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greg24fan

New User, Becoming EHEALTHy
Joined: 07 Apr 2008
Posts: 3
lower back pain symptoms
Posted: 04-07-08 12:58pm

I just found and registered for this forum so I'm sure what I'm posting here is probably covered somewhat under previous posts which I will review over time. However, I thought I'd start by posting my entire back pain and treatment history as I have questions on options from here going forward.

I have been experiencing lower back pain and symptoms for years. I have seen my GP, a couple of neurosurgeons, and have recently had several treatments at a pain clinic. Everything I've tried, for the most part, has given me results to some degree. But, I'm recently at a point that concerns me and I'm not sure how to proceed given the options that may be put before me.

First, x-rays showed nothing. Eventually, I got an MRI and it was determined that I have a degnenerative disc problem and 3 herniated discs in my lower back with 2 of them being mild and 1 (the lowermost damaged disc) most likely the culprit of most of my pain issues. An appointment was made for me with a neurosurgeon but it was 6 weeks or more out. I was also given a shot of cortizone. By the time my appt. rolled around, the cortizone and/or time had caused my pain to go away. I consulted with the Neuro doc and he discouraged me from pursuing surgical options if other medications were helping. Since that time, over the course of several years, when back pain came back, usually 6 or more months apart, I was able to return to my GP for another cortizone injection with very good results. Last year, the injections seemed to stop working as well as was expected eventually, and I was referred to a pain clinic. I had a single epidural steroid injection and the relief was almost instantaneous. However, it only last a month and I went back for another. Again, the results were immediate but this time it only lasted 2 months. At my third visit, the doctor told me that if a third injection did not produce better, longer lasting results, perhaps it was time to look into surgical options. My symptoms were different prior to the third visit however. I had only mild pain at the same point on the left lower side of my bike but I had more severe pain in my leg (which I had experienced many times before) but also a significant loss of mobilty in my left foot and toes which I still have at this moment as well as numbness in my foot. Most of my pain is gone but I still cannot raise my left foot as high as my right and my left toes cannot be raised much higher than level no matter how hard I try. It's not due to pain, they just aren't responding. And that scares me.

What I didn't add, above, is that about a year ago I woke up with severe pain in my left arm and some numbness in my left hand and fingers. Long story short, I had another MRI and it was discovered that I also now have 3 herniated discs in my upper back and 1 was causing this pain and numbness. After some time, the arm pain went away but, a year later, I still have 2 fingers on my left hand that still have significant numbness in them. It was explained to me that the numbness may never go away or at least take a considerable amount of time to go away.

So, as of today, I have an appt. with the same Neurosurgeon I saw several years ago. But, the appt. is over 6 weeks away. Is surgery my next logical option? Is it possible that the numbness and lack of mobility in my foot and toes may be permanent or at least long term with or without surgery?
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RichT

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Joined: 22 Jul 2007
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Posted: 04-07-08 17:18pm

Hello Greg,

Welcome to this forum and the great people who post and try to help others.

Thanks for all the detail you have shared with us. It helps so much to have those details.

You have sought medical advice, and that is good. You have had the MRIs which has helped your doctors better understand your situation. You have seen a neurosurgeon and have an appointment with him again.

A few thoughts if I may - Seek out the best neurologist/spinal surgeon that you can find in your area. Talk with those you know and find out which ones they had high regard for. Also find out which spinal specialists they did not like. If you live in an area with a professional sports team call up their office and find out which spinal surgeon they have for their players.

Greg, then make an appointment to see the doctor at the top of yiour list. Next, make an appointment to see the next doctor on your list. It is always a good idea to get several opinions, especially in your case of continuing pain.

I have seen a total of 6 spinal surgeons, a neurolgist, and a pain management doctor. About a year ago two of the spinal surgeons recommended that I have surgery. Thanks to my pain management doc and the epidural injections I can function and do many of the things I want to do. Are there things I cannot do? Definitely!!!! No standing in one place but for a few minutes, no sitting in uncomfortable chairs. The only bed I can sleep in is on an air mattress.

Greg, it took me several months to decide in which direction I should go - surgery now, or keep the knife away as long as I can. I have decided to keep the knife away for as long as I can.

Greg, I am concerned about the pain and loss of feelings in your arms and legs. That is of very serious concern. Such "signs" can indicate that there may be a permanent loss of function. No I am no doctor, that is just what I have read and heard from doctors.

I know the above really hasn't answered your question, but I hope it gives you some food for thought.

RichT
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greg24fan

New User, Becoming EHEALTHy
Joined: 07 Apr 2008
Posts: 3

Posted: 04-07-08 21:14pm

Rich, thanks for the response. It was/is my intention as well to stay away from the knife as long as possible. I can handle a lot of pain and back and leg pain have been a big part of my life for several years now and I've had good docs that have managed it will with cortizone and steroid injections. I still don't want to have surgery if medications continue to work while I only have to endure short periods of pain now and then. However, I'm too young and enjoy too many active things to begin permanently losing mobility in my extremeties. If surgery will correct those issues or at least prevent them from getting worse long term, I'm open to it as an option. I've gone from hurting to actually not being able to move parts of my body and/or be able to do things with parts of my body that I could and should still be able to do in the past. It's a scary thing.
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RichT

Active User, Really EHEALTHy
Joined: 22 Jul 2007
Posts: 910
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Posted: 04-07-08 22:41pm

Hello Greg,

You are analyzing your situation and yourself very well. Yes, it is a very scary thing.

That is why I sincerely hope you will get the opions from several spine specialists so that you can make the best decision for yourself. I would suggest that you not delay getting those opinions so that you avoid/minimize any permanent damage. You have too much to live for to sacrifice that life by staying away from the knife IF that is the best path to follow.

I wish you the best. Do let us know how things go for you.

RichT
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