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Muscle Twitching, Aches, Shooting pains and Dull aches in head.

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Hello,

If anyone relates or has any advice on what I'm about to write I'd be hugely grateful because my problem has gone on for so long now and my GP can't seem to diagnose me.

In December I had an hour spell of a pins and needles sensation on the top left hand side of my head, there was no pain only me getting a little worked up over what was happening as it was a sensation I had never felt before. I had two of these spells so I went to the doctor who told me to keep an eye on it as there was no immediate reason for there occurrence.

A week later I started getting short sharp shooting pains all over my head that lasted no longer than a second but occurred frequently through the days. I went to a Doctor in my home town (as it was the xmas break) who told me to keep an eye on it until after xmas period and return to my GP in the town where I am now living. The shooting pains continued and also began to feel very tired and my sleeping became very disrupted... I also started to get muscle aches and pains for no reasons that related to exercise or any reason I could think of.

Once I got back to where I live now after the xmas break my doctor made me have a blood test which came back normal and other than a slightly low calcium level so I started to take supplements. At this point my sleep was very disrupted, shooting pains in my head were often and my legs ached pretty much all day. Around the end of January the shooting pains eased off and so did the muscle aches but I then gained muscle twitches that occur all over my body and again happen for no reason I can think of.

Another two doctor trips and they made me do a thyroid blood test which again came back normal and I'm still no closer to a diagnosis. I feel I should have been referred weeks ago but the doctors I see show no concern for my symptoms other than to keep an eye on them. Through searching the internet all I can relate my symptoms to are anxiety (although I'm worried about nothing other than what's wrong with me), MS, ALS and Fibromyalgia. I have raised my concerns about these illness' with the various GPs and they dismiss them because of slight variations in symptoms.

I feel it has gone on long enough and feel in the dark; I don't know why I can't be diagnosed or why they don't refer me when my symptoms have been ongoing for three months now.

Any help or opinions would be really appreciated, so please respond if you can relate or have had similar symptoms.
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First Helper germany37
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replied February 23rd, 2012
I am experiencing the same symptoms, along with the symptoms you have I get:
-Chest Pain (Both Sides)
-Pain around the abdominal area
-Heart Burn
-Balance problems
-Dizziness (Whenever I walk I feel like I am going to fall over)
-Strong Heart Beat
-And a few others

I am in the same sort of situation as you.. I don't know what to do, it's affecting my life a lot.

Hope you recover quickly... Smile

Do you relate to any of the other symptoms I have had?
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replied February 24th, 2012
Hey,

I've had spells of balance problems and abdominal pains but not for a month or so now. Have you had multiple trips to the doctor also? I should probably add I'm a 21 year old male student, never really get ill and wouldn't say that I'm 'anxious' or 'worried' about what's going on with me anymore... I only say this because I'm questioning whether it is anxiety related. Do you recon you can worry subconsciously?

I'm scheduled to go back to the Doctor next Thursday and will ask to be referred unless he can diagnose me.

How long has this been going on for you? Have you got any gut feelings to what is going on after doing your own research?
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replied March 13th, 2012
I just thought I'd update this in case anyone was interested.

When I went back to my GP he said I should be referred to a neurologist and I had to wait just over a week for my appointment which was today.

I was nervous but explained my situation and he did some physical tests and told me I had benign fasciculation syndrome. He told me that I more than likely had a virus when my trouble started and this is normally how BFS starts. I told him about my concerns about MS and ALS and he said the fact that I have been feeling better as of late rules it out. He said I don't need an EMG or scan because I feel I'm on the mend from all my other symptoms and my physical exam was completely normal. I am relieved but need to figure out a way to not worry about all these twitches that continue all over my body. I hope I'm not stuck with this for years but am considering today a small victory.
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replied March 14th, 2012
Hey there.. I am unsure of your age, but I'm glad I stumbled upon this. I, too, had the same issues. For 5 years. No one could tell me anything. I went to doctor after doctor, along with numerous specialists, and prescribed several different medications to no avail. I finally decided it was just something I had to lern to live with. I felt I was going crazy. It affected my job, my marriage, my children and everything else I once enjoyed. I became depressed and hopeless. 5 months ago, I began a search for answers. There had to be one, somewhere. I have chronic migraines,cannot sleep, muscle aches all over, no energy, can't seem to think straight, anxiety/panic attacks, tremors, ect.. 2 months ago, I pleaded with my PCP to refer me to a rheumatologists/neurologists. I have since been diagnosed with Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FMS). Both of which have no formal tests to be given to diagnose, hence, having to rule out everything that can be tested. I have been on medication for 2 months and I finally feel "normal" again.. I would suggest that you Google "Fibromyalgia and CFS Symptoms Checklist", print it out (about 5 pages) take the quiz then make an appointment to see your doctor. I gave me my life back! I do hope this helps you. Good luck and well wishes!
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Users who thank germany37 for this post: jcblk 

replied October 21st, 2012
germany37---curious what medications you were put on for fibromyalgia and chronic fatigue syndrome??
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replied October 21st, 2012
fibromyalgia and chronic fatigue syndrome medication?
germany37---curious what medications you were put on for fibromyalgia and chronic fatigue syndrome??
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replied October 21st, 2012
Vtmom.. Currently, I take 20mgs of Prozac in the AM (as low dosages actually treat muscle pain over time.. Lyrica works better, but the weight gain is horrible and very few insurance companies pay enough to make it affordable, without having a generic.. Although, they say there will be a generic by 2013) At night, I take 100mgs Topomax, 30mgs Flexeril and 50-150mgs Tramadol, as needed. I also take xanax to help when I have trouble sleeping and on really bad nights, I take Xyrem. Xyrem is not prescribed very much, anymore.. You can google it and see why, but for me, it made me feel human again! I sure hope this helps you! I have a follow-up tomorrow. Haven't had to change neds since January, but needing to increase the dosages and/or change some around.. But, it's been a wonderful 9 months!
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