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Conditions and Diseases > ALS, Lou Gehrig Disease Forum > Lou Gehrigs disease progressing fast
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Q: Lou Gehrigs disease progressing fast
asked by: twincam on March 8th, 2009
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My brother in law has Lou Gehrigs and it started with his throat his speach has been gone for many months. we were relieved when he started using a white board, at least he could comunicate with us now he's getting so much worse my sister and i have been with him up to emergency about 4 times in the last week .he's been on a feeding tube for about 2 month's now, we live in Kalamazoo Mich going to both Borgess and Bronson Hospital , he's on cumaden to thin out his blood and now the feeding tube is bleeding out of the stomach like water. so back to emergency again overnight . they reduced the mg of cumaden from 10 mg to 5 mg per day . he's back home now and so constipated he's up all night stumbling around , my sister won't leave his side ,she hasn't slept in many days every time she falls asleep he wakes her up all mad at her for sleeping , she's probably going to die from exaustion be for he does , he figures if he can't sleep why should she, we were in the hospital when they offered him a nurse to come by the house to do the blood work and help out, but he refused saying it on his white board that was 3 days ago my sister probably hasn't slept 2 hours sence he refused to let a nurse come over, we know he's going down hill faster and faster , are his symptoms last stage or could this go on for months? we had talked about if we should pack him up and go to U OF M Michigan the doctors in kalamazoo don't know what to do, or is this to small of a town for them to know how to deal with this disease, please any advice would be greatly appreciated . GOD BLESS and thank you
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twincam
replied on March 8th, 2009
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I forgot to mention something
They finally said they thought it was a l s if that makes a diference
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