Okay.
I was diagnosed with sle a year and a half ago. I have a consistent high sed rate, a high ana, and many of the physical symptoms for lupus. These symptoms are chronic fatigue, joint pain and swelling, sores in the mouth, chronic infections, and hair loss.
I also have an eating disorder. Stupid, I know. But here we are.
What I want to know...I am realizing that some of the physical symptoms I am having could result from the eating disorder. Meaning, the eating disorder may be making me feel so sick. Not lupus.
But what about my consistently abnormal lab results? Can eating disorders cause that too? Or is this wishful thinking? tackling my eating disorder seems more plausible than beating lupus.
I am on plaquenil. I have tried imuran and methotrexate. Both make me pretty sick. Steroid injections made me feel great for a while but I developed Cushings and gained 20 pounds in a month and a half. Not good for the eating disorder. But I lost that 20 pounds with help from my doctor. Who does not know about the eating disorder. Still stupid. I know.
Between these meds, the other ones to help with the symptoms (folic acid, ibuprofen), the antibiotics for the frequent infections and the diflucan for the resulting yeast infection, I have had it.
On Christmas day, I stopped everything but the Plaquenil. Its just all making me so sick, and none of it seems to make me feel any better. I wanted to stop feeling nauseous long enough to enjoy my little ones Christmas.
No matter what I try, I feel awful. Can anyone out there help me off this roller coaster?
I know I may have brought this on myself. If I have, I can fix it. I just do not know how to tackle all of this.