neuropathy, fibromyalgia, autonomic dysfunction...

I am a 34 year old female who until April 2010 had a relatively healthy life. In April I out of the blue had full body pain so bad that my husband had to help me walk. Within 2 days I had no feeling in my hands and feet. But my pain was still there. So far I have been diagnosed with small fiber neuropathy, fibromyalgia, autonomic dysfunction, hypermobility syndrome but the symptoms keep coming. I now have a rash that is not a rash according to the dermatologist. It is on both my arms and causes severe pain if touched. I have every test under the sun for all my symptoms from mris, ct scans, blood tests for autoimmune, viruses, vitamin deficiencies, and diabetes. The only things that come back off consistently is my sed and c-reactive blood tests, they are always elevated. The progression of my symptoms cost me my job, I can no longer drive, I fall often, I pass out on a regular basis and am getting very frustrated with hearing I don't know from the plethora of doctors I have seen for this. I now have a rheumatologist, 2 neurologists, cardiologist and nobody can give me an idea of what I am dealing with. I sleep very little due to pain. Does this sound familiar to anybody??? I could use some ideas on what to ask the doctors