This is my first stone and i'm 28 years old. I had the initial pain, It was on my right side and started as a dull ache(I took a pain pill right when I felt it) I never got to the point of rolling on the floor. But it hurt!! It would come and go and then I would get extremely nauseous, had bad cramping and just didn't feel good. Went to 2 different docs until they sent me to get a CT scan.... They found the kidney stone on my CT scan. It was 7mm x 3mm and located in the upper right pole of my right kidney. So they sent me to a urologist. He didn't think the kidney stone was the thing causing my pain. But he said we could do the lithotripsy or ureteroscopy. He left it up to me because he said he still didn't think this was it. I didn't know what to do..... I'm not the doc!!! I chose the lithotripsy because I figured I had to get rid of it eventually and it would be less invasive.
Well 2 weeks later my stone is still there and the same size. I have passed a little gravel. They did another CT scan because I was sent to the ER for high heart rate, mild fever, hard time breathing and mild cramping. The CT scan showed my stone was unchanged. It also showed I had enlarged lymph nodes, enlarged liver, and diverticulosis. My GP said all of this is no big deal and same with the ER doc.
My symptoms are nausea , cramping, leg pain, back pain, low fever, no appetite, chest pain, high heart rate. Maybe something else is wrong?? They've checked my urine and blood, I had a EKG, I had my iud removed. I'm not pregnant! I'm puzzled!! The urologist still doesn't think this is causing my pain and he said it is still to big to pass.
Now I have a ureteroscopy scheduled for the 27th and my doc says he is not very hopeful that he will be able to find the stone. If he can't find it he said I will have to have major surgery to have it removed. I don't know what to do!!!! PLEASE HELP!!
I also should mention that he said I could have a idafibular stenosis(sp). I don't even know what this is..... and I've been told my urologist is the best around by several other docs.
Renal infundibulum is the part within the kidney, that connects the renal calyx to the renal pelvis.
All the collecting ducts that drain the nephrons (functional unit of the kidney), drain into the renal calyx, and all renal calyces of a renal lobe drain into the renal pelvis via the infundibulum.
In your case, the renal stone is probably impacted within the renal calyx, and the associated injury, has caused fibrosis of the renal infundibulum. Normally a ureterorenoscopy is done to remove renal stones. . A narrow, flexible telescope is passed up through your bladder and ureter into the kidney to the location of the stone. A laser is attached to the telescope and beams from the laser are used to break up the stone. But in your case, the infundibular stenosis has probably reduced the access to the stone.
Percutaneous nephrolithotomy (PCNL) is the probable procedure, your doctor is intending for you. This procedure can be done by laprascopy or by open surgery. Here the kidney is accessed via a incision in the lower back, and the renal stone is removed. The procedure is done under general anesthesia and the duration of hospital stay is about 3-4 days.
Since the stone is within the renal calyx, it is not causing any obstruction of the urine flow, hence it should not be the cause of your symptoms.
Since you seem to have inflammed lymph nodes, diverticulosis and enlarged liver as shown by the CT, they could very well be the cause of your symptoms. Proper treatment with diet modification, laxatives and antibiotics to treat the other underlying causes might relieve your symptoms, and possibly postponing the need for your surgery.
You may consult with your Urologist and treating doctors and decide on further mode of therapy based on your clinical findings.
Is there anyway to tell if I have infundibular stenosis before I do the ureterorenoscopy?
Like I said before, I've already had lithotripsy and I don't want to have the ureterorenoscopy if its not necessary. I know the PCNL is a more invasive surgery, but I don't want to have to pay for it, or go through the pain of the ureterorenoscopy if it's not necessary.
Is there some kind of X-ray or CT scan my urologist can do to tell if I have this condition?
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