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Conditions and Diseases > Muscular and Nerve Disorders Forum > neuromyotonia / isaac's syndrome
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Q: neuromyotonia / isaac's syndrome
asked by: angelsam75 on August 14th, 2009
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Hi All

I have been ill for nearly 3 yrs, i have posted on here a few times as wondered if i had MS or MG but my GP is sending me to a neuromuscular consultant in a few weeks time and the condition neuromyotonia or isaac's syndrome and some know it has been considered can anybody give me advise on this condition or anybody who has it i loved to meet others with it or think they may have it. I have sweats,muscle spasms when not on medication you can see the twitches under my skin sometimes,goosebumps in isolated areas of my body,chills and stinging stabbing pains on contraction of muscles which never relax,swallowing issues,weak voice as day goes on,lump in throat painful to swallow.

Thanks for advise Razz
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kdlee
replied on August 15th, 2009
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Honey I sent you a PM..I looked online at NORDS re this..Absolute pits this is happening to you..But am glad the finally have some answers..Now it's move forward one day at a time..hugs..kd
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