ate or drank sent me to the bathroom. The pain radiated to both sides of my upper abdomen and into my back under my shoulder blades it was paralyzing at times. I started loosing weight quickly now. My employees and friends asked when I was going to the doctor my response was always the same I laughed and said when I can't take the pain anymore I will go to the ER. I was done with office trips to be poked prodded and dismissed. 7/4/13 at a family function a cousin recommended a doctor and swore by him she told me my symptoms were classic gallbladder and it had to come out she could see I was in pain. I said ok to appease her I knew she was right I had done the internet research but I steill wasnt going to a doctor by this time I had easily dropped 20 lbs. Two weeks and 8 lbs later I saw her at another famiky function and she gave me a very hard time. The pain was evident in my face and so was the additional weight loss. That night I had pain that scared me so bad the next morning I called for an appt and even called since to beg for an earlier one. They fit me in as of 8/6/13 my gallbladder was only functioning at 1%! I understand he told me removing may not stop the pain but he also said living with a gallbladder functioning at only 1% can cause a tremendous amount of pain. What a relief on my brain first of all 2nd of all get it out asap if it's not functioning why keep it? Unfortunately I do have to wait for him to come back from vacation but hell I have been waiting this long! God willing everything goes well 8/23 that thing will be gone for good!!
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replied January 24th, 2014
I know this post is almost 4 years old but I am in a similar position. I haven't had my appointment with GastroEnt yet as I am waiting for insurance approval. Background: I am 26, female, 5'8", was 165 two months ago*, ran a half marathon 4 months ago, vegetarian, low fat diet. The asterisk is because in two months I have gained almost 20 lbs without changing my diet, though I am running a lot less due to cold winter months, I still work out about 3 times a week. I have been to the ER about 12 times in 3 years, 6 times in the last 1.5 years, and three of those times in the last three months for severe nausea, vomitting, and the "big D". I also have migraines that soemtimes come before these episodes and can last up to three days. The migraines are always behind my right eye. The stomach pain is everywhere, not just in the right side. My Dr. is thinking Cyclical Vomitting Syndrome but I am really convinced it is my gallbladder. I am going to get an untrasound and see the specialist in the next week. I wanted to know if anyone here, who was or is a healthy weight, had this issue and were taking birth control? I found my birth control says not to take it if you have gallbladder issues and I read estrogen increases gallbladder issues. If it is because of my gallbladder I am sure it is my BC doing it. Another question, you said oyu gained weight and I have gained it too. Do you think it was because of not being able to move much because of pain or because your gallbladder is directly making you gain weight?
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replied February 1st, 2010
same symptoms
I have been having attacks since dec 26, 2009, then another one less than a week later, after that I had one the next morning. I have been to the ER 6 times in January, now mind you I go the the VA Hospital as I am a vetern. So the ER Doc finally said your gallbladder is not functioning, the sonagram was normal along with all blood test, no fever but pain under the right breast, and in the back right shoulder blade, vomiting, and feel ill most of the time. The attacks come almost every day. So I go to the surgeon today this 12yo dukie houser looking little girl and she says you are not having any gallbladder symptoms it does not hurt in the back with gallbladder, so she leaves and comes back with the head surgeon, he checks me out and say's I believe you have a gallbladder that is not functioning, orders a Hida scan, going to see the gastro Dr. and have an endoscope and then go back to the surgeon, now with the VA system were talking another 3 months, I have the attacks almost on a daily basis, they have given me pain meds that do help a little during the attacks. I have to tell you that I told the 12yo DR that I would not challenge her since she had been to med school, but that I would bet her 99.99% that my gallbladder is not working properly, that I know my body, well she was there when the head surgeon came in and said yea I think it's the gallbladder. I told them that I would go to the ER when I have the attacks, they last 2-3 hours or more, he said that is what you need to do, as you may delvope an infection, or it may rupture. So wish me luck on getting this taken care of in a reasonalbe amout of time.
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replied January 18th, 2012
Fluroquinilones
How many of you have taken Cipro, Levaquin or Avalox before you get sick. I was perfect after Levaquin and now have the same problem like you and others.
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replied January 4th, 2013
WOW. Yes, I took cipro. I was sickened the first time and then the second time before I knew that it was the cause. I have had severe pain since, issues with IC, urinary issues... Makes me think I'm again on to something. It always directs back to the cipro. I believe the fluoroquinilones should all be pulled. They are all bad drugs, given why so many have already been pulled from the shelves. I just read an article that details the dozens of that class of drugs that are no longer marketed, have been pulled in the US, etc. It amazes me more and more that the drug corps have such power and they get by with this!
http://en.wikipedia.org/wiki/Quinolone
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replied June 19th, 2013
Gall Bladder at 1% and specialists say its not that.....
My wife has been dealing with stomach problems for a very long time. It all started after we had our first duaghter (c section)4 years ago. It would come and go for awhile but the past year she has been chronic diarrhea. We have been to 3 specialists and had all the tests done. All were normal but the last test was a HidaScan and it came back with gall bladder at 1% function. So we went back to that doctor and she says no its not the gall bladder which doesnt make sense to me. She just referred us to another specialist. Im so frustrated that it seems like the run around. My wife recently started taking doses of fiber and that just ends up constipating her to where its extremely uncomfortable. In my opinion, if her gall bladder is at 1% why would they tell us its not that? My wife eats healthy and I just want her to get better. Its been so long since she has been normal and dont want it to start bringing her everyday mood down. Any info is appreciated.
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replied July 11th, 2013
My hida scan was in 2009 and the lady that did it told me I had a non-functioning gall bladder. My scan results and I went to the surgeon that my family doctor had set me up with and he proceeded to tell me that the results were inconclusive and that lots of people just change their diets and don't have any more gall bladder pain. (He also didnt believe me that ALL FOOD caused a bad reaction at that point and he insisted that it was just my size causing the problems.) So here I am all these years later with a still non-functioning gall bladder. Oh and the pain and symptoms? Yeah still happen all the time even though I've completely changed my diet and I eat little to no fat at all.
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replied September 11th, 2013
how do you cope with the pain
I am confused cause the doctors have been saying all kinds of different things .I have had this pain in my chest area and being nausea feeling of wanting to get sick .I have controlled that , I hate getting sick .I have this metalic taste in my mouth and these pain sessions would last all day at times ..I have noticedme putting on weight and bloating in my stomach .went too the ER the other day and they said my levels were good and they did not see nothing wrong and like usual .lol they gave me infection pills and some nausea meds.I went to today and got a ultrasound , and thats when they mentioned the HIDA scan to my doctor tomorrow..I just want to feel better andwake up feeling 100% have not felt this way in a long time
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replied September 11th, 2013
I am confused cause the doctors have been saying all kinds of different things .I have had this pain in my chest area and being nausea feeling of wanting to get sick .I have controlled that , I hate getting sick .I have this metalic taste in my mouth and these pain sessions would last all day at times ..I have noticedme putting on weight and bloating in my stomach .went too the ER the other day and they said my levels were good and they did not see nothing wrong and like usual .lol they gave me infection pills and some nausea meds.I went to today and got a ultrasound , and thats when they mentioned the HIDA scan to my doctor tomorrow..I just want to feel better andwake up feeling 100% have not felt this way in a long time
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replied December 2nd, 2013
Too Many Tests
I have had unbelievable pain episodes for a year and a half. The pain has been in my upper stomach and it hurts non-stop for over three hours at a time. I saw a gastroenterologist who performed an endoscopy. Nothing was abnormal. Next, I had a cat scan, ultrasound, MRI, and today, I had the HIDA scan. My gall bladder does not function. They told me at the hospital that the insurance company would probably want another ultrasound before gallbladder surgery. But, just as soon as those greedy little diggers approve the surgery, I'm having mine removed!
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replied December 13th, 2013
I know about the continous stabbing pain as I have it for about 2 months. I saw an internist and I had the HIDA which showed 17% rate. I got the result from the hospital.The doctor has not called me in a week. He is more worry ordering sleeping test, balance test, echo,etc and scheduled to see me in 40 days. My pain is greater day by day and I am afraid to eat. I wonder if I can get an appointment with a surgeon myself. I only have Medicare. I can not wait for the internist to remember me and see my test results. My pain does not wait.
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