My little brother was diagnosed with duchennes 12 years ago. I am 8 years older and my parents are expecting me to take care of him when age catches up with them. My boyfriend and I have been talking about getting married. One of my parents' major concerns is the fact that they don't think that my boyfriend and I can comprehend the type of strain that my little brother would put on us, financially and stress-wise. I do understand that. I've seen that in my parents' marriage. They also think that we will not be able to support him financially. My boyfriend is a cop and is planning on getting his law degree, eventually. I am in school for business and plan on taking over the family business.
After ranting, my question is: am I really not understanding how hard it is to take care of a boy/man with DMD? and Should that dictate who I marry?
Hi, I think you should have good contact with your parents so you can show them you are interested in your brother's welfare, & enlist their support for you 2 to look after him NOW - in preparation for later on. Your parents should be prepared to help you. Since you are both working & studying, it's going to be a group effort to look after your brother. Stick together as a family & work things out.