Hi All,

I so hope somebody can shed some light on what i am going through.

I am 34 and live in the UK, i am a single mum with 3 kids all under ten. I was untill Jan 2007 very fit and healthy i jogged up to 5 miles a day worked 30 hrs a week and brought up my family.
In Jan 2007 i started getting vision issues heavy limbs and unsteady gait i was refereed to a neuro who ordered MRI but by May i was so poorly i had had a bout of what i thought was flu achying muscles could not chew,lift my food to my mouth my muscle were so fatiuged this went on and off and when the results came back he could not find anything so i was discharged.

I have had to give up work as my leg weakness is so bad i use a wheelchair now, the drugs they tried lyrica,temazapam,requip all made it worse the only one that helped for the aching in my limbs was fenntanal patches 100 which i still take the others just made sensory sx that were not there before.
I have gotten worse and spend most of my time in bed and have to have carers come in and look after me and still noones knows what is wrong recently my eye has started to droop more my eyebrow right over my eye at times when i am tired and my right face is stiff and hard to move my jaw aches when i try and chew, i find it hard to swallow my voice gets weak at times.
Drs have said fibromyalgia maybe and someone said MG to me so i looked that up i would say MG rather then fibro but then i do get this deep aching that feels like it in my bones but not regular could it be some other neuromuscular disorder?
I am going to a new neuro on May the 7 the at St Georges in london a neuroscience hospital so am hoping i will find some answers as i am so frustrated about this and getting depressed.

any advise would be great