Okay, I've never posted before, so I guess I should let you know that I'm female, 26 yrs old, Depression since 2005, I have stress, I do not wear glasses or contacts, I smoke, drink on holidays, I do not use illegal or street drugs, I've had what I consider chronic fatgiue since I had mono at age 14 (yet nobody but me seems to care) and I have always been in good health until Oct 2011. Here's my story:
Oct '11: I had a MIGRAINE for 2 weeks (I didn't know what it was at the time), I went to my primary care provider (PCP). She said Migraine, gave me elavil.
Nov '11: Still having migraines, but only a couple times a week, however my left cheek had been NUMB and TINGLING (at the same time) off and on during the day, constantly (I still have this, if it does go away for a week, it always comes back). So my PCP sends me for a brain CT.
BRAIN CT: Normal. Good News.
Jan '12: Still having Mirgrines, still having cheek bone numbness and tingling, and now my neck has electric shocks (on the left side, begins in the middle of my neck and goes up and down at the same time extremely quick, hurts but it's so quick it barely registers). PCP refers me to a NEUROLOGIST.
NEUROLOGIST: Increases my elavil and writes for CEPHADYN (love the cephadyn, never lets me down). I also explain that my SHORT TERM MEMORY isn't the same, My CHIN NUMBS and TINGLES, and she discovered during her exam that everything feels colder on my left side than it does on my right side (although she didn't explain what this means nor if it was normal) She then Orders a MRI of my BRAIN.
BRAIN MRI: 3 BRAIN LESIONS, WHITE ONES. (no tumors, yays!)
NEUROLOGIST: Before she gives me those results, I've told her about my numbness in my left foot, the electricity in my right wrist, the BULGING BLOOD VESSEL in my left temple, the DIZZINESS and LIGHTHEADEDNESS, and the PRESSURE IN MY HEAD WHEN I BEND OVER. She orders an EEG, A WHOLE LOT OF BLOOD TESTS, and a SPINAL TAP.
BLOOD WORK: I was tested for high cholestoral, RH, Lupus, Lyme, TIA, and all the usual typing and count and infection and virus. RESULTS: NORMAL.
SPINAL TAP: NORMAL (although my blood pressure dropped, and I thought I was gonna die lol during the proceedure lol, but it didn't actually hurt, so if anyone is reading this and hasta have one and is scared, it honestly isn't at bad as it sounds!)
NEUROLOGIST: I explain about my not being able to name my fingers, as in I get them confused, I call my pinkie finger my ring and my ring my pointer and ect. My left toes in the middle feel like they're overlapped but aren't, I feel blowing and burning and tingling and numbness on my left foot (always feeling something but never all of them at the same time), and my right shoulder goes numb. Also, I FEEL WARM WET WATER RUNNING DOWN THE BACK OF MY THIGH CONSTANTLY. So she tells me all my good news on my tests and tells me that she doesn't want to blame all that on my chronic migraine and tells me I probably have NEUROPATHY and orders a EMG, she tells me that even if I have neuropathy that it's not bad, I can live with it just fine. She writes Neurotin.
EMG: NORMAL. (Although my sister and dad have both had this test done in the past for different reasons and both told me they hurt, yet I wasn't worried because I made it thru childbirth and a spinal tap, so I figured I could handle anything. And my EMG didn't hurt at all... I was concerned that it didn't hurt, but the lady doing the test told me that pain affects people differently.)
NEUROLOGIST: Tells me that my EMG was normal. Then says, quote, "I'm certain that I've ran enough tests to know that whatever is wrong with you, it isn't bad" Good to know that it's not bad, sucks to know it doesn't have a name! Then she tells me that I have anxiety. She tells me that instead of coming back in a month that I can come back in 3 months. She writes me more Neurotin and increases the doseage.
DURING THE LAST 3 MONTHS: I have been having all the above symptoms, and these new ones: my SCALP goes NUMB and TINGLES, sometimes feeling as if the hair is standing up. My outter muscles on my left thigh and leg go numb. I wake up with NUMB HANDS or NUMB FINGERS, sometimes just one hand, other times both. Sometimes they're numb during the day.
My sister swears she saw me have SEIZURES during my "sleep", grand mal like with jerking and grinding of my teeth, eyes white, ect. (Our dad has epilepsy, so we know what a seizure is).
Also, later that same week, I was walking out of Wal~Mart and all of a sudden it felt as if I was only my feet and my head, like imagine two feet with a head connected was walking thru a parking lot... yet my arms and legs were working fine, they weren't numb, it was like they was there, but my body wasn't registering that they were attached. I also felt funny in the head during this episode.
Then a few days later I was driving my cousin home, when it hit me. (I don't know what it was, but it definately hit me). My whole head began tingling with big size tingles and my body was numbish, I saw myself driving from up and behind. Dare I call it an OUT OF BODY EXPERIENCE? I couldn't speak... my cousin realized something was wrong (although I don't know how she knew, maybe my face had a weird look or something? Dunno, I was seeing the back of my head). She told me where to pull over. I pulled over, I had a urge, a yearning to lay on the gravel belly down... I fought that urge and just wandered around aimlessly for 15 mins til it stopped. Then I drove her home.
The next day I stepped out onto the porch for a smoke, BAM, felt like I was getting shot with a billion pellets in the face... and I also felt the exit wounds (btw, I just had de ja vu again, this is becoming common also). This imaginary gunfire HURT SOOOO BAD. I just stood there for about a minute til it passed.
A couple weeks later I woke up, took my neurontin at 11am, and by 3pm I was so tired that I just fell asleep abrubtly. I woke up at 5:30pm, staggering. I was fully awake about 30 mins later, doing chores and such, yet I was still staggering. I staggered for 3 hours. Nothing was numb, yet I would walk into and with the walls, could not walk a straight line, and well it was like I was drunk, except my head was fine and my vision was fine and I hadn't had anything to drink... not even within the month!
One evening I had a blurry patch in my bottom left corner of left eye vision field. A month or so later I lost my vision in my right eye, for 2 hours that I'm aware of, I went to sleep like that, when I woke up, my vision was fine.
This is probably the strangest thing, for the past week, my left foot... ummm how do I put this... okay, so, try to imagine a world where your left foot urinates... now imagine that it can't hold it and has accidents on itself, but then it's not actually wet. But it is warm, and you can feel sometimes up to 7 streams running all over your foot. And sometimes while your foot is warm and wet and "peeing" on itself... your pelvic area feels uncomfortably hot... like the way the contrast during a head ct makes you feel.
PCP: Followup appt. I explained some of what I've written here, and told her about all my test results, she said she didn't feel like the area neurologist was taking good care of me and is currently setting me up with an appt at UVA.
DOES ANYONE KNOW WHAT IS WRONG WITH ME? DOES ANYONE HAVE ANY OF MY SYMPTOMS? DOES ANYONE THINK SOMEONE SHOULD'VE DONE A MRI OF MY SPINAL CORD? AM I JUST LOOSING MY MIND? COULD SOMEONE PLEASE REPLY... EVEN IF YOU JUST WANT TO MAKE FUN OF ME. THANKX FOR TAKING TIME TO READ THIS. AND I'M SORRY IF I HAVE MISSED ANY TYPOS.
That could be partly anxiety but it's not ALL anxiety!! Have you been tested for diabetes? Get another opinion, it it's affecting your driving like that it could be dangerous, please get another opinion, I wish I had the answers for you I really do, but all I can say is good luck and hope you find some answers soon. Also I know it may sound odd, but have you had your iron levels tested? It can cause major health issues and seizures (my son had low iron and those problems, was weird!)
Yeap, I've been tested for diabetes, tyroid, iron, complete metabolic panel... all normal. I have had a history of low levels of Vit D, but they've came up, and I still take my vit d pill. Plus I got really tan this summer. I am going to UVA, and around here, they are the big wigs... I HOPE they wanna take the time to check me out extremely well... like I want them to be like Dr. House from TV. Thank you.
Check out ayurveda, you know something is not right with your body. keep asking questions and seeing drs who could help. ayurveda drs are amazing and could probably help you incredibly well. don't accept that this is just "anxiety." maybe you need high doses of b12 - did you get your serum levels checked? the numbers should be above 700. read Sally Pasternak's book - Could it be B12. Perhaps you need better nutrition - check out "Eat Right for your Type." Good luck.
I know this is a really old post, but I have some, many, of the same weird, no one knows what they are symptoms, like the dripping water thing, it's happening right now actually.......So many work ups......now a neurosurgeon, and still no answer. I'd love to connect with you, maybe we can compare labs.......(why does that have to be what i do for fun?