Muscle Twitching (all over body), Headache, Ear Pressure/Discomfort, Ear Ringing (Tinnitus)
About three months ago I woke up with a headache that was very unusual. Unlike the “usual” sinus type headaches that I get from time to time in the front of my head, this one was at the top of my head (top/rear). I understand this to be a Tension Headache - feels like someone is squeezing on my brain. A few days later a few other symptoms began - pressure/fullness/discomfort in both of my ears. Feels like I have cotton balls shoved into my ears. At the same time I began to experience ringing (tinnitus) in both ears as well as sensitivity to loud noises. About three weeks later I began to have muscle twitching all over my body. The twitching has only worsened in the past several weeks. The headaches, ear discomfort, and tinnitus are also still there with no signs of letup. In addition, I sometimes get these strange feelings between the top of my head and ear (hard to describe - almost like an insect is walking on my scalp - but nothing is obviously there.)
I started with my general doctor (received a Z-Pack - my suggestion) thinking it was perhaps some kind of sinus infection. No success. Then went to an ear specialist - hearing was tested, which was fine. Doctor found nothing unusual. Said it could be allergies - gave me some Nasonex samples. No success. Then went to a Neurologist - he gave me an old school sleep medication (I forget the name - it is supposed to help relieve tension headaches.) I did not tolerate the medicine well so stopped taking it. Had an MRI of my brain - no abnormalities found. Lyme test (upon my request), Western Blot only - test came back negative (I was reactive to only one IgM band.) Neurologist did not do a nerve study but did check to see if I had any weakness - he did not detect any and I have not noticed any so he does not think ALS is likely. He was a little puzzled by the other head symptoms.
Here is where I need your help, please. I’m not asking for an online diagnosis but I’d like some thoughts as to where to go from here. When I query on these symptoms, I get a lot of Lyme hits but I also get a lot of neurological hits (ALS, Fibromyalgia, etc.) because of the muscle twitching.
Should I pursue the infectious disease route (perhaps a bacteria like Lyme or virus such as chronic viral meningitis has taken residence in my brain and won’t get out) or does this sound more neurological in nature. So should I see a ‘lyme literate’ (as they call it) infectious disease specialist or another neurologist. Any help or insight would be greatly appreciated.