Hi Reese

I am really sorry to hear about your ordeal it must have been horrible for you. I don't have much other advise other than trying to find the right doctor.

I know exactly how you feel. I had struggled for almost 6 months with a burning pain in my left wrist. After three cycles of anti-inflammatories and many a physio appntment where they abused my neck and shoulder cus it had a spasmism, I finally got to a doctor that diagnosed it as "Loss of cartlidge". What's more, is that he also helped me to confirm a dx of Marfans, with cardio implications I might add.

The only problem now, is like what you say...all doctors can do now, is tell me "You have Marfans...take anti-arthritics and anti-inflamatories". There isn't much that they can do about my cartlidge wearing away except eventually fusing the problem joints.

What age are you? From what I can gather, you might either not have enough bone growth left to justify a brace or your spinal curviture is not enough to warrent surgery (Spinal fusion). The only thing that might at least relieve nerve and muscle aches is physio and chyro but that would be more superficial than anything else.

As for your hip...that sounds a bit bad. You might want to try a Biokineticist. I have patella-alta, meaning my knee caps are shifted up. The Biokineticist would at least be able to do one of the following:

1. Address the problem muscles and/or legiments to re-strenthen them so they pull the hip back into place.
2. Address the muscles and/or legiments around the affected joint to assist with the "new location" of the hip and allow for less painfull/uncomfortable movement.
3. Maybe even be able to help you with some exercises to reduce the pain/discomfort from the scoliosis.

These kind of injuries...as I have found out...has no permanent fix. I am bound to Biokinetiks, anti-inflamatories, anti-arthritics, Beta-Blockers for life. Any other problem that pops up, and there is sure to be more still, will just have to get in the que and be treated individually. All that and I'm only 28 y/o.

I hope you find some help my friend. I know how difficult it is when you have something permanent and being labeled. Even though these problems has to be handled individuall, doctors still can't seem to NOT see it outside of the full picture, which is that Marfans for instance is un-treatable.

Best of luck!

thank you so much for replying. you have no idea how much that means to me. i have an appt with a hip guy next week. i just hope it's not a guy who only looks at your hip. no replacemnt. thank you.

was thinking of seeing an osteopathic. but for some reason as much as i believe in that stuff. i would like to find out technically what is wrong. then decide what directionton to go into

i wish i could just find someone to give it some thought.

thank you again

i will look up the Biokineticist. i hate going to physiccal therapy when nobody knows what there working on. it's pretty depressing. it's like. let's build up the right arm. but they don't know why it's like that. jsut seems dumb and even i don't know...

reese