This has several doctors I have been to baffled! I am already blind. Apparently there is one other known individual (somewhere in North America - I am in Canada) with similar symptoms but the information was not kept. I have been tested for everything from the obvious to the bizarre. I thought if we could find this person or anyone else with these symptoms, we could compare notes, perhaps save time and trouble, maybe even hopefully, learn something definitive - 2 or more heads focused on the same thing are better than 1 maybe!
I am 64 and this only presented itself relatively recently - I have been blind since 2007 and I was an employed, healthy family man prior to this. The symptoms I have today are:
neon blue lights flashing in both eyes...intermittently ! Terrible balance....walk like a drunken sailor and do tire! Sitting too long cause pain in left leg and swelling and left leg is completely numb...hence the reeling and staggering!
I would like to find the individual mentioned above or anyone else with similar symptoms. If you know anyone showing these same symptoms, could you please ask them to get in touch with me via this forum. Thank you.