Long-term headache after septoplasty operation

Hi

I hope someone on here can give me some help/advice.

I've had a headache for approx 16 years and it's all day every day. It seemed to coincide with a septoplasty operation i had to straighten my nose and sort of breathing problems. I don't know if the surgeon maybe damaged some nerves at the top of my nose etc.
I've tried pretty much every pill there is to try over the years, and have seen and ENT specialist who could see nothing wrong, although the pain seems to be in the classic sinus areas. the only way i can describe it to someone is that my head feels like it is in a clamp and the pains are at the back of my head, and above my eyebrows and is like a dull ache.
i manage to tolerate it most of the time and have learned to live with it over the years, but when i am tired, ill or run down it feels a lot worse and makes me very tired. fizzy drinks also seem to affect it.
i was diagnosed 3 years ago with a nerve disease called charcout marie touth disease which may or may not be something to do with it.
are there any experts out there who specialise in constant headaches or does anyone recognise the symptoms and have any advice??