Hello, My name is Veronika my question is, my niece was born 12 days ago (June 27) and there have been multiple tests done but still no answers. So I thought I could get online medical advice. My niece's (Charlet), has had jaundice since day 1, today her direct bilirubin is 2.0, this is the only abnormal test that came back. On day 1 and 3 the bilirubin was 5.9 along with elevated trigylcerides and elevated creatine, but now these two are normal. They did an ultrasound of the liver and kidney and both came back normal. We had the HIDA scan done yesterday and it shows that the radioactive tracer does not exit the liver into the gallbladder and it slowly enters the intestine, so no answers yet but the Dr. doesnt think it is Biliary Atresia, then what can it be? Her weight gain in normal, she was born 5.15lbs and today weights 6.9lbs, her stool is clay colored though. Not sure what this means. She is getting discharged from the hospital today, and will have a check up with the GI doctor in 2 weeks.
Any advice would be greatly appreciated.
Hello Dr. Nikola, Nikola is my father's name as well, also I see that you are Macedonian my family is Serbian, I will actually be going Yugo in 3 weeks. Thanks for your response to my issue. The normal level of direct bilirubin range from .00 to .03 mg/dl. Any advice would be appreciated!
If your niece's direct bilirubin level is 2.0 mg/dL that is too much. Obstruction of the bile duct is one of the possible reasons for this. Biliary atresia is one type of obstruction. Beside HIDA-scan bile ducts can be also visualized with intravenous cholecyctography (it is a contrast X-ray imaging method) and with ERCP (it is an endoscopic procedure). You should also check its liver enzymes (AST, ALT, alkal phosphatase, gamma-GT) to exclude any liver damage.
You need to consult some gastrointestinal neonatologist about this problem.