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neurocardiogenic syncope and very low b/p

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hi there
I do hope some one out there will be able to hep me. For the past 6 years I have been blacking out and the past year it has got worse, I have had nearly every test going under the sun and each time my condition gets worse. I have neurocardiogenic syncope attacks and my b/p has been known to drop to 58/32. I recently collapsed and was admitted for 5 days due to my very low b/p and I was also incontinent during my attack. The doctors now believe on top of everything else i have got they are testing me for paralistic epilepsy as well. I had fludrocortizoine the past and it didn't help now he has put me back on it and also given my midodrine which I have to take 3 times a day and check my b/p very hour afterwards as the side effects are very disturbing and can become severe and there's no guarantee (he said it MIGHT stop the attacks being so frequent but as my condition is gradually getting worse there's no guarantee they wont worsen in time.) plus eat loads of cherry tomatoes oranges and bananas and i've wore the tight underwear and stockings and nothing helped. I am now disabled and my husband is my full time carer, due to these acute attacks I have all the time. I have just had a mri scan and am awaiting my EEG, another tilt table test and also autonomic function study to be performed in the next few weeks. Plus 6 weeks ago they found ive got a small hole in my heart aswell. I just feel like theres no one i can talk to who understands and basically I dont know what to do anymore
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replied February 12th, 2012
My daughter and husband suffer with this same ailment. Pace maker was the answer for both of them for quality of life and the extreme cases that they are. My husband ha had his pace maker implant at age 46 and my daughter at age 14. My husband hasn't needed his toprol since and my daughter takes midodrine still but has true quality of life. My husband has never felt better. Change your doc to an arrhythmia specialist. Good luck . Crystal
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replied February 12th, 2012
Neuro cardiogenic syncope
My daughter and husband suffer with this same ailment. Pace maker was the answer for both of them for quality of life and the extreme cases that they are. My husband ha had his pace maker implant at age 46 and my daughter at age 14. My husband hasn't needed his toprol since and my daughter takes midodrine still but has true quality of life. My husband has never felt better. Change your doc to an arrhythmia specialist. Good luck . Crystal
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Did you find this post helpful?

replied February 12th, 2012
My daughter and husband suffer with this same ailment. Pace maker was the answer for both of them for quality of life and the extreme cases that they are. My husband ha had his pace maker implant at age 46 and my daughter at age 14. My husband hasn't needed his toprol since and my daughter takes midodrine still but has true quality of life. My husband has never felt better. Change your doc to an arrhythmia specialist. Good luck . Crystal
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