I have x-rays years ago where they write that my ligament nuchae is not ok. 1998, orthopaedist wrote diagnoses: enthesopatia levator scapula.
My muscle levator scapula is very hard and always swollen. What is worse, pains go to the face and to the right shoulder and right arm.
I have tried all possible therapies and none helps. Only tablets (with hydrochloride) for muscle spasm did help me from 1998-2000. After that nothing.
I have eyes pains (I have some very dry sinusitis), face pains and all right side. My face is swollen and looks strange. Whenever I have pains, my Urine is dark yellow. There are many bacterias but none antibiotic does help. Strange is also that I cant sneeze. All is blocked.
The neck MRI shows spondylarthrosis from C4-C7 and narrow space between C5-C6. 1996 I have got diagnosis: neuralgia suprascapularis.
Can somebody explain this connection because I am on the end with my nerves?
1. Ultra scan for shoulder joint,
2. Magnet therapy for muscle, levator scapula.
After that I have terrible pains: from suprascpaularis until right eye (like I have wire from there to the right eye).
I have pains in shoulder joint, bottom of levator scapula, right ear, right jaw, right bottom skull and right eye. There is nothing to help me, no tablets, nothing.
According to your photo neither your face is swollen nor you look strange.
Where are the bacteria located? In the nose or urine?
Have you ever been to ENT specialist about the nose and sinuses? So what, if you can't sneeze?
The connection between neuralgia suprascapularis and neck spondyloarthrosis is this one: Suprascapular nerve is a motor nerve that origins from a nerve trunk created by the 5th and 6th cervical nerve. Spondylotic changes of the cervical vertebral column (spurs, disk herniations) causes pressure on the 5th and 6th spinal nerves' roots. Pressure on nerves' roots causes spasms of the muscles innervated by the suprascapular nerve. These muscle spasms are very painful. Posterior roots of the spinal nerves are sensitive and any pressure on them causes pain.
PERIATRITIS HUMEROSCAPULARIS DEX means that there is an inflammation of the soft tissues (muscles, tendons and ligaments) around the right shoulder joint. This is also a painful condition.
SUBACROMIAL IMPINGMENT develops if either the rotator cuff (four muscle tendons that joins the humerus's head) is injured (strained) or some bone deformity (usually a bone spur) is present under the acromion. The rotator cuff and acromion will then rub against one another, causing a painful condition known as impingement. Each time the arm is raised there is a bit of rubbing on the tendons and the bursa between the tendons and the acromion, which may cause pain and inflammation.
The pain may be due to a "bursitis," or inflammation, of the bursa overlying the rotator cuff or a "tendinitis" of the cuff itself. In some circumstances, a partial tear of the rotator cuff may cause impingement pain.
If medicines and physical therapy don't help you can try a surgical operation named Arthroscopic Subacromial Decompression (ASD).
About first: you should see me with pains and no painkillers. I have two such a photos and wait to give somewhere where are people with similar pains like me.
Second: My bacteria's are in Urine. No antibiotics help, so I try to drink some special juice from wild strawberries (I was told in pharmacy about that).
Third: I was first time by one ENT with 16,5 years (in second class of Secondary school), when I have got sinusitis (two years went to the school by train and there has started all). In that time I didn't know that together with sinusitis there was atypical Trigeminal Neuralgia.
After finishing school I went to Belgrade (from Croatia) and was there 3 years. First two years I was working. With 21 years I have felt first sharp bite in my right eye. With 22 years I have started to study economics. My wish was to study foreign languages, but had to have basic two languages, I had only German. At University they have sent me to the hospital for one month, where I had punctuation of my sinusitis. Nothing was better, so they have sent me to the mountains (Zlatibor) for 3 weeks. It was a bit better (I have bad circulation in my spine and muscles).
I went back and have decided to leave the University.
With 23 years I went to the sea side to work. My health was a bit better (warmth without humidity is very good for me) and there I met young Dutch man. After season I have got job by Siemens, Erlangen in Germany. I went there in October 1969. As contract was one year to work in the production, I was there. They had big windows and they were always opened. It was terrible draft. One day in January 1970 I had terrible pains in the eyes, face and around my head, so I left the work on Friday (during the lunch time) and went to my room. My wish was to get asleep and feel no pains at all. There I took first 14 pills. They didn't help I went to the pharmacy, bought 10 more pills. After that I was "away". My neighbour has found me and I woke up in the hospital on Sunday at 12 o clock. It was nice 48 hours: I felt nothing. I was there one month. After that in Siemens Ordination they gave me Fango for all body and Infra red lamp to warm my entire spine. That was very good.
The really help came 1971, when I have visited Private Neurologist. I was always tired and was wondering why ENT doctors never help me? After 15 minutes talking with Neurologist, he gave me injection in the right neck side (bottom) and few minutes later my pains were over. All pressure in my eyes, face and around head was over. I was there looking at him, like he was a God! I remember only that he said: Trigeminal Neuralgia. Nothing was about sinusitis.
After 9 years of pains I felt relief (I was free) and have started to live as normal people live.
During 5 years happened many things, I went out and back to Germany and lost my Working Visa, because Siemens has paid (before) my scholarship.
1976 I came back to home and my life was over.
1977, I have started to work in tourism, on isle of Hvar. There was windy (maestral), I had pains again and had to leave in August. Doctor in Split told me, I have to go to the mountains because have bad circulation. I went direct to Austria, took sleeping pills and ended in the hospital again.
From 1978 was working in tourism, this time in Porec, after came to Bohinj, December 1978 (first time). In the summer went to Dugi Otok for Yugotours and from there back to Bohinj, December 1979 and was in the same company until May 2001.
1985 and 1986 was one week (each time) where doctor took out a lot of dry mucus from my sinus holes, but pains were still there (I had eyes pains without pause).
1989 I have sent five diagnosis from Crikvenica to Zurich, Switzerland what should I do, nobody helps me. They wrote back, I have to find the cause.
1989 I have started with Thyroid and there was wrong. I had Hypotireosis.
1990 was the first time that in my head came Trigeminal Neuralgia and has visited Neurologist. She said that is not TN. She didn't know there is ATN. I had to study (since 2 years), why I have TN and not the same pains as TN are. Searching all over I came to ATN that hurts all the time. In fact the first diagnosis about TN, 1 and 2, without to ask him, gave me ENT doctor in the year 1994, but private at home. I was his patient in Mladika (for the Army) and he has operated my Septi Nasi Deviation. After operation it was much worse.
Later for sinusitis: the last ENT doctor (2001) told me that all my pains are from neck muscles. Many doctors told me that. Two of them are from Sarajevo (married), they have lived and worked in China and Thailand (studying acupuncture) told me, all is from Suprascapularis. Also Neurologist from Russia, who is chiropractor and bioenergetics, told the same. I believed him but my best doctor here went to Moscow after 2 years (1999)
It is true that about two years i had muscle relaxant pills. After that was over.
Muscle pains started 1992, after one year taking pills from UK (with hydrochloride). Those pills were for decongestion but were good for muscles as well.
Now I am going to this 2 therapies and don't know what to do if there is no help. All I want is get asleep for ever.
I don't know the name of the neurologist;
I don't know what he gave me then;
I even don't know is he alive or not?
I am in Slovenia and that was in Erlangen, Germany, 1971. 37 years ago.
What I have tried: after New Year 2008, over one neurosurgeon in Erlangen to get papers from the Hospital (for neurology) there, but there was nothing. He is very kind but I am not sure was it Psychiatric Clinic or Neurology? Maybe I should ask for both Clinics?
Now would be too much to ask him again. It was long time ago and papers are going to archive. I am not sure how long medical documents should be saved?
Before I was in Crikvenica, I have visited the best ENT doctor in Zagreb, who was plastic surgeon for the nose and had ordination in London. He wrote only, I have rhinitis vasomotoria. That is nothing. Later, 1998 Neurologist from Moscow told me, that vasomotoria means it is running from the nose and not other way around: very dry mucus membrane.
Now, I can do nothing more, than I did. All I can is to study all kinds of diseases, connected with me (and pray to die soon).
The thing that struck me about your story is that you keep going to doctors, getting conflicting diagnoses, procedures, and medications. If you go to the car mechanic, he is always going to find some problem with your car, even if you don't have one.
The other thing that struck me from your story is that you are self-medicating. You are taking whatever pills you think you need... the decongestants are not supposed to be used for more than 7 days at a time. The main ingredient in these is psudoephedrine and dxm, both of which are stimulants - like speed.
Continuous abuse of stimulants will cause muscle pain, stress, dehydration, breathing problems, cardiovascular problems, and mood disorders like you cannot imagine. Ever read the warnings on those pills you take?
It sounds to me like you're a hypochondriac, and the best thing to do may be to just stop taking medications and getting medical procedures, and instead try find some natural solutions to your problems.
Change your lifestyle if you have to. Quit your job if it's causing you that much stress. Go hiking. Take some action that improves your life without drugs or surgery. Probably the bioenergetic guys may have told you the same thing.
I really do hope that you find a solution that works for you!
"My wish was to get asleep and feel no pains at all. There I took first 14 pills. They didn't help I went to the pharmacy, bought 10 more pills. After that I was "away".
Your cure may be your curse. Sounds like your mystery illness may be a drug problem. Get off the pills.
I know that sometimes life seems unbearable, but we are never handed more than we can handle. If you find reasons to be un-happy, you will find them. IF you look for things to be grateful for, you will find them as well...
I do understand what it is like to live in pain, and i wish that you will find joy and relief in your life.
About drugs: I take them less than before. I don't take something that doesn't help me.
I don't work since May 2001. After my pains came to the top of the head, I had nothing more to help me and had to leave the job. Because I left alone, there was nothing from the Employment Office. No money. After one year (May 1st, 2002) I have got Social Help, until today.
Neuralgias are the worst pains, but none doctor will write you, that you have some serious illness. They even don't know what means to have ATN.
I was in German Esoteric Forum in the first half of 2007 and wrote there about ATN. Only one woman wrote about the same pains as I have. I have saved this mail (letter). She has suffered a lot, going from one doctor to another until her Dentist and Chiropractor (I was by Chiropractors 6 years) didn't find the cause. It was in the bottom of the spine in connection with lower jaw.
If you read about ATN, it is called "SUICIDE DISEASE". I have also book from one German Doctor (working in Pain centre, Frankfurt): "Zusammen gegen die Schmerzen" where he writes that more people with typical TN try suicide. That means, I am not alone. For people trying suicide they write that is because of depression. I have no depression, I have steady pains and nothing to help me. That is big difference.
This leads me to doubt the existence of this disease. In the west names are given to problems whose mechanisms are still not understood by science, and medications are prescribed without the slightest clue of the mechanics of the actual problem. (For example: "OCD" or "Bipolar Disorders".)
To contrast, in the East, people pay their doctor to not get sick, and don't pay him if they get sick. If we take the time to energize our bodies, to remove toxins from our system, and to relax out mind, then our bodies are capable of incredible regeneration.
"Anxiety sometimes is associated with chronic facial pain, and it may or may not be associated with a specific major life change, for example illness, death, or acute stress."
Principles and Practice of Pain Medicine
By Carol A. Warfield, Zahid H. Bajwa
What is the longest that you have gone without taking any medication?
Do you exercise?
On a lighter note, what are some things that you enjoy?
Nature, particularly the seas and mountains have an incredible influence on my state of mind.
My pains have started with 16.5 years. With 25 years I have got a help from Neurologist in Germany. After coming home, maybe one year I was without medications.
After that they gave me lots of drops for Rhinitis. I think now, that without medication I was 16,5 years, plus about 7 years (between my 25th and 32nd year). After that I took so long Aspirin as they did help me. My doctor told, I am going for dialysis, if I continue like that. To my luck, they didn't help me anymore.
After that I took Ketonal Forte and other pills.
Yesterday I took again Sirdalud 4mg and Tramadol 500 and it was terrible more than 3 hours. I used to take them from 1998-2000. It is true I had to wait and be in bed for 3 hours, but after I was good. My colleague was working in the morning and I in the afternoon.
Beside all, with 33 years I have begun to take sleeping pills. I was afraid for my mother that she is going to die, so I have started to take one sleeping pill per night. Until today! My mother died 1990, but after that I can't sleep because of the pains.
Now I take 75 mg of hormone for thyroid in the morning, during the day special B-Vitamin for neck muscles and nerves and in the evening: 1.5 Rivotril (for TN), 1 Sanval (for sleeping) and 1 Naproxen for pains.
From end of 2005 till April 2008 I took Galsud from England, 2 x a day. They were good for decongestion and muscles. Now they are no more there. I have got them from friends in London (2.99 GBP for one package).
Now, I take also some minerals.
I don't believe I will ever live without pills.
About Social Help: I was working here over 21 years (+ 2 years in Croatia) and have right for something. Even some people, they have never worked they get Social Help. I am looser here and not the government. It is not my fault that I have pains. From other side, I think that is very easy to help me.
I have moderate broad-based disk protrusion with irregular border, moderate effacement of ventral cord and moderate narrowing of left neural foramen. The exiting c7 nerve root is comppromised as a result. A sequestered fragment is at the mid body of c7. I have numbness and pain radiating down my arms and hands. There are many other buldging disks in cervical and lumber back. I have tried spinal decompression and many therapies. Do you have any suggestions?
It is true that I have damaged all those neck discs, but don't have much pains. I have pains in the muscle levator scapula where nobody knows what that is.
I had twice magnet therapy for all my spine and it did help me a lot. Magnet therapy is good for neck as well. Try to do that and you will see.
I was here before and you gave me kind answer. The problem is, I am not sure that my pains are from that area, because I have big problems with my digestion. Whenever I eat cooked, spicy, something hard, I have abdomen pains, there is full of air and it looks like I have big stomach. What is more important, at the same time I have eye ball sharp pains, jaw bone pains as also pains behind right ear. There is acupuncture point for Liver Meridian. Since longer time I have few benign cysts on the liver.
When I was 23 years old my doctor didn't want to give me health certificate for a job (my urine had too many bacteriaâs). After I told him, that the job is in abroad, he gave me that certificate.
The next time, with 33 years I have started to work in tourism on the coast in C. and again I had problems with doctor (female, young) about certificate. After 4 treatments with antibiotics it didn't work and I had to find solution very quick and I did: my friend there, female, young and healthy gave me her urine, I gave it to my doctor and she wrote the sooo wanted certificate.
Now, the question:
I know that there behind right ear is also point for the muscles. It hurts very much and from there sharp pain goes right into right eye ball, like a knife bite.
In one Forum somebody wrote that he has eyes pains because of the liver.
I have read in Health Journal from C. that liver (if is bigger than normal) can cause pains on the shoulder joint as also on the shoulder blade muscle. I have both pains.
The very new X-rays from my neck show that there are squeezed C2/C3 - for sinusitis (beside previous neck MRI, where are C5/C6 tighten).
From bacteriaâs I have a lot Echerchia Coli but nothing helps: neither water drinking nor antibiotics.
What should I do?
i am in the same position as you dear. i am going to physical therapy 3 times weekly. also try a muscle relaxer and this will help you sleep and relax the muscles. AT pain, scapula pain, sternocleidamastoid pain and neck pain is horrible as it DOES affect the cranium regions. mine is all one the left side - yours the right but do not give up and try the relaxers. only half at a time though. you need sympathy not a doctor telling you are a hypochondriac and that doctor cannot spell. haha. Heather White. Florida.
i have myalgia and myotosis with nerve damage lower limb pelvic area, its been a year and its getting very bad worsens everyday, it started with one butt cheek and lower back thru both legs, very non stop pain down to my toes i feel like i am on fire , i know i dont wont to live this life like this waking up and not able to walk and tear up thru out the day from the pain my legs feel like someones wraping plasting tightly around them, ohio here, thanks for your time,, 33 years old plain city,ohio
I like you heather suffer left sided pain exactly as you mention except I also have a swelling in the levator just below the base of my skull. I cant turn my head fully to the left and suffer shoulder and arm pain. All of this began with a vist to the chiropractor,I was then sent for brain scans blood tests neuros stomache people nearly everyone you can think of in the medical field to still get no answers.I can only say it makes you worse your anxiety grows you are scared and worried after being plunged into what can only be described as a nightmare. My problem has been ongoing for 3 years but I have found some way to cope and hope I get answers soon I dont take drugs for it only when it is severe and then its only nsaids and paracetamol which dont help much to be honest.I see the poor person above going into so much detail desperate for someone to help because there is a problem,I just dont think there all happening at once I think you do have a genuine problem and it has freaked you out I no I was exactly the same. So my advice would be to work on calming your mind,my own doctor told me the same and I told him to F***k O** and as much as it pains me to say he was right once I put everything into perspective and calmed down I found that there was only one problem and it was the original one I started with it took me 18 months to do this so it is no quick fix but just try taking one day at a time.
Hello Dr. Nikola,
I am here again and have more problems than before.
I didn't write here before that there is something swollen between levator scapula muscle and occipital bone. Head CT scan from October 2002 has shown that there is TICKENING of OCCIPITAL BONE. Before that, 2002 X-rays has shown, there is 3 cm big AREAL SCLEROSIS. I remember how nurse there looked at me very strange: from where do I have it; how long; was I born with that, ect. From 2007 I was in Swiss Health Forum and they told me, to look how is with my ATLAS? It is C1, vertebra. 2009 I asked my doctor to send me for examination of my Atlas? He told, I had so many X-rays and there is also ATLAS PROFILAX. As I have saved all my documents from doctors, I went again to the same nurse for radiation and have shown her the paper from 2002 and told her, I want to see, how is with my ATLAS. She told me that on my paper is just Atlas, C1, black on white. That was it.
Since then I had other medical examinations: there is CALCINATION on the pineal gland (epiphysis?); 3 cm big LESION on the bottom of the skull - both are from Head CT scan, October 2007. November 2009 I was by Nephrologist and he wrote that I have chronic kidney inflammation. In that time my Kreatin was just on the limit. Later, Kreatin became lower. From February 2010 I went to the Pain Centre and have got few blockades of my Trigeminal Nerve, 2. Nothing was better.
March 2010, X-rays from the whole spine show that I have 3 mm big CALCINATION on LIGAMENT NUCHAE on the area of C6 (the same was February 1993), but all that means nothing to doctors.
CT scan from Sinusitis (May 2010) has shown that my right lower mucus membrane is tick (swollen?).
In August 2010 I have got MOUTH ULCER: since then I went to ENT doctor because of SINUSITIS and MOUTH ULCER. For sinusitis she wrote diagnosis: Rhinosinusitis chr. hyperplastica, but gave me only Spray. Sprays have dried my mucus membrane all the years before to the worse. For mouth ulcer she gave me Gentiano violet (about 2,5 months) there and with me to the home. She gave me also other therapy. Now, I still have the same pains and went again to her to give me this violet.
My pains go from the right side of the ear to the jaw bone (terrible pain) direct to the eyes balls. I have feeling, my eyes will spring out. At the same time, I am very sleepy and must lie to the bed so long, as the pains donât go away. From end of 2005 until February 2011 I have bought special pills for sinusitis over friends in England. They are just for SINUSITIS CATARRH, as I have diagnosis from Crikvenica, October 1986. Those pills have ephedrine hydrochloride (hydrochloride is for Myalgia, have seen in old Encyclopaedia). I took two pills per day and it was better. Usually I should take four pills per day. Since February 2011 is possible to buy only 12 pills per month. I was accused by my doctors (2010) that my high blood pressure is because of those pills. That is not true: my blood pressure is from the FEAR: I am afraid because I canât live like that. If nobody helps me, I donât know what to do?
Because my pains change me very much (terrible pressure into jaw bones and deep into eyes), I have started to do my own photos. There is big difference between me with pains and without pains.
If nothing else, I will order to give all my photos on my grave, if nobody helps me and something happens to me.