Hi my name is Nathan from Australia, and my dad is in HK undergoing treatment for Liver Cancer also. We found out about the cancer very late, when it became metastatic and had spread to his bones, growing a tumour next to his spinal cord, which had affected the nerves controlling his lower body. It had caused him extreme pain, but lucky he had a surgery and removed it, tested and turns out it was liver cancer.
Since then, he had a PET scan and we found that the tumour in his liver was about a little less than 8cm in diameter, and his AFP was about 400-500. The doctor had him on Nexavar (which was super expensive) and also on rounds of radiotherapy on his back and liver, and then progressed on to chemotherapy. To date, he had been through about 12 rounds of chemo, for about 8 months! He had battled through it all, and eventually the AFP dropped to about 23. The tumour had also shrunk to about 1mm. However, his health had deteriorated, he lost all his appetite and worst of all the cirrhosis had worsened, and his liver functions were seriously impaired.
I rushed back to HK to visit him about 3 months ago when he was rushed to the hospital. By then he had lost most of his body weight and could barely talk. He was also accumulating ascites and was very weak.
Maybe it was me being there giving him strength, but during his 3 weeks stay in the hospital, he gradually got better. The doctors and nurses did their magic, he also received bags of fluids, blood, protein, and platelets to keep him going and bring his health back together. Eventually he got a bit stronger, and his health is now slowly back on track, although he is still having ascites. This was 2 months ago.
Now he is still having the same problems, and he is on a very strict diet. Through research on the internet, my family give him organic fruit and vegetable juices everyday, and it has improved his health and overall he just does not feel as tired or feeling fatigue as much as before.
However, just as his health is improving, the cancer is also catching up again. The AFP has been gradually increasing and he was put back on radiotherapy aftersome new spots were found on his liver. The radiotherapy didnt help, the AFP is now abour 260. Hence, the doctors have now offered him more chemo, and also more medication similar to Nexavar (but a different one). The cancer had also spread to his stomach. Now, the dilemma obviously is that the cancer will continue to spread if no action is taken. But if he continues with the chemo, his body will worsen significantly. Is there anyone out there who could provide some sort of advice? Are there any naturalistic approach we can try perhaps? I am praying everyday and I am really desperate to save my dad. He has been and still is very positive and is an inspiration to everyone around him. I only wish there is a way for him to get through this!
helena1981 - Good to know that the AFP is so much lower! I know and understand exactly how you feel right now. I would love to hear from tips from you on what worked for your dad and what books you read.
Please send my best wishes for your dad also!
Much appreciated, Nathan.