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Q: Negative lupus test
asked by: mc4314 on March 12th, 2009
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I am at my wits end. Symptoms: fevers, achy, fatigue, skin rashes, dizziness, inflammation, chest pain, swollen glands, low potassium, chronic UTI's, headaches. I also have trouble with cysts showing up in my breasts that start out appearing solid (resulting in expensive tests), then suddenly disappear. These symptoms come and go and don't respond to any medications the doctors have tried. I feel like my immune system is shot and always feel dehydrated and malnourished even though I eat well and drink mainly water.

Every doctor I've seen, based on reviewing my records and examining me, says lupus. But . . . the tests come back negative. I've also had my heart and kidneys checked, bone density, x-rays, tests for arthritis, etc. done. Everything comes back normal.

Can tests be wrong? It seems odd that the symptoms and flare-ups are so obvious, yet whatever the underlying problem is it doesn't show up on tests. Tests do show inflammation, elevated WBC, and low potassium - but no major culprit. Any ideas?
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zigemyster
replied on March 12th, 2009
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Have you seen a neurologist?
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mc4314
replied on March 12th, 2009
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Yes. He also thought lupus or arthritis. I was sent back to my regular doctor who ran the tests again and they still came back negative.
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zigemyster
replied on March 12th, 2009
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Did your neurologist rule out MS?
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mc4314
replied on March 12th, 2009
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No - that diagnosis wasn't even considered. Seven years ago my doctor did some blood work which indicated I was on the borderline for lupus and that arthritis was present, mainly effecting the chest wall, ribs, and sternum. The blood work done last week showed no indication of lupus or arthritis which leads me to wonder if the tests are all that accurate. I didn't think that lupus or arthritis come and go like that especially since I haven't been treated for either. Not sure if there are other illnesses that have similar symptoms that "fool" tests causing the fluctuation in test results.
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