Hello everyone, I'm looking for any advice anyone can give me regarding my aquired medical conditions. I'm a 28 yr old female that has a history of severe bruising, bad blood clotting (hard knots within the bruises), severe anemia, headaches, fatigue, and I recently had to have knee surgery and found I had very bad bleeding into the joint after the surgery. A few wks after having this surgery, I was in a car accident, we were rear-ended and my knee was reinjured. I went to the ER and a CT scan of my knee showed a moderate amount of bleeding within the joint 8 hrs after the accident and it showed that the bleeding itself hadn't stopped yet. I decided to see a hematologist/oncologist to see if I have a blood disorder. I've had 2 sets of labs done in the last several wks, the 1st showed abnormal low factor 8 levels. Everything else was borderline low but not abnormal. The 2nd set showed abnormal low platelet levels and now my factor 8 was sitting on the borderline of low but said not to be abnormal. I'm worried about something more severe like leukemia but my wbc has been normal. The doctors are stumped currently and told me "you def have a problem, we just don't know exactly what the problem is yet."
Can anyone offer me any insight, I'm growing frustrated as well as anxious. Anyone that responds to this, I wish you the best with your health! Thank you!
Hi, I have gone through a similar situation. I am 39 and have always been healthy, except for my bleeding issue. Until now, no one has really given much concern. I have been told many times that I just have a very elevated bleeding time. I am in the process of finding out if I might have a condition called Von Willebrand's disorder. It is related to the factor 8 platelet. I have had many blood tests and thus far they only show a low platelet count. On Wednesday I was given a med called DDATP to see if it helps with the excessive bruising and heavy bleeding. I am not sure if this information will help you. Don't give up! I totally understand the frustration. It is very important. I have hemorrhaged twice after giving birth to children and twice after surgery. It is quite frightening. Some bleeding disorders are very easy to monitor and maintain. Von Willebrands is one of them. However, it is very dangerous to just not know. Good luck!