I am a 24 yr old female, college student and wife. I only know that some of the symptoms I have are similar to Lupus through various articles and forums I've read. I've sort of been left to solve the mystery of what's wrong with me by myself.
I've had various symptoms come and go since I was 16, and for the past 3 years I've experienced declining muscle control in my hands, and severely declining cognitive function. At one point I was diagnosed as ADD, but now the memory loss and inability to focus has turned into slurred speech and wrong words being used in sentences. Even taking a very high dose of Adderall each day doesn't help. In fact, I feel like I haven't even taken it (and I'm talking about 60mg of XR with up to 30mg for a "booster"). The only thing it helps with is energy, and barely that. It keeps getting worse. I've had petechiae, problems with noises in my ears (currently the sound of blood rushing, been continuous for about three months and it's driving me mad), and within the year I started feeling extremely lightheaded and faint after ending over for just a second to put a book on the shelf. Normal MRIs (w/o contrast) and CBCs, including negative ANA, but I keep getting worse. The cognitive problems are always present, though the flu-like symptoms (dx as vague viral infections) come and go. I feel like my mind will be gone before they ever figure out what's wrong. Any advice or ideas would be greatly appreciated. Has anyone experienced anything like this?
That was to test this reply. You sound a lot like me. After five years I was dx'd with Lupus.
My antibody is Anti-SSA, Sjogren's . My ANA has always been negative. There are such things as atypical Lupus. I also have MS in my family and I catch myself saying, I used to be ******* . I was. I took Cellcept for five years, have been off two. Cellcept made a tremendous positive difference in the quality of my life. Oh, Cellcept is an immunosuppressant. The generic brand is now available. It is cheaper but I feel the brand name is better.
Finding a competent qualified rheumatologist is not easy. I was sick, now I am just depressed and coping. Everyday I'm shuffling.