My name is Tina Harden and I have had a series of hernia repairs and multiple pcs. of Marlex mesh installed in my abdomen from 1995 to 2001. I have had nothing but trouble with the mesh, as I am very thin and the mesh edges protrude up almost poking through my skin in many areas. I have had surgeons go in and trim existing mesh edges down and trim sutures that also were poking up, with no lasting relief. The discomfort is not limited to what I have mentioned, but also pokes inwards, causing debilitating pain at times. I also have had many instances where food and gas cannot pass through my intestines, and I have to lay down on my side or take a warm bath to try to get some relief. In some instances I have had to pull over while driving, recline my seat and loosen my pants, even though I was 5 minutes from home, because I could not tolerate the pain while sitting with my pants zipped.
Another setback occured last summer, with the mesh shifting once again. Since that time, I am unable to push while going to the bathroom, I have trouble with sexual relations and experience pain when sneezing or coughing.
Last summer, I saw 5 physicians in a row, all refering me to the next, all concluding that I am "not a candidate for surgery at this time". What they really mean is that they don't want to get involved in cleaning up someone else's mess.
I have never researched these mesh complications, because I was told by the doctor that did the first surgery (installing 3 pcs. - Right Ing., Left Ing., and Umbilical), that the reason I had these issues was because I was so thin and lacked a sufficient fatty layer between my abdominal muscle and my skin. But as I was searching for a doctor to help me, I began to read of other people complications and was surprised.
I am concerned that the mesh edges which cause so much discomfort will eventually perforate my bowels, organs or blood vessels and I will require emergency surgery with whoever is on duty. I am actively seeking a expert in the field of mesh removal as I have 5 pieces and know that some, if not all, have migrated.