Age-19
Lives in NC
My Story-Please Help
Okay so instead of just giving you a list of symptoms i decided to give a story of everything that happened and everything that has been done since then, as well as the changes. etc..
Okay so it all started back in June, 2009. It was literally the end of my senior year, i wasnt a perfect student by any means, i did a few honors classes hear and there, but still not straight A's, or top of my class or anything like that. But as far as athletics went i was always doing something. Gym an hour or so everyday, basketball atleast 30 minutes or more a day, i was on the varsity swim team ( swam 50, 100, 200 free, and the medley relay), went camping all the time, as well as hiking, just always being outdoors. And towards the end of my senior year i decided i wanted to go train in Vegas with my uncle who was good friends with Mark Philipi. Who had been on worlds strongest man a couple times, and was the world champion power lifter. So i thought that as an advantage to learn some new workouts and really get into the best shape i possibly could.
So the weekend of my graduation i went to Vegas, and trained..Hard. and learned a lot of new things, and i got back about two weeks later on June 25th, 2009. I just remember my friend because i was training him at the time. We only got to work out one time before everything started happening. Which was a week after i got back. I remember it just hit me one day, i was really dissorented and dizzy and felt like i was going to throw up, as well as really weak> And i had to pick my uncle up from the gym and just couldnt even drive home because i was to scarred to drive, it seemed like my head was just everywhere and i couldnt focus on the road. Well the nautiouness went away. But the fatigue stayed, i remember trying to work out a couple times still and it just wouldnt happen, once with my uncle and i could only go for like 10 minutes, then another with brandon, and i couldnt even last on the treadmill, when i could usually go non stop forever, i couldnt go longer than 5 minutes, and trying flys were increadibly painful. But anyways...after that i started getting increadible head pains and pressure. Made me feel like i was going crazy, as well my ears started feeling clogged and were now inable to pop whatsoever. My family doctor just gave me a week of antibiotics but nothing happened. This was around August at this time. OKay at this time as well i started dating, but her partll come in later. If what she does helps. but around the end of August someone mentions Lyme disease and we test for that and the test is possitive, but it was just the antibody test. And my family doctor just gave me 3 weeks of amoxacilin. And again nothing. Okay at this point my focus isnt the greatest. Im at AB Tech and it gets to the point to where i cant study period, or focus in class, and im failing. Like i said im not a straight A student but i was still better than that. So i had to take X grades on all my classes so i could later redo them and not take the GPA loss. I then later went on to a nuerologist who did nothing and then referred me to a doctor in Asheville NC. Who then procceeded to do many tests for AIDs, HIV, Hepititis, STDs which it wasnt any of those. He did a Lyme Titer test which was negative. One test he did was my liver function, which at the time was insanely high, i think the number was 450, and it was supposed to be around 60. but it then later tapered back to normal. Reason for that was never found. He ran a few stool samples. Nothing abnormal. Blood samples. Nothing. MRI on my head for presure, nothing but i do have a deviated septum. So we decided to pursue that in some hope maybe its a sinus problem. So December 2009 I decided to pursue that and we saw a doctor in Fletcher NC and he tried a few simple things like nasonex first with nothing good happening. So we did the septoplasty on January 21st 2010. Insantly afterword i got Pnumonia somehow, so i was hospitalized with that. Took two hospital visits, first time xray showed nothing and they just gave me anxiety meds, second time was worse and they gave me a ct scan which finally revieled it, so i got antibiotics for that and was better from that soon after atleast. And honestly was probably the best i had felt throughout the whole disease suprisingly, i somewhat felt like me again, but that faded with the antibiotics. after that we didnt pursue anyone for a while but at the beggining of April my girlfriend gave me mono, they thought it was baterial and gave me antibiotics for it, okay well obviously wasnt....well i suffered a couple bad allergic reactions at this time as well (tree nuts), okay then i did get a bacterial infection and had to have more antibiotics for that. At this time its the middle of May, okay as well ive been extremely stressed as my girlfriend of the past year has been cheating on me and i just found out and shes stringing me along. So im not sleeping any as well. I take massive amounts of showers at this point in time as its the only thing that relaxes me and i was hoping itd help me sleep but i never did for like a week or so. And then my stomach starts messing up at this point. This is where it really starts getting bad. I start getting bloated and have serious abdominal pains. it makes me even more fatigues, and i can feel things starting to happen in other areas. I feel my heart rate going up. My eyes start feeling more sensative, and my brain feels like focus is just going away and like im losing touch with reality. Well still my girlfriend is stressing me out and June 8th my grandma passes away. So that adds to it and im just a mess at that point. i go that entire month stressing out and around june 18 my doctor gives me tetracycline which feels like it does a little bit, i got some energy from it it felt like atleast. But at the end of that on July 4th my friend flipped my car with me in it, and my supply of tetracycline ran out..So this entire 2 month period ive been stressed, had mono, been on 3 different antibiotics, as well as had some disease i dont know what it is, my immune system is dead it seems. Okay so i get to where i cant walk faster than a really slow walk because my hearts just racing, my eyes are senstive to light, my stomach hurts, and it feels hard to breathe as well. I go like this for a while. I go to Carolina gastro and get an endocopy and colonostopy, nothing came up but a possibilty of celiac. Well i went gluten free for what seems like forever. This is September 2010 by this point. well we didnt do much after that, we went to Florida around December 10th 2010 just to have a change of scenery to see if that helped at all and it didnt, got retested for STDs just to make sure, and nothing...They gave me tetracycline again and i felt like i was a little better again. But could just be me having the placebo effect im not sure. At this time i could barely drive a car ill say, my focus was barely there and id only drive to get things i needed and never drive further than a few miles. Just to scarred to, id lose focus to fast. Well beggining of January i remember the day because a guy dropped off basketballl cards for me, and i remember going outside and getting them and coming back and i couldnt remember Kobe Bryants name or any of my favorite players, it was like i lost all my train of thought and everything. And it was that day i completely stopped driving. It was impossible, my focus was gone, my brain felt like it was bound in platic wrap and i just couldnt think or focus at all. Okay so then i start seeing 2 doctors. One is an alternative medicine guy. Dr has me go Milk free as well remember im still gluten free, so im dairy free for a while and nothing comes of that. Hes main pursuits were POTS, Lyme disease (again), Fatigue, and allergies. Nothings from any of those. He stopped messaging me after that. Dr ran many panels. Toxic Metals, vitamin deficiancy, adrenal function, stool samples. All normal. Okay so this goes for a while and im slowly losing sanity, i can barely walk up stairs, i have no energy, i stopped playing guitar because i couldnt strum fast at all and my fingers got tired fast. my stomach hurts all the time, i get this pain in my right lung especially when eating and food passes by it, my brain litterally feels like its on fire, and my eyes just hurt all the time. I feel like im losing touch with reality. I remember walking up the street to my friends house because i had to return a game i had borrowed way back, and just how weird it was, nothing felt real and it was so hard to focus on my surroundings, and i had to keep covering one eye because it hurt somewhat otherwise. WEll its still getting worse. Were now thinking systemic fungal infection which im not on Diflucan for, it seemed to have helped for a few weeks, than just stopped, maybe i cought something else that interfeered, i have no clue. Because i even drove to my friends house down the street. Keep in mind first time i have driven in 5 months at this point May 2011, and even through the football for a bit. But something happened, and its worse than it ever was now, my brain feels weirder than ever, and focus even less than ever. Afraid to go to sleep now as im not sure whatll happen. IM sure i left out a couple things but thats the best i could think of right now. I know for a while i couldnt sleep on my right side as itd give me this paralised feeling when i sleep and id be in this half sleep state where i was kind of consious but couldnt move or see. So i stopped sleeping on my right side. As well as Prednisone made it worse which i forgot to include. Hope this helps, please tell me if you can help thank you. Ive been searching for a while and really need to get back on my feet and get back to school.
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