Joined: 18 Nov 2003 Posts: 2 Location: ontario canada
lupus test positive with hip pain Posted: 11-18-03 17:04pm
I have always been a fighter and a leader.
Lately I have been weak and crabby. I
have a 17 year old daughter and a 9 year
old boy. Neither of them understand why I
am so miserable. I have had a bout of
"pain" that I cant exactly explain. Is
this hip pain lupus? See I was tested for
lupus twice. Both were positive. I have
not seen a specialist yet. All the
symptoms are dead on. I've been like this
for a year now. Just now with this hip
problem I have decided to get my ass in
gear and get to a specialist to find out
what's what. Is this massive hip pain
lupus? Is my moods affected by this
disease? Every inch of my body aches at
times. My family is beginning to think
i'm an hypocondriac. But I don't run to
the doctor for anything. I just wine and
complain about it and put up with it. Is
it denyal? I'm afraid to find out it's
either not lupus and that just opens up
another can of worms. Or that it is, and
too far gone.. I think this is why I
havn't seeked out a specialist. What
should I do? I feel like nothing but a
whining little kid. Please someone give
me some advice.
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phil dennison
Experienced User , Rather EHEALTHy
Joined: 14 Nov 2003 Posts: 71 Location: illinois
Posted: 11-18-03 22:13pm
That was my child sorry
Last edited by phil dennison on 11-19-03 02:20am; edited 1 time in total
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coralreaf
New User, Becoming EHEALTHy
Joined: 18 Nov 2003 Posts: 2 Location: ontario canada
Posted: 11-18-03 22:28pm
You might have read wrong. I am anything
but selfish. I have avoided getting 100%
confirmation of the lupus diagnosis. I
feel if I avoid it it will go away. Just
the last few months have made me aware
that it's not getting better. But my
family don't know anything about lupus.
They don't know what's happening to me.
Why one day I can walk and the next I
can't get up at all. I know I have to go
see a specialist, I just waiting for the
appointment.
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62pjm63
New User, Becoming EHEALTHy
Joined: 18 Aug 2004 Posts: 3 Location: Orlando
Family "mis"understanding Posted: 08-18-04 19:34pm
I had the same issues and I just kept
inundating them with information from the
web (reliable) and any information from my
md's. They seem to understand more than
my husband. I am constantly in pain and
he gets tired of hearing about it and then
when I just stop telling him I am in pain,
my fingers are swollen and look like hot
dogs and my wedding ring almost popped off
my finger he thinks oh she is better!
The best thing you can do is to get as
much information as possible and fill your
life with positive things. This disease
is ruthless and painful. I was also
diagnosed with fibromyalgia. Just meet
with your doctor and get informed and
accept it.
I was diagnosed for sure in sept. After
three years of mds and medical tests. It
was a relief becuase there is concrete
evidence that there was really something
medically wrong with me and I was not
crazy.
