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Conditions and Diseases > Tuberculosis Forum > misreading TB tests ?
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Q: misreading TB tests ?
asked by: curediwish on September 14th, 2008
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Hi
I took my son to get a TB test because I had it when I was pregnant with him and though he was pretty healthy (just jaundiced) we found he has epilepsy recently and he had to be intubated for cervical lymphadenitis as a four year old.

He is now an adult and he has focal epilepsy of the parietal lobe that is always active. He rarely has full blown grand mal seizures, but is ADHD all the time. He also has some bad degerative disease in his spine and scoliosis now.

Anyway, he was coughing and having night sweats and chills and got a TB test recently on a Wednesday and they read it on a Friday. It was swollen in a large area, just beginning to turn red in the middle. Anyway, she felt deep in the muscle for a knot, though she injected very very close to the top of the skin. His reaction was a burn type looking reaction where the top of the skin was stiff and bubbled.

Well, the next day (72 hours), it looked like a full blown positive TB test. So I took him to the ER/urgent care and the doc happily checked it by pinchig the top layer of skin together where it was red and stiff and slightly raised, like a coin, said it was not stiff enough.

All docs said the redness (about 15 mm) was not important at all, it was just an allergic reaction to some other ingredient. How do they know this? It looks like all the other pictures of a postive reaction.

I've read some stuff at the NIH database that talks about redness not meaning a thing with TB tests, but I also feel that it is possible that in an effort to save money, people are not being trained to properly read TB tests. I used to get one every year as a child in school, because I'm old. Mine went away within three days. Anyone who showed up with any redness was singled out as a positive.

I also was trained as a medical assistant to read them, at least a little bit, and to give them, and that the reaction depends on the depth of the injection and you need to wait up to 72 hours. I wasn't sure an extremely superficial injection was all that great, but more to the superficial side but certainly not in the first few layers of skin.

My son still has this huge lump, we asked when it should go away. They keep saying its nothing to worry about. We would have read it as a positive, but maybe things have changed. Maybe it's all to save the government money in treating those with no money, I don't know. What do you think? The bad thing is that he has no insurance and can't get a chest xray to determine if there was a mistake in reading it.
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rooted
replied on September 15th, 2008
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The visual check certainly does leave room for error...and is subjective in nature. If you suspect that your son may be carrying TB, why can't he receive further tests? What's in the way?
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curediwish
replied on September 16th, 2008
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No insurance not eligible for medicaid because he is a twenty year old male, despite he has no job now, he has zero income and epilepsy and syncope. In our state, we don't have any health care for anyone but pregnant couples or people with children. then the whole family gets it. But because he is a single man, even though he requires regular health care for the rest of his life and has no good diagnosis or treatment for his heart, he can't receive any health care. Maybe the upcoming elections will change things. I'm about ready to tell him to go out and find a girl and get her pregnant. Great solution, huh? And we wonder why there is so much teen pregnancy.

Well, there is no program to help him get a job, disability turned him down in court, and the epilepsy foundation said there is a real bias against epilepsy by social security. It is almost impossible to get if you have epilepsy, no matter how much capacity you lose.

I can only take him to the ER and try to get a chest xray. If the health dept would have properly dx him, he would have been able to get treatment and have his liver checked. Its disgraceful.
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rooted
replied on September 16th, 2008
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I'd suggest that you search for a local sliding scale clinic or free medical clinic.

The US Department of Health and Human Services has a medical directory.

And you can also search for the names and addresses of free medical clinics on this site.

If you need help, please let me know.
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rhysjanus
replied on January 14th, 2009
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I'd just like to point out that the TB injection is supposed to be superficial. Just under the topmost layers of skin. The serum should not be placed in the fatty tissues of the body, but between the top few layers of skin.

The medical community calls that solidness of a positive result induration. Currently (2008 and 09) you TB history, likelihood of exposure and size of that induration are all taken into account when determining whether a result is positive or not.

I am writing this as a nurse who just recently had a positive skin test, negative x-ray, and a positive quantiferon gold test. currently I am waiting for my local health department to make a recommendation for or against treatment based on my history and likelihood of exposure.
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