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Q: Living with Hypoglycemia
asked by: birgit001 on January 12th, 2009
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Hi everybody! I am from Austria and stumbled over your forum and I thought I used the chance, to ask some questions, as it seems, some of you know more than my doctors or me at the moment. Smile

The problem I have, is that I was diagnosed with an unspecific cause for my hypoglycemia in the hospital 1 year ago (did all possible bloodtests, had to starve for a couple of days till they stopped it, MRT and Octriotidscans where done...the works basically). The only thing that they have found was that my serotonin level was 7 times higher than in a normal person and therefore they thought i had a tumor that produces this extra hormons. But further tests were made, and they couldnt prove it that i had one, or locate one. So the doctor told me in the end, it was "just" luck, that in this one blood test, my serotoninlevel was so extremly high. Even when i starved for 3 stays, i got hyposyndroms and they had to end the experiment, but my bloodsugar didnt drop under 60, which is also a bit out of the ordinary. And all the doc could tell me, that i should stick to a diet. The problem is, i am very sensitive to other sugars (f.ex. fructose, lactose....) as well, and my diet has been very restricted since about 3 years. And now with my hypoattacks it is even worse. I am still not totally in controll of my hypos and if i have one, it is not fun (i kinda pass out, start shaking and drooling, and i cant help myself...i need somebody then who gives me something to eat...it acutally looks like a bit of an epilepsy fit and my brain is slowly shutting down). Most of the time i have warning signs and can avoid such hypos, but then, some of them come out of the nowhere and after the fit, i feel fairly bad for a couple of days. The last 2 month i had every week such a bad hypofit. I am honestly fairly fed up with this situation, as it has quite some impact on my live (doctor want allow me to go windsurfing, which is my second love of my life, my work suffers as i am mentally fogged up a lot, i put on a quite a bit of weight...). And my diet is already very restricted and follows more or less Stans diet, except that i use soymilk, i cant eat fruits or too much veg or dairyproducts because of my fairly bad intolerances. I have also started doing bikram yoga and go 4-5 times a week, if i feel i am up for it. So i am really trying to attack this problem from more side than one. But lately the symptoms are getting worse (last 2 months). I pass out more, therefore feel more sick and miss out on live. I do have a bit of stress at the moment as i am graduating from uni at the moment, but it doesnt feel that bad. My doctor said, as i also have 5 liver tumors (they are not bad ones, they are more or less fatcysts), and my results are not standard, that maybe the serotonin producing tumor is still there but they cant find it..which worries me quite a bit.

So after all my rembling my question to you are, what do you think about my hypoglycimia? Does it classify as "hypoglycimia"? Do you maybe have any tips or tricks that could help? Has anybody ever got rid of his hypoglycimia? Can you heal it?

I would really appreciate it and be very grateful if somebody maybe shares their wisdom with me. Thank you very much!
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Stan
replied on January 19th, 2009
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Have you been tested for food intolerances? If not, don't think you have them. I can remember, first starting out my diet, thinking I was intolerant to everything because it seemed like no matter what I ate I'd get symptoms. It takes time. I hope you didn't try the old diet. If you didn't, great, but it sounds like you may not have given enough time for it to work. And I must ask, did you check your soymilk for sugar content? If it DOES NOT say 'unsweetened' somewhere clearly on the box, it's sweetend with some type of sugar and is making you sick. I'm totally cured, in the sense that I no longer have symptoms. If I wanted to, I could have a piece of cake here and there, but I really don't care anymore I feel so good now.
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